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Recurrent Miscarriage Testing, trials and tribulations...Part 7!

987 replies

squizita · 07/06/2013 19:04

Hi all, carrying on from part 6. All kinicker-checkers, blood-testers, clinic-attenders and finger-crossers welcome. Nothing but love and crossed fingers...

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butterfly86 · 25/10/2013 22:02

Great news bloomer that your tests were all normal :)

I've finally got my progesterone pessaries tonight I've been prescribed 200mg once a day does that seem enough? I've read about people having 400mg why can I never be satisfied no matter what anyone does I'm always saying what if...

Bakingtins · 25/10/2013 23:01

Tiny I am sorry your fears were confirmed Sad thinking of you
LB good progress, hope it goes equally well at St Mary's.
butterfly I'm on 400mg twice a day, and was the same last time from different consultant. I don't know if there's any consensus on what is "enough" since they all disagree whether it helps anyway.

squizita · 26/10/2013 20:50

Waves to all! Anniversary weekend away, will catch up soon!

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Bakingtins · 26/10/2013 22:26

Lucky you! Where have you gone? Have a lovely w/end!

PicardyThird · 27/10/2013 08:04

So sorry Tiny Sad

Fabulous news, baking and butterfly! Congratulations on your anniversary squiz, enjoy yourself!

Am back home now. Upshot of RMC appt was hang in there, keep trying, heparin from BFP (taking aspirin as well is apparently like 'getting into the shower but also tipping cups of water over yourself' Hmm). They won't test for NK cells, which I think I am OK with atm. Dr's theory was that there might be damage to some of my eggs from very frequent X-ray exposure practically from birth due to complex hip dysplasia. I know they shield the ovaries but I had so many X-rays as a presumably wriggly baby/toddler that it makes a degree of sense. And a degree of sense is what I think I needed after our surprising karyotype results.

Not thinking much about the whole issue atm tbh, and happy that way. Need a break from it all.

Purplefrogshoe · 27/10/2013 09:23

Picardy I also have had pelvic x rays at least every six months since I was 1 until 10 and 1 every year since as I had septic arthritis as a baby and nearly died several time so I suspect that care wasn't taken to shield my ovaries as the priority was keeping me alive. I mentioned this after my 2nd mc to consultant and he dismissed Shock i am trying not to think about the whole thing too at the moment it's actually quite a relief I can't TTC for 6 months as I have felt so awful for months

Daisybell1 · 27/10/2013 12:12

I have popped on and off this thread previously, but just wanted to update that I had my first appointment at St Mary's on Wednesday. Gallons of blood taken, and future appointments set.

If anyone is starting on this process, then am happy to chat more.

LateBloomer414 · 27/10/2013 12:17

Hi Daisy, I've got an appt at St Mary's this week. Trying to come up with a list of questions but drawing a blank since I've has RMC appts elsewhere. Happy Sunday all!

Daisybell1 · 27/10/2013 12:35

I had a consultant's appointment elsewhere first too. I actually ended up not really asking lots of questions as it was simply an appointment going through my questionnaire and having masses of blood taken.

I'm now not sure if I should have been asking more Confused

Daisybell1 · 27/10/2013 12:35

Good luck for this week!

squizita · 27/10/2013 14:31

Tiny sorry to hear it was confirmed. :(

Baking scan must have been such a relief, phew. Sending positive vibes!!

LB sounds positive - best of luck!

Picardy glad to hear you're finally getting some answers that make sense. Sounds like some eggs not all so keeping everything crossed for you. As for whether to take aspirin, personally if it worked I'd "get in the shower" with a teacup, and water pistol and anything else!!! Better a daft water shower than the infamous SoS.

Late and Daisy I'm at St Mary's this Tuesday for my follow-up after all my gallons of blood over the last 2 months! Will update you on what that's like. They seem to get a background on you first THEN look at blood/scans then I guess the whole questioning thing happens. Mind you, they kind of intimated to me I was either a "falls pregnant too easily with eggs a normal body would ignore" type - in which case it's "keep trying" cure :/ , or a sticky-blood-type-thing, based on my history and family history. Ironically the partial molar scare makes it LESS likely to be a karotyping problem (because I'd have to be ludicrously unlucky to have a good egg split that way AND other chromosome issues. Ha, knowing me that's what it'll be).

AF faded off just in time for anniversary thankfully. I did have a couple of days of 'normal' flow, so I guess it's all the right thickness down there now, once again. We went to a lovely luxury hotel with spa and dinner. And Wine . A few sad moments - kind of remembering last year, just after my 1st loss having been told how rare RMC is so I'd expected to be at least preggers by now :( but lovely overall (apart from someone who posted about 'married 3 years babies soon' on my FB. Erm thanks, yeah, that's not at all intrusive or awkward ... they even know why there is no baby and still posted it, trying to be nice but...).

