Recurrent Miscarriage Support - tests, treatment, trying again - thread 9

[bakingtins]

Welcome everyone - pull up a chair! A thread for anyone who has suffered multiple miscarriages and is in need of information, moral support, tea or sympathy. Newbies very welcome.

Can we start the thread with a recap of where we are all up to again, please?

So sorry to hear of all the losses you have experienced recently Katie. But i do agree with just that it would be good to take some time to recover. I think there is a cumulative effect which you may not realise initially.. do try to take a little more time off, and as just says, you can do some planning at home if you need to. Thinking of you xx.

So sorry katie take care of yourself and take the time off you need

Still no AF I am worrying myself sick and sorry for the tmi but I seem to have developed bleeding piles overnight!??! Pee sample sent off but thing it will be Thursday before results

Waves to everyone

Hello, again agree that you need time to recover...

In my first 3 miscarriages I just went back to work asap...

Last October on number 4 i took 1.5 weeks off to recover... and went for counselling after...

• -

in my news, I am 5+2 and saw my GP today. he gave me the flu jab straight away and sent me for thyroid and random glucose bloods...
my pulse was a bit elevated so I shall go back tomorrow to retake blood pressure and pulse...

and... the best was he actually PHONED the EPU and booked me a scan in 2 weeks when I am 7+2

That all sounds v positive Tiny good to have the next scan in the diary.

Katie I'm a HoY and believe me, you need to take the time off. It's an emotionally and mentally draining job - you cannot do it after a tragic time like this. Take care of yourself. In a state you'll be doing yourself no favours and the kids won't be getting the 'best' of you anyway so rest and recuperation is vital.

Quick update: my 8 week scan went OK, everything looks normal. For those of you going through tests, hope this reassures you that once you're 'on the radar' treatments, TLC and monitoring are out there. :)

Sorry to have been absent, Baking. It's nice to be missed!

Hello can I join this thread please? This morning I started my 4th mc. This is my 3rd in 11 months so I hope the doctor will refer me for investigations. Will write more details when feel a bit stronger if that's OK. Just wanted to join the thread so I don't feel so alone

i'm so sorry. i also had 3 in a short time back in 2010...
wishing you strength but remember it is allowed to cry x

Morning everyone hope you are all ok :)

I'm going to take a break from mumsnet for a while, it has been an amazing source of support for me and I will pop back I'm just really struggling with feeling anxious that something is going to go wrong I have my 20 week scan next week and Im terrified. I don't think it's helping me to read things on the boards either in miscarriage or pregnancy I just need to try and relax and enjoy my pregnancy (not sure if that's possible!). Wishing all you pregnant ladies all the very best and all the ladies going through the tough times I hope you get some answers and your rainbow babies soon.
I will be back at some point, Butterfly x

Wishing you all the best, butterfly, we'll be here! x

DogandBeth Sending you a big hug at this difficult time.

Butterfly thinking of you, very best wishes for you scan. Look forward to hearing you good news in few months! xx

Dog So sorry that you are in this situation. I had 3 mc in a row last year, it is just awful. Hope you are getting lots of support, look after yourself! You should be getting some tests done now, at least. If you can, try and give the 'product' of your mc to the hospital, so that they can investigate it.

Butterfly All the best, fingers crossed all goes smoothly for you! Sometimes it's good to get some distance.

Katie Yes, try and get a break! It's so hard, having to go through this time after time. Your body might recover, but the mind is a different matter. Do let us know how you get on with Prof Regan.

I'm 5+4 today. No symptoms whatsoever. My belly is covered in spectacular bruises, and I seem to be popping pills all the time, as well as inserting pessaries twice a day... Currently following the head-in-the-sand tactic, trying to ignore that I'm pg to get by. Still waiting for the midwife to get in touch for the booking apt, as well as for the referral to the haematologist. Waiting waiting waiting...

dogandbeth I'm so sorry you have had a shitty year. I had 3MC between Sept12-June13 and it is shared to pick yourself up when every time you gather your courage you get slapped down again. I hope the testing process brings you some answers and some hope for the future. Here to support you through it when you need us.

butterfly good luck for your scan next week. We will look forward to an update when you are ready.

Thankyou to all those now on the Sept/Oct thread for popping back. I am a nosy cow do like other how you are all getting on!

