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Miscarriage/pregnancy loss

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Recurrent Miscarriage Testing, trials and tribulations...Part 7!

987 replies

squizita · 07/06/2013 19:04

Hi all, carrying on from part 6. All kinicker-checkers, blood-testers, clinic-attenders and finger-crossers welcome. Nothing but love and crossed fingers...

OP posts:
teaandchocolate · 19/08/2013 23:05

So sorry nearly forgot Butterfly congratulations! Enjoy the honeymoon. So lovely to hear from you!

donttrythisathome · 20/08/2013 00:27

Hi everyone.

Congratulations to School.

All is fine here - went to Mr Shehata's clinic last Fri so waiting results of tests (the usual ones repeated plus killer cells). TTC at the mo. Have reached the stage in the journey now where I assume I will mc even if get a HPT. Wasn't at that stage before, I had lots of hope.

"Welcome" to all the newcomers. Sorry to see you here, but it is a great place for support

Teas thanks for the great advice you gave me ages ago about managing expectations. It really helped, and I now have totally adjusted mine. Not long now until the 20 week scan. Completely natural to stress. Will keep TTC unaided until Dec 13 then look at other options (assisted etc) if not pregnant), then keep TTC until Dec 14 and if still havings mcs will consider adoption. Also going to apply for a career break early next year if not pregnant (so no maternity leave) as I hate it.

latebloomer did you take the pregnancy test? I take mine days before AF due, no patience!

*Baking" - how about joining me in The Shred to take your mind off things?! Congrats on the C25K by the way.

I am finding it hard to keep up with everyone's situation here, and it puts me off posting sometimes as I hate to leave anyone out or misread their situation. Would it be too grim to have a separate statistics thread? Like a tragic antenatal stats thread?

donttrythisathome · 20/08/2013 00:28

PS have been on hols in Wales (fab) and then working like a hounddawg hence the recent silence.

Justonemoretime · 20/08/2013 08:50

Another micro AF (2 days). This has got to be part of the problem!
Baking, thanks, I called the clinic but they had not heard back from the lab. The consultant's secretary was going to follow it up.

Good luck and best wishes to everyone! xx

Polka2 · 20/08/2013 10:39

Morning!

Gah!! I posted last Wednesday after my 2nd appointment at St Mary's and its obviously slipped into cyber space!

Late you and your DH seem to be doing so well, I hope the chemo etc isn't too draining for you both - fingers crossed for a positive end to your 2WW.

JBrd I hope the medical management eases the stress and anxiety of the whole thing for you, sometimes our bodys' do let us down but you can imagine the barrage of hormonal crash its going through.

Hello to everyone else that I haven't name checked - hope you're doing ok?

Long story short - My appt with Raj Rai at St Mary's last week well (now I've had time to reflect upon it all as its so overwhelming at the time).....most of my tests came back all fine, including my egg reserves which are good for my grand old age of 37! However the test of how I breakdown blood clots, which is the same process as implantation, didn't come back well and he reckons that with injecting Heparin from BFP until 24 weeks I have a good chance of a successful pg. So now back on the shagathon train and really hoping we catch sooner rather than later!

Purplefrogshoe · 20/08/2013 13:26

Hi all, hope you are all ok, im nearly 7 weeks after erpc and no AF, starting to panic a bit that i might be pregnant but more likely im not ovulating yet, gp dragging his heels on any rmc tests, hasnt even taken bloods or anything yet.

Justonemoretime · 20/08/2013 13:53

Purple, have you considered something like reflexology or acupuncture, or raspberry leaf tea? Might help bring on the AF. Hope you reach normality soon. In the mean time, is there another GP in your practice who might get the ball rolling for you? GPs can order some of the blood work for local RMC services and can write to refer you to the likes of St Mary's etc. I'd get hold of their secretary's email and put your request in writing and if that fails, find a better GP. Good Luck!

Polka, in spite of what they say, that it's better to have no problem, I bet you are relieved in a way to have some sort of an explanation. Hopefully the herapin will help you. Good Luck!

JBrd, good luck, hope it's not too awful - get as many painkillers on board as you can!

Baking, I hope you're OK and not feeling too down.

LB fingers crossed for a BFP, and hope the chemo is bearable for your DH.

Waves to everyone else! xx

Purplefrogshoe · 20/08/2013 14:42

Thanks justonemoretime, i have tried raspberry leaf tea and reflexology and acupuncture are a great suggestion, im in scotland so i dont know how it works here, i have made an appointment with a different gp im the same practice so hopefully she will be helpful

teaandchocolate · 20/08/2013 14:44

Purple for me it was normal not to have AF for at least 7 weeks after an erpc. They really messed my cycle up & 2 consultants I've seen said its nothing to worry about. Definitely try acupuncture. Also I was prescribed progesterone, taken orally for a week or so then stopped, which induced a bleed and worked for me. A bit like taking the pill then stopping to bleed. Ironically they told me stress can delay AF....which made me stress more!!

Purplefrogshoe · 20/08/2013 14:54

Thanks tea, my 2 previous mc i bled for 10 weeks and got prescribed something to stop that so this is very different for me.i just need to stop stressing :)

teaandchocolate · 20/08/2013 15:46

It's so hard as you just want to get back to 'normal' but try to have faith in your body. There's no reason why AF won't return when your body's healed and ready for it. The lining needs to rebuild and repair itself and the extent of that depends on loads of factors so everyone's different. I totally sympathise though - I went to my accupuncturist and just cried when I'd not had AF for over 10 weeks! the build up of hormones also doesnt help when attempting to retain your sanity...

Justonemoretime · 21/08/2013 08:30

Morning, I just thought that I would let you know about this fundraising event that I have signed up for to raise money for Tommy's, the baby charity. They are involved in funding for research in various RMC trials.

