Please or to access all these features

Miscarriage/pregnancy loss

Find support and share your experiences on our Miscarriage forum. See also legal rights and support after baby loss.

Recurrent Miscarriage Testing, trials and tribulations...Part 7!

987 replies

squizita · 07/06/2013 19:04

Hi all, carrying on from part 6. All kinicker-checkers, blood-testers, clinic-attenders and finger-crossers welcome. Nothing but love and crossed fingers...

OP posts:
ODB1515 · 28/10/2013 14:33

Had a scan at 5 weeks 5 days and saw sac and yolk but no heartbeat yet. Have to go back in a week when I'll (hopefully) be 7 weeks. So nervous and was so disappointed but just need to try stay hopeful

bakingtins - how you feeling today?

butterfly86 · 28/10/2013 15:04

ODB fingers crossed thing are progressing nicely when you go back :) it's so hard to stay positive isn't it.

Bakingtins · 28/10/2013 15:38

That's ok OBD same as my scan at 5+4. They don't expect to see a HB until after 6 weeks, so hopefully it'll be there next time.
I know even a week feels like a long wait. my next scan is in 71 hrs and 20 mins Wink

butterfly86 · 28/10/2013 16:00

Lop Baking my scan is in 263 hours :)

butterfly86 · 28/10/2013 16:01

*lol

squizita · 28/10/2013 17:09

Baking what a shock! However as others have said dizzy/fainting seem to happen often in healthy pregnancy ... Based on f&f stories ... so I'm sure it's not a problem. Rest up!

Butterfly can totally see why you're paranoid, sure is all OK. Some women boak all through, others don't realise for a while ... So am sure our obsessive symptom spotting will always worry us either way! Actually they mention that in Coming To Term ... The anxiety which becomes normal for us.

Think I'm gearing up to OV as me little fibroid is twanging a bit. Every pain has me paranoid I've got some horrid disease and I'm not even pg yet! Oh dear. Think I'm just nervous as my appointment's tomorrow. Fingers crossed!

OP posts:
squizita · 28/10/2013 17:10

ODB yeah a yolk sac is good - fingers crossed you see the HB next!

OP posts:
Bakingtins · 28/10/2013 17:14

Good luck for your appointment squiz

ODB1515 · 28/10/2013 19:06

thanks everyone and good luck for all the appointments. Just trying to forget about things and get through half term taking my mind off stuff and occupying my boys…..

LateBloomer414 · 28/10/2013 21:25

Sending waves to all (and maybe a stern finger wagging at you Baking- please take it easy these next few days Wink)

dildoos · 28/10/2013 21:39

Evening ladies, please could I join your thread, looking for friendships in my aim for a successful pregnancy.
My story dd5 , dp 31 and I am 32.
Ttc 30 cycles
Mc x 4
Fed up: absolutely.
Tests: now completed form for investigations into miscarriage.
Alternative medicine: starting herbs from Indian Canadian doctor on Saturday !
Willing to try anything: yep
Mental: double yep
Last miscarriage : 5 days

Love to all x

Purplefrogshoe · 28/10/2013 23:42

baking hope your feeling better, sounds very scary, butterfly hugs the wait for scans is awful! Hi dildoos so sorry , good luck for all the appointments and hi to everyone else! I told my work about my molar pregnancy and they want me to be assessed by occupational health before I start bk next week! this is ridiculous surely?Angry

Bakingtins · 29/10/2013 06:32

Ridiculous, purple but tell them it means you need a comfy chair, a window seat and a pack of chocolate biscuits within arms reach Grin

Bakingtins · 29/10/2013 06:43

dildoos welcome, glad you decided to join us. I take it nothing was found on your tests? Are you being offered any treatment or support by your RMC clinic?
I have 2 children, with one MC between them, then have had another 3 miscarriages in the last year trying for DC3. I was all ok on the standard RMC tests, then lost another baby which was tested as chromosonally normal on the "can't hurt" protocol of progesterone, aspirin, folic acid. I went to Prof Quenby's implantation clinic and have been diagnosed with high NK cells and am 8+5 on prednisolone, clexane, progesterone and folic acid. Still far from out of the woods but have been given a little hope.
If you have lost any babies you know were not a chromosome problem (and unlike most of us old gimmers they can't use your age as a factor) then NK cells worth considering. The pattern of having had children and then a series of miscarriages is typical.