I am having a crap week,but for non-pregnancy related reasons. AFAIK baby is doing fine, have 24 wk appt next week. DH has started a new job and I might as well be a single parent, he hasn't made bath time once this week and basically hasn't seen the kids, or much of me, for 4 days. This had better not be the way it's going to be! We thought we had found a rescue dog to replace our beloved pooch who we lost back in September, but he turned out to have massive separation issues and has had to go back. Spent all day steam cleaning the kitchen, sanding down the chewed baby gate, and still have all the carpets to Vax after his escapades.

JBrd What a soldier you are! I cant complain about a heparin injections when you have through all that. I hope you are getting lots of special treatment!

Baking sounds like you really need a rest this weekend. I hope your DH can take over and give you some time to relax, you will need it. Maybe have a nice take-away to cut down on dinner prep - you deserve it after all that steaming and vaxing! Good luck for the 24 wk appointment; im nervous thinking about that one, but once you get to wk 24, you are at the last lap!

Thanks for your kind words and replies. I don't have much rl support as only 1 person apart from dh knows we are ttc or about the mc so it's nice to be able to post here. Last few times I've just painted a smile on and soldiered on alone but this time dh has managed to get parental leave for a couple of days -(we have 2 dc one of whom has quite severe autism so has rather complex needs) which means I can get a bit of rest while he looks after the dc. Just feel a bit number at the moment.

That should be numb not number. Sorry am posting on phone

Hi, I hope you don't mind me coming asking the question about stopping med's. I know a few of you from other threads and was not sure where to post the question.

On Monday I will be seeing local hospital consultant to get further prescription for med's, before I go I want to know what different experts advise. Eg Regan/Rai, Quenby etc

The only thing that seems consistent is stopping progesterone at 12--14 weeks. Also aspirin stopping at 34 weeks.

But what about the heparin injections? The only test that turned up positive for me was the test while miscarrying. So do these injections stop at 12 or 34 weeks or another time? Are there different answers from the different experts?

And prednisolone, when does this get tapered / stopped? Is it 12 weeks or later???? I have not been tested for NKCells, have been prescribed on the basis of a positive ANA test.

I am trying to think positive about this pregnancy. I. Have 3 children already, but 12 first trimester miscarriages in between 2007 and 2012. I hope you don't mind me asking about this?

TEG test positive while micarrying.

Willitbe I am on clexane (heparin) and aspirin - diagnosed at St Mary's with APS (sticky blood) and as local, decided to go with their ante-natal. Was advised before TTC and upon booking in with midwife that my care plan is clexane daily up to 32-34 weeks (consultant will decided). They didn't mention even stopping the aspirin but I guess it would be same time. (Note to self: ask at next visit).
I know with different conditions people take clexane up to different times though. Lucky me I get it until (touch wood) I'm pretty ready to pop! Joking aside it's quite reassuring to know mother nature will get a helping hand until the bun is baked.

It would be on a Saturday, wouldn't it?

Just got a letter from my gynae to say I have high IGM and he wants to test again in 3 months. He doesn't know I'm 5.5 weeks pg now, but dr google says it can be an indicator of all sorts of things.

Should I call on Monday? I'm already bricking it as it's the stage I normally mc, and feeling so helpless

Has anyone been put on heparin without a second blood test? Is this a possibility at my stage?

willit I was on Prof Q's protocol. Progesterone from day 21 to 12 weeks. Pred from BFP then tapering from 10-12 weeks, stop at 12 weeks.
Clexane from scan showing intrauterine pregnancy at 5 weeks until 12 weeks. I have no clotting issues though, clexane was only to protect the placenta. If there's a ignored clotting issue it would normally be used into third trimester.

tanny AFAIK it could indicate that you have APS/clotting disorder. I would think since you are already pregnant they would put you on clexane as a precaution rather than repeating the test. Phone on Monday. I started my clexane at 5+4
Fingers crossed you get some help on Monday. My local pharmacy seem to always have clexane in stock so if they'll fax you a prescription you should be able to get hold of some quickly.

tannyloo - some places don't start the heparin til 6 weeks, but contacting Monday sounds like a good idea.

Bakingtins - thank you for the information. I think I might have to ring St Mary's and find out what their protocol is for heparin with positive teg test. They were not going to put me on heparin, their recommendation for me was 150mg aspirin only. But local doc said heparin, so now don't know whether I should be stopping at 12 or 34 weeks. It is so confusing when you get conflicting information and advice from so many different docs. I think I need to work out if, despite not having any other clotting disorder tests turn up positive, if the aspirin will be sufficient after 12 weeks?

Thanks Baking and Willit. I really want to do everything I can to make this one work. I feel old and tired and like giving up if this one fails...