I have added the link to my justgiving page in case you would like to sponsor me (no obligation, naturally; thank you in advance if you do).

www.justgiving.com/Kathryn-Taylor7

Please feel free to pass the details on to anyone else you think might wish to donate.

That's the last I'll say about it as I know its not exactly what this page is for.

Hope everyone is doing OK this morning?
xx

LateBloomer414 · 21/08/2013 13:27

BFN this morning. Was holding out hope for a false reading but AF just arrived. I am normally a very positive person and try to see the best of things or at least rationalize that things usually work out they way they do for a reason. I say this to preface a little outburst here: WTF!?!??! Can I not catch a break? I know 99% of the planet is probably worse off then I am in one way or another but COME ON.

Ahem. Thank you for entertaining my now concluded emotional tirade.

I'm getting sushi for lunch and drinking a bottle of wine for dinner.

Hope everyone's having a better day than this xoxo.

Justonemoretime · 21/08/2013 14:56

Just got the results from the 'products' testing: baby had 45x and so could not have survived, according to the consultant. It's weird knowing, but I suppose any new information is good to have. So, in this case I suppose it really was a case of bad luck. Still no ideas whether this was also the case with 1 and 2, but these are conversations to have with St Mary's.

Sorry you're having a bad day LB, feel free to rant away. Enjoy your wine and sushi!

xxx to all.

nearlyreadytopop · 21/08/2013 15:54

hi everyone. I haven't been about much, I didn't feel like I could handle itSad .
We have the appointment for the rmc blood tests this week. I'm not sure how I feel about it.

I am however getting that absolutely desperate feeling of 'I must get preggers asap'.

I don't think I want to wait but another mc would push me over the edge mentally Sad

Polka2 · 21/08/2013 16:35

late I'm so sorry you got the BFN, its a hideous rollercoaster of hoping, fingers crossing then dissappointement - hugs.

Just great to have the results to arm you for St Marys somehow does it make it easier knowing that things weren't right anyhow for the baby?

Nearly I know how you feel of desperately wanting to get pg really quickly but also really scared of get pg and then the fear starts! Confused

Justonemoretime · 21/08/2013 16:58

Polka, yes, it's good to have some answers, hopefully this will help St Mary's to give us some solutions!
Nearly Sorry you're feeling down. Hope it passes and you can move forward. Are you seeing any specialists at the moment? Hope you're getting the support and advice you need.

Bakingtins · 21/08/2013 17:12

Polka glad you got some answers and a plan.

LB I'm sorry AF got you. I think you deserve for things to go your way for once.

Just it feels funny to say a chromosome problem is good news, but hopefully it is unlikely to keep happening and improves your chances next time. I'm happy to sponsor you to raise money for Tommy's, have been considering putting the C25K to good use and training for a sponsored run. I'm sure the fitness you have built up is in your favour in the MC stakes too.

Justonemoretime · 21/08/2013 19:26

Baking, thank you so much, I really appreciate your donation. Good luck with your training - I totally agree that it serves a dual purpose of raising money and getting into the best shape and health possible ready for the next round, what ever it may bring! I won't be very sad if I end up losing a few pounds!

squizita · 21/08/2013 20:55

Just waving! Sorry - just got in after a few days in the country, with a mate's houseful of babbies and my sis who has her own health situations - knackered. Don't want to rush any answers so will swing by tomorrow. Zzzz ... Broody/impatient/sad/zzzz...! ;)

OP posts:
LateBloomer414 · 21/08/2013 22:17

Waving back at you Squiz!

JBrd · 21/08/2013 22:25

Late Rant away, sometimes you just have to vent, bottling up all these emotions isn't good in the long rung. Hope you enjoyed your wine and sushi.

Just What's the next step, what tests will they do at St Mary's, do you know? I agree that trying to get as fit as possible is the best approach to take, makes you feel a little bit more in control. I've decided to start running again, once this is all over, they have announced a beginners' running course here in my village for September, which would be ideal.

Nearly Yes, I think this is the toughest step in the process - wanting to be pregnant, while being scared sh**less by the thought of it. I'm nowhere near thinking of ttc again, but it was like that after both my other pregnancies. Such a mood-killer, too, makes dtd into a proper chore Confused

I had the first round of meds yesterday, and have been feeling quite rough since then. A lot of pain/cramping, which resulted in very little sleep last night. Plus, the bleeding has increased, and I've passed quite a few clots - sadly, no sign of the sac, which is what I had been hoping for. Sometimes, the tables alone is enough to get things going, but not for me.
So I'll be going into hospital tomorrow with DH to get the pessary and then, hopefully, get this over and done with. I will definitely get the strong painkillers as soon as they will let me have them. I'm worried about having to go home without having passed the sac (which can happen), really hoping it won't come to that.

Oh, and a word of advice: Don't watch the BBC equivalent of One Born Every Minute (think it's called The Midwives or something). I should've known better. Emotional carnage.

Justonemoretime · 22/08/2013 08:40

Thanks Don't :)

LateBloomer414 · 22/08/2013 09:08

Will be thinking of you JBrd. Hope it goes smoothly and quickly and the drs are forthcoming with painkillers. Please instruct your DP to load the freezer with ice cream and the coffee table with good magazines.

I am a bit hungover today thanks to nearly an entire bottle of pricey Albariño. It was so good and entirely worth any headache I might suffer today. GrinWine

nearlyreadytopop · 22/08/2013 09:13

thanks everyoneSmile

j the tablets dont seem to work for me either and the waiting around is awful. I hppe things speed up for you.

just I have started to see a cbt therapist. This year has been very tough so I'm trying to be sensible and wait until the new year before ttc again. That seems forever away but if I factor in 8 weeks for test results and then who knows how long to see a specialist then its not too bad.Hmm