TinyTear · 29/10/2013 08:42

purple maybe the acessment is to move your chair away from pregnant people so you don't break down...

I know after my mc1 i had to tell a colleague to put a scan photo down as i was breaking in tears every day - and note, it was NOT her own scan, it was some friend... if it had been her scan I wouldn't have said anything...

at least now I work in an 'agile' office which is basically hot desking by a fancy name, so can choose where to seat in a certain area, so keeping away from the pregnant, and soon to be fathers ones

TinyTear · 29/10/2013 08:43

How many of us here have other children?

I have a daughter (21 months) but she came AFTER 3 mc...

She is keeping me sane in this mc4, but mc3 with no children really killed me, I lost all hope for a while...

Purplefrogshoe · 29/10/2013 09:42

Its a formal assessment by atos! Im really annoyed as i dont want to discuss it and i cant really see the point. They have not being paying me so i really dont get it. Im going to speak to my union rep. I have already spoken and sorted out with my manager that i wont be working with my heavily pregnant colleagues, this has all been sprung on me at the last minute and i think will delay me going back. I have appointment with consultant tomorrow, i think they are going to do basic RMC tests even though my last one was MP

butterfly86 · 29/10/2013 10:26

Squiz good luck for you appointment today!

Welcome dildoos sorry for your losses, hopefully the tests can shed some light for you.

Purple how shit work are making you have an asssessment I don't see why it's necessary I hope it doesn't stir things up too much for you .

Baking how are you feeling today?

Tiny I don't have any children I think recurrent mc is horrendous for anybody and I'm not saying It's worse for me but I do think it's extremely difficult when you don't have children because there's the worry that you may never have any at all, I find it so hard to ever imagine things working out all I want is to experience a healthy pregnancy and have a baby at the end of it.

I've been thinking about teaandchocolate the last few days I wonder how she is?

Bakingtins · 29/10/2013 12:40

Tiny I think we've had the discussion about having children on the thread before and we're fairly evenly split between those who already have had children and those who haven't. I think if you are childless there is a whole other dimension of fear of what the future holds and if you'll ever have the family you want, but if you have children then there is that much more pressure to hold it together and you have to take them into consideration in all your decisions about the future. Hard either way.
purple good luck with the consultant tomorrow.
tea if you are reading - hello!

I feel ok today thanks Smile

TinyTear · 29/10/2013 13:13

Sorry, if I brought up something painful. haven't had the time to read all - when I am home thursday resting from my ERPC I will make the effort to read through it all - Promise!!

Apologies again!

Bakingtins · 29/10/2013 13:27

Not at all. If you can't discuss these things on here, then where can you?

JBrd · 29/10/2013 13:29

Hello everyone, thought I'd finally de-lurk Halloween Grin

Congratulations on all the recent (and not so recent) bfp's , it's so lovely to see some good news.

I have been madly busy with work, it was all-consuming, and for weeks I had no time, energy or motivation to get into anything else. Which sounds horrendous (and it was), but in some way I have been glad to have a 'legitimate' reason not to think about mc, testing, ttc all the time. Sounds weird, but I think I really needed a bit of a break from it all. Plus, there wasn't really much I could do anyway - the appointment with the consultant isn't until mid-November, where all my test results will be discussed. I've decided not to ttc until then, I want to know if there is a specific problem first.
But now I am slowly starting to get used to the idea that I will have to face my demons again, in whatever shape they will come.
In spite of getting the tests done on the NHS, I have decided to have the AMH test done privately, for my own piece of mind. And since my hospital are no longer offering the Day 21 progesterone test, I'm throwing that in for good measure, too. (I really don't understand why they are not offering that anymore, I always thought at progesterone would be one of the first things to look at, since it's needed to sustain implantation/a pregnancy... Plus, it's a recent change, as a friend got the Day 21 test without any problems a few months ago Halloween Angry).
So I'm having both done on Monday now