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LateBloomer414 · 27/10/2013 20:36

Squiz I am dumbfounded for you. The insensitivity is actually laughable, I just don't get how someone could be that stupid. As Jay-z would say, bush that dirt off your shoulder.

Anyone else really hoping for a weather related day off tomorrow?

Bakingtins · 28/10/2013 07:27

Glad you had a nice weekend, Squiz. I wouldn't have been able to resist rising to a comment like that from someone who knows what you've been through. You're a saint.
Daisy good that you have got the ball rolling.
LB and squiz good luck for appointments this week.

I have just given DH a fright by keeling over in the bathroom. I think I fainted but can't remember much about it Blush so am being brought breakfast in bed. I was exhausted yesterday, really bone crushingly tired. I'm hoping these are pregnancy going well symptoms and not a sign something is wrong.

butterfly86 · 28/10/2013 10:36

Hope you are ok Baking take it easy your symptoms sound promising fingers crossed it continues going well for you.

Squiz glad you enjoyed your weekend :) what a crappy thing for your friend to write though!

Daisy it's good you are getting somewhere with the testing etc.

Good luck LB & Squiz :)

I keep having a bit of a wobble I know I'm only 5+2 but I'm worrying about symptoms I've got really sore boobs. but had a panic last night they weren't as sore then an hour later they were sore again! I'm worrying that it's the cyclogest causing my symptoms though I'm really tired but not much in the way of nausea I keep having the odd wave but not continuous. Do you think it's just too early yet? Every twinge I get I'm panicking, every day feels like a lifetime, how am I going to get through it.

TinyTear · 28/10/2013 11:09

exhaustion was a good symptom when I had my daughter... I was amazed how quickly i lost my fitness

Bakingtins · 28/10/2013 11:13

Hang in there butterfly. It seems impossible that time can move so slowly as soon as you get a BFP.

butterfly86 · 28/10/2013 11:45

Thanks Baking normally time flies but not now I had a spare test in the drawer I did it and the test line came up before the control line really strong hoping that's a good sign. Are you feeling a bit better after your faint?

Bakingtins · 28/10/2013 11:56

That sounds positive. Are you having an early scan? I know it just seems an eternity to wait. I waited 10 days from BFP to first scan then 16 days to 8 week one and it felt like such a long time, which I know is ridiculous. I could have kissed the consultant when he said he wanted to rescan me weekly, even though it's a massive hassle getting to the appointments.

I feel a bit better, am having a duvet day! I'm thinking Dh is going to have to bring me sugary tea and breakfast in bed every day before I attempt to get up Grin

butterfly86 · 28/10/2013 12:13

Glad you are feeling a bit better enjoy your duvet day yes I think you definately need breakfast in bed every day milk it :)

I'm having a scan at 7 weeks so a while to wait yet my consultant has said in the past she will scan me weekly so hopefully she will I don't know if it will make the weeks feel longer though! I don't mind really I would still rather have the reassurance, it's so tough when you are in our shoes I try to be positive and not stress but when you've been through so much it's hard to imagine it's ever going to work out. I have an appointment with my accupuncturist tomorrow she wants to see me weekly now hoping that will help too.

Bakingtins · 28/10/2013 13:34

7 weeks is a good point to have a first scan. Hopefully you will be able to see a HB by then. I had a scan at 5+4 to rule out ectopic before starting the clexane, but it was too early for a HB so was not reassured.
DH dropped the boys off at nursery and holiday club (I was supposed to be working today) but has come home so he can respond to any collapsing noises. I think I gave him a fright, he had to pick the bathroom lock to get to me and said I was out cold for a few minutes, he was at the point of calling an ambulance when I came round. Blush

butterfly86 · 28/10/2013 13:41

Your poor dh must have got a real shock bless him, are you going to get checked out or let anybody know about it with you being out for a little while? Maybe your blood. pressure is a little low.

TinyTear · 28/10/2013 13:44

eeek, I wouldn't lock the bathroom door from now on... just to be on the safe side

Bakingtins · 28/10/2013 13:46

It happened a few times when I was pregnant with Ds1 and I do have low blood pressure at the best of times. I didn't hit my head and I feel ok now. I did pluck up courage to speak to the MW and she said see GP if it happens again but not uncommon. They have made me a booking appt if I get to 11 weeks.... Fingers crossed.

Bakingtins · 28/10/2013 13:48

luckily we are practised at picking the lock as Ds1 went through a stage of locking himself in.

butterfly86 · 28/10/2013 14:16

Fingers crossed :) when is your next scan is it this week?