Recurrent Miscarriage Testing, trials and tribulations...Part 7!

[squizita]

Hi all, carrying on from part 6. All kinicker-checkers, blood-testers, clinic-attenders and finger-crossers welcome. Nothing but love and crossed fingers...

Squiz good luck today - hope you find it all ok and you have a positive meeting!

School whoop whoop yippeee yey yey! Welcome MiniSchool how lovely that your body did its best for you, hope you're not feeling too battered and bruised and I hope you're soaring with adoration for MiniSchool!

Baking so glad that you had a good chat with your boss, nothing like airing your feelings and putting all your cards on the table to give you some idea of whats going on and some stability.

Just my DH didn't have any bloods taken on our appointment but we had already had quite extensive testing after our 2nd mc as we were meant to be doing IVF and I took the results of these original blood tests with us. It may be that your DH can have those tests done locally, it seems from my 1st appt at St Mary's that it was critical for me to be there as they took bloods that had to be analysed/processed at their labs within 30 mins of it being taken. Hope that helps

Can I join?
I'm having my 3rd miscarriage, have to go to gp to have it confirmed and have a chat. I'm dreading it. I'm not coping. I'm 35, took me a year to conceive this time and now i just feel like me and DP will never be parents. I don't know what tests and stuff to ask for, and feel that i'll be fobbed off with "well you're not pg now, just one of those things, just keep trying".

qazxc, welcome, and I am so sorry that you have found yourself having to join us. I hope that the process is as straightforward as it can be, under the circumstances, and your recovery is quick. This is a really supportive forum. Between us, we have had just about every test going, so we will answer your questions and support you as best we can. Big hugs.

Squiz good luck today! Hope it goes well.

I have just come back from third session of acupuncture. Hope it's doing its thing! :)

Squiz Good luck for today, hope you'll get some answers soon

qazxc Welcome to the thread, and sorry that you find yourself here. I'm also on my 3rd mc now, and like you, really worried that time is against me - I'm 41... If it's any consolation, I had DS at 39, so I think your odds are not bad regarding the age.

I had my follow-up scan today, nothing much has happened. I'm now bleeding, not a lot yet, but it's bright red. The EPU discussed all my options with me in great detail, and I've decided that I will wait and see what happens for another week, before deciding if I want/need any intervention. They most likely won't do an ERPC because the sac is still very small, so it'll be either medical or natural management. I really don't like the idea of the medical route, so I'm really hoping that nature will take its course soon.

But they are going to start investigations now, which is a little consolation. As soon as the actual mc has taken place, they will get the ball rolling with tests etc. Plus, they will get any pregnancy tissue tested that I bring in, should it be a natural mc. Think I need to go and buy some long-sleeved plastic gloves and have them by the toilet

Not sure what to wish for - that they find something specific (which then can or can't be treated) or not...

JBrd Sorry to hear things have not resolved more quickly, but hopefully you feel like you know where you stand a little better. I know what you mean about the long gloves. I had a tupperware in the bathroom and in my handbag for a week with the last one leading up to my ERPC. I hope, in the end, it isn't too traumatic.

Jbrd sorry to have to tell you this, but a sieve is what you need

Qazxc sorry you find yourself here. The NICE guidelines are you should be referred after 3 MC in a row, so just ask the GP to refer you to the local RMC clinic. If you are within travelling distance then St Mary's in London or the womens hospital in Liverpool are centres of excellence, but you'd get all the basic tests done at a local hospital as a starting point.

School wonderful news! Congratulations! So glad fgor you.

qazxc welcome, sorry you find yourself here. After 3 you should be tested; also, am I right in thinking the GP is confirming mc? Even when they are straightforward, s/he should refer you for scans etc', to check all is clear. A GP can't confirm a MC. I am also 35 with no DC. Just got back from 1st tests at st Mary's, who seem pretty confident that my prognosis will be good in terms of being able to have at least 1 DC, whatever the diagnosis.

Jbird sorry to hear its still dragging on. How awful. As the others say a sieve and a pot (my epu gave me a jar thing) were what I was advised to carry when I was waiting, in the end I was given an ERPC anyway. Hope it resolves as quickly and painlessly as possible.

just one how was the acupuncture? I am still building up the courage. Silly really as I've had many needles stuck in me the last year!

Baking waves!

...back from St Mary's. Saw Mr Aziz. They seemed quite upbeat as they felt whatever the diagnosis I had good fertility and time for them to treat or try again if 'undiagnosed' or 50/50. Which was comforting. I was asked a lot about my mystery aches, pains, rashes - I guess as they could suggest (though in 30% only) PAPS or similar. They also found a fibroid, was very scared till they explained it was on the OUTSIDE of my lady plumbing, and just 1, so highly unlikely to cause problems and would not require treatment but causes mild discomfort. Phew. Was told to cut back coffee when TTC, hardcore
Cosdtas addict lol! Then it was LOTS of tubes of blood, back in Sept for more bloods, diagnosis in October, please use protection until then. Much less nerve wracking than I expected.

School amazing news!!! Congratulations! That actually brought a tear to my eye. Feel like we've been through so much together over the past couple of years and so pleased that you've finally got here! Give baby School a big squeeze from his Auntie Tea !!

Hi back from GP. he did offer to send me in for a scan at EPU but having been bleeding for 3 days and me only having been 6 weeks along i didn't see the point. He is refering me to a gynae to start testing. and has said for me to ring if i get a bfp asap so that he can get me into the EPU to get checked out (not that i think it's likely we haven't found conceiving easy).
school congratulations!

All sounds positive squiz glad it went well.

qazxc good that you got a referral. Any idea how long the wait is for an appointment? Not a bad thing if it's a little while, iirc you have to be at least 6 wks post MC for some of the tests.

polka good luck today.

baking no he didn't just said he'd send the stuff off and i should get a letter. so it probably will be a while.
JBrd hope you're getting on ok.

Hi everyone!
Amazing news school :) you finally got there so pleased. for you! Enjoy your beautiful (big) baby boy xxx

Just a quickie as I'm on holiday....well honeymoon actually! :) hope everyone is ok sorry I don't have time to name everyone. Well now the wedding is over we are officially ttc again! I'm so scared I don't want anything to spoil this little bubble of happiness we are in right now, but in order to get what we want (hopefully) we will have to be brave and go for it! So I'm officially back sorry I haven't been on much these last few months been so busy planning the wedding and because we were taking a break I tried to give myself a breather from reading the mc threads too much, I'm in a much better place now and ready to give it another go fingers crossed for us all x

A sieve?!? That is genius, baking. It sounds gross, but this has actually cheered me up Now all I need to figure out is how to carry a sieve around with me at work, and especially, how to take it to the loo with me without anyone noticing .
Currently, I take is a sealable plastic bag, but every time I go to the loo, I hope and pray that I won't need it

I'm still working, can't quite believe it. Would not been able to do this with my previous mcs. I'm starting to be in quite a lot of pain now, and the bleeding is getting steadily stronger. Today is the first day that I had to resort to painkillers, and I'm considering going home early...
Also getting a bit stroppy with additional work requests, which has been noted by my boss...not good. Wondering if I'm getting to the point that I really should take some time out.

hi all - School, very happy to hear your wonderful news. This is a quick one so won't name everyone but wanted to say hello, been thinking of everyone and sending good vibes. DH started radiation and chemo this week - all's still going well. We DTD over the weekend in a last ditch TTC effort while I was ovulating and while he was feeling pretty good. Now just waiting. tick tock.

Congratulations school :) Enjoy minischool.

Congratulations too, butterfly, on your marriage and welcome back - hold on to the feeling of happiness despite the ttc treadmill

JBrd, please take care of yourself - I think you should definitely take some time out. You need to be looking after yourself right now.

squiz, that sounds really positive. Everything crossed for the further course of things.

Latebloomer, everything crossed for your dh too - and for the result of your weekend ;)

jbrd, picardy is right - take some time off! I say that as someone who has always taken the absolute minimum, but you don't want to be at work if the MC is kicking off.
Butterfly congratulations and fingers crossed for a honeymoon baby.
LB fingers crossed for you too, you deserve some good news. Sounds like you and Mr LB are dealing with all of this brilliantly.

Jbrd hope you are ok

I'm v apprehensive about results of our Coventry tests, with probably another couple of weeks to wait. It feels like another crunch point - what Dr Q has to say makes the difference between us giving up for good or gritting our courage to try again. I'm finding it difficult to be positive about anything at the moment. Should graduate from C25K next week, but just feels like that is one challenge over and then nothing to aim for.

Baking isn't the waiting just tedious? I feel for you. Hopefully the results will be useful ones that give you a direction to go in and the wait won't feel like it drags on too much over the next couple of weeks. Staying positive is easier said than done. Thinking of you.

How's everyone else doing?

I'm getting ready for my 1 mile swim which is on 31st August in London - I'm raising money for Tommy's and am trying to swim every day. It does help to clear my mind.

I'm OK, thanks! I took all your advice to heart and left work early on Friday, and I'm seriously considering not going in tomorrow. Going from feeling OK to really rough, Friday and yesterday I was bleeding heavily and had to take painkillers to stay on top of the pain. Today, the bleeding is a lot less, and not a lot of pain...
But I still haven't passed the sac yet, getting a bit apprehensive about having to go down the medical route, as I'm not sure how much longer the EPU will let me go on without any intervention. Hoping that it'll go every time I go to the loo... Really don't want to be at work when it happens!

Morning! Question for anyone who had 'products' sent away to be tested, how long did it take for the results to come back? ERPC was on 21st June and no news yet... :o/

Of course I did not mean to add a big grin there... not sure how that happened...!

Hello everyone, hope you are all OK. Just spoke to the EPU again, and I've decided to opt for the medical management now. I had really hoped that it would all happen naturally, but nothing so far, not even a clot I am so tired and fed up with waiting, I want it to be over with and move on. It's my least preferred option, but the surgery would be tricky due to the size of the sac and timing (Bank holiday coming up).
So I'm having the first rounds of meds tomorrow, then in for the day on Thursday for the 2nd round of meds, and then hopefully, that's it.
I feel strangely relieved that at least I know now what will happen when...

Justone mine took a month. I'd chase it up.
Jbrd hope the medical management works for you. Ask them to prescribe some decent painkillers. I struggled through it with paracetamol etc and then was told I could have had some stronger ones prescribed

Justone, in in the same boat. I haven't chased them up and I need to.

Jbird, really glad you went home. I tried to work through my miscarriage and it was not a good idea. Get some strong painkillers as suggested.

Baking, I'm sorry you are feeling down about it all. The waiting is so hard because it makes you feel helpless.

I'm in a waiting game of my own. AF dues Wed and am debating about POAS tomorrow morning. I don't really think I'm going to get a BFP so I just want to know so I can have a glass (ok, bottle) of wine.

DH is still doing pretty well. Chemo and radiation are slowly sucking the life out of him (only metaphorically, thank god) but we know how lucky we are every time we walk into that hospital and see all the other cancer patients.

Hello everyone

Just popping in to say hi and that I'm still thinking about you all.

Baking sorry you're having a tough time. It is so hard being in limbo and not having any idea what the future holds or what the next step is. I don't have wise words but when I felt rubbish I tried to be 'mindful' and appreciate any good things that had happened that day rather than worrying too much about the future. Not that easy though.

Justone I think my results took about 8 weeks to come back.

Jbrd hope the medical management goes well and you have lots of support and distractions.

Latebloomer good luck with the poas. Keeping fingers crossed for bfp. Hope you're DH is doing ok.

I'm now 17 weeks & am fine but still worrying! Felt poorly yesterday and was convinced yet again that it had all gone wrong & googling 2nd trimester miscarriage. Really hoping that if the 20 week scan is ok I stop stressing so much!!

Hello to everyone else!! Sorry if I've forgotten anyone.