Wondering now if I should get DH to have his swimmers tested...For completeness. All he had to do so far was give a tiny bit of blood. Not sure if it'll tell us much more, as he can clearly get me pg, I just don't get anywhere with it. And genetic issues would be picked up by the blood test, right?
However, we have now gotten to the point that we don't really talk about ttc and the mcs at all - I sometimes wonder if DH just doesn't want to for fear of upsetting me or if he has also conveniently let it slip into the background... Or he is just plain lazy and leaves all the ttc business to me (as he has done in the past - well, apart from providing his 'stuff' Halloween Wink).

I feel really tired and detached from it all - sometimes I wonder if I will try again, if we get told that they couldn't find anything wrong with the tests. The idea of going through all it again really doesn't appeal right now.

Has anyone else come close to throwing the towel? How did you manage to snap out of it again?!

TinyTear · 29/10/2013 14:05

I am giving myself 2 years to throw in the towel. I will give up on my 42nd birthday... By August 2015 i will either have another child/be pregnant, or will give up.

butterfly86 · 29/10/2013 14:24

Glad you're feeling better baking :)

Tiny not at all that is what this thread is about, good luck reading through it there's lots though it will give you something to do. It's hard to keep up when you have just joined the thread and some of us were posting more often on the last thread so can get lost off a bit. Will be thinking if you hope the surgery brings some closure x

Hi JB! I know what you mean about not having to think about things for a while it does you good, I think it's a good idea to cover all bases re testing then at least you know you've explored everything, I was also really shocked my cons didn't check my progesterone you would think it would be the first thing they would test for. I went to the gp and asked to be tested it wasn't very clear came back as though I hadn't ov'd but I knew I had as I'd been tracking that was a very messed up cycle and my af was late by the time I saw my cons again so she took bloods but never said what the results were, although she did say she would prescribe progesterone which she has so I do wonder if something showed up.
I have always wondered why they haven't checked dh's swimmers too but I think they just think he get's me pg so can't be a problem who knows!

I've often felt like throwing the towel in I don't know how long we could let it take over our lives, I keep thinking if it doesn't work out this time I don't know if I could do it again I find these early weeks so stressful-as I'm sure everyone else here does too. But then does the overwhelming desire for a child start to take over again, I don't know. If only it was straightforward eh...

squizita · 29/10/2013 15:20

Dildoos welcome! Not glad you're in this situation, but glad you've found the support here. :)

Purple Sorry work are being crap. Mine are the opposite - changed my days off from 'pregnancy related' to 'sick' because my partial mole wasn't normal pregnancy grrrr. I wish there was some kind of booklet to hand to employers and say "do this or else".

Jbird waves! Totally understand the 'don't even talk about it until after testing' ... just come out of it today. Back to POAS and BDing. The tests have stopped me giving up TBH as I thought "do what the doc tells me". As it goes, Mr Rai told me to try again... so will do. Although completely bricking it.

Tiny, Baking & Butterfly waves! :)

Clinic news... knew they'd found something because this time it was Mr Rai and time to see the research midwife. Mr Rai thinks I'm barking mad, but nevermind!! He's very good (just in case any of you get him) - very thorough. As (he) expected I have non-genetic Hugh's, so I have been told to take vitamins + folic (he gently teased my love of the expensive one "own brand will do" hehe), 150mg aspirin from BFP and then heparin injections.
DH was congratulated on his fecundity and genetic make-up. Made his day. Grin
So ... I'm at the front of the looong wait to get back on the roller coaster. Best get myself strapped in and buy some wee wee sticks! GULP. Shock

OP posts: