Recurrent Miscarriage Testing, trials and tribulations...Part 7!

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Hi all, carrying on from part 6. All kinicker-checkers, blood-testers, clinic-attenders and finger-crossers welcome. Nothing but love and crossed fingers...

Thanks all. In spite of all the horribleness of the situation, I have something to be thankful for - turns out that the 1st tablet of the medical management process was enough for me. After 2 rather uncomfortable days and even more nights, I passed the sac this morning. Fished it out of the toilet and took it to the EPU to have a look before they got me started on the 2nd round today. They confirmed what I had hoped it was and sent me straight back home again.
I am so relieved that I didn't have to stay and go through that second part - I was really worried that it would be even more painful, considering how I reacted to the tablet! The last few nights were really hard, the painkillers only helped a little. Feeling a lot better now, no pain anymore (so far). Still bleeding, but hoping that it'll go down soon.
Now the waiting begins for the test results of the tissue and then the for the start of the rest of the testing.

JBrd glad things seem to be progressing, hopefully the worst is over.

Nearly hope the support you're getting is helpful. It's tough when you can't see things getting better, I really hope that you find a way to see the light at the end of the tunnel. I call those dark moments 'stop the clocks' moments (like in the poem), when you can't see a way out of the darkness. But it does come.

LB how's the hangover ;)

I've been reading Prof Regan's book today, and our latest genetic news seems to be a good thing, as far as I can tell. I just want to get that first appointment done, now, and get on with it.

Jbrd glad that bit is over for you and you can start to move forward and hopefully get some answers. Take it easy for the next few days - that's an order!

nearly hope your CBT is helpful. I think an enforced TTC break is a good thing to give you chance to re-evaluate everything.

Morning ladies - hope you're all ok and have big plans for the long w-end!

selfish post alert

Feeling ridiculously sorry for myself over the last few days, no particular reason other than the norm but I don't seem to be able to pick myself up as usual. I'm off on hols tomorrow with my family (without DH as he has to work) and even that isn't inspiring me - GAH, I hate feeling low

Hi everyone sorry people seem to be having a rough time this week, I'm freaking out, just POAS and got BFP, 7 weeks and 1 day past ERPC, does this mean I have retained tissue or a new pregnancy, did test as I was concerned about lack of AF, haven't had any of my RMC tests yet :(

Wow purple tentative wahoooooooooo for you.

Did you test following your mc to go from bfp to bfn????

No I didn't all my pregnancy symptoms went after 2 days and I just couldn't face it so now I have no idea, have sore boobs again though but that doesn't really mean anything, feel a bit gutted that I'm been so careless

Oh Purple - hugs - I'm not sure what else to suggest other than definately test every day to see if the line gets stronger but I'd also let your RMC clinic know to see what advices they can give (blood tests to see if new PG or retained products) and scans. Very good luck.

Thanks polka I will phone epu Monday for some advice

The darndest thing happened to me today. Almost had to deliver sister's baby which came early and quickly. Paramedics arrived just in time. All ok. Bit shell shocked. Been on maternity ward all day. Odd day. Love to all. Xx

((HUGS)) for justone and polka sounds like you have both had quite a day! Hope your sis and baby are doing well, justone - I guess it got the awkward "first hold of the baby" out of the way.
Polka I think you need to contact EPU, probably get 48hr bloods to establish whether it's a new pregnancy (though it sounds like it) and then see what they can offer you in terms of early scans or the non-specific supportive therapies like aspirin, progesterone, high dose folic acid. Everything crossed for you.

Hi all,

We've just been referred to the RM unit but just wanted to know what to expect? We've both got blood tests booked and DH has to do the deed for a SA,but other than that, i'm not sure what happens next...?

Hello everyone. Back after nearly a week away with the boys where we used to live (lovely big city). Have seen some old friends and done some fun things, but we have also been very worried about FIL, who is really quite ill atm, and I evidently brought back a tick from a trip to the woods/parks - (eurgh/TMI alert) had to have it removed from rather close to my fanjo so now worrying my head off about Lyme's. Plus I found a lump under my armpit - dr for that on Monday - trying not to worry but imagination running riot. Nothing to report here on the ttc or rmc front - prob a good thing, that, after everything else that's been going on. Dc1 back to school Mon - have enjoyed the relaxedness of the holidays for him and all of us but it will prob be good to get back into some routine.

Handholding, purple - all those mixed emotions. Make sure you are looked after and do what you need to. Thinking of you.

Sorry you're so down, polka - hugs for you and just - sounds like you've been having quite a time of it. My last mc had a monosomy too (which is what you mean I think?) - are you going to have karyotyping done? Suppose St M's will be able to tell you that.
Jbrd, take good care of yourself - am glad you're through the worst bit.
How are things at work, Baking?

Welcome Sal - as I'm not in the UK, others will probably be able to give you more info on what happens at the RM clinic. Can I ask you a bit about your story - what brought you here? On here we've had varying numbers of mc - I've had five, plus two children - there's a big diversity of situations and circumstances.

Hey all!

Baking think you've got me muddled with Purple!!

Picardy I'm intrigued by what you've mentioned katotyping and mono something?! St Mary's didn't mention anything other than heparin?

Thanks everyone, woke up with slight bright red bleeding still showing strong positive so if its new pregnancy its looks like mc no 4, either way wont be seen at epu till monday. hope u are all ok xx

Monosomy means one chromosome is missing somewhere (so 45 chromosomes rather than 46 - that was how I interpreted your post). The baby I lost in May had monosomy 21, i.e. only one 21st chromosome instead of a pair. This is quite rare and indicates, along with our history of miscarriages plus two healthy children, that one of us may have a genetic problem called a translocation. So now a geneticist is analysing my and dh's chromosomes (= karyotyping) to find out whether that is the case. As I understand it, if it is a translocation it means that we have a relatively very high chance of miscarriages but also a chance of a healthy baby. I think there is an option of IVF with PGD in this sort of case in the UK, but that's illegal where I am (and even if it weren't I'm not sure the IVF route is one we'd go) so if a translocation is diagnosed it will mean either we give up or we take our chances.

I also have Factor V and MTFHR mutations - I'm on high-dose folic acid for the second, which effectively annuls the extra risk (or is supposed to), and will be taking aspirin and heparin for the first.

If/when I get pg again, obviously. Not just at some random point in the future Though the Factor V result came back with a recommendation to take heparin during and after ops, long-haul travel etc.

My last one was Monosomy 45. Got the letter to make it all official yesterday. Myself and DH have both had karyotyping done and were clear so it must have been a random event. This condition is also called Turner Syndrome.

Purple good luck at the epu tomorrow - you never know, it could be OK even with spotting. Hope they don't keep you waiting too long and you get some answers.

Just one and Polka - just responding to your Friday posts, sending hugs.

Baking are you feeling more upbeat lately?

JBrd how are you doing?

Purple how did it go yesterday?

and a big hello to everyone i've no doubt missed. Update on the Bloomer family - radiation and chemo side effects are starting to kick in for DH. He's such a trooper - still going into the office every day even though I can see how exhausted he is from it all. I think he'll probably stay home after this week. His parents are here to help for another few weeks (they live abroad) so I'll be able to continue to go into the office for that time as well. I am so sad to watch him feel so awful but despite all of this we still know how incredibly lucky we are with his situation.

I had an transvaginal ultrasound done today as part of the RM investigation. Nothing new was found - all my lady bits checked out. I have a few fibroids which are still there but again have been reassured they aren't causing any problems. So, tick that box. I have an appointment with my GP this week to start the process for fertility treatment (IUI). I'm not sure how all of this is going to work - I don't think i'll be eligible for IUI because I'm old as shit 39 and very very very nearly 40. I'm investigating this path because i don't know how long the chemo will be in affect - we've not been given guidance on when we could TTC naturally again. And to be honest, I have no idea when DH would be up for it. The poor guy, all of his energy is focused on trying to eat when he really doesn't feel like it and getting enough sleep. No sexy time for Mr & Mrs LateBloomer any time soon. I'm starting to feel really down about it all. I'm angry whenever I see an expectant mom or that happy family scene when an ebullient couple are pushing their pram full of happiness down the lane. I know I have done nothing wrong except marry and try to start a family far to late in life but come on, it's not like I'm 53.

ok, rant over. Sorry, i didn't realize how sad I've become about all of this.

Aw Latebloomer I'm so sorry you are having such an awful time, must be so difficult for you and your DH, good luck at your appointment, And thanks to everyone else for the hand holding, i was seen at the epu yesterday, they reckon its a new pregnancy, too early to scan but they have given me an appointment for 10 sept, I have had very slight bleeding so I don't hold out much hope, I can't believe I've put myself in this position again and so soon :( hope everyone is doing ok xxx

This could be good news Purple, i really sincerely hope it is for you (despite my earlier rant ). Keep us posted.

Purple, you're back in the game; every new pg has hope. Good luck.
LB, you are dealing with so much, no wonder you are feeling down. Hang in there!
Hope everyone else is going ok?

Latebloomer - sounds awful for both of you :( sending thoughts and prayers.
Purple - keeping fingers crossed for you. We're all ultra aware of spotting as the start of a problem - but many many PGs spot at the start and are perfectly OK, hoping that's yours too!

On the topic of chromosomes i was very concernef about translocations but ironically me having a triplody/molar scare on the last loss makes translocation less likely in the eyes of the clinic (it is super rare, couldn't occur with a translocated loss so rare + rarer = very unlikely) but I am still being tested. Hope its something else that can be ruled out. Thyroid has come back OK so far. Its that balance between not wanting a conditionbut also wanting aanswers/treatment. Strange times, but mustn't grumble - even 20years ago they didn't know what they know now. Just got to keep the faith.

Ugh phone typos - sorry!

Hi everyone. Hope you don't mind me barging in... I posted quite a bit on the last thread but the last few months I haven't. I've missed being in touch with everyone I spoke to previously, but I felt I needed to take some time away from thinking about things. It was taking me a long time to conceive after my 3 mcs and I felt that reporting every monthly failure wasn't helping me to chill about it!

So it's taken 10 months this time but I've finally got a BFP. Because of Factor V Leiden diagnosed after my third mc I'm picking up Clexane and high dose folic acid from the hospital tomorrow to start on immediately. My consultant has recommended I use the Clexane until 12wks then stop. I think this will worry me as I've read about other people being given Clexane for their entire pregnancy when have FVL to prevent blood clots forming in the umbilical cord, but to be honest I'm so pessimistic about reaching 3 months pregnant I'm not really thinking about it yet!

Would love to hear from anyone else with experience of taking Clexane etc. And hi and hugs to everyone I know as well as everyone I haven't met yet. I'm looking forward to a new thread that I can follow from the start! Maybe we can put together a summary of where everyone's up to at the start. I was on another thread that had that and it helped my useless brain keep track of everyone! x