Recurrent MC--Testing and beyond--Part 5 continues here

[LAF77]

Here is the list of us on the thread and where we are in our journey through RMC. Nearly 4,000 posts in a year, so mark your place for the next thread.

Part one Part one

Part two Part two

Part three Part three

Part four Part four

STARTING TESTING
LOLA78: mc1 Dec 07 (6wks), DD Oct 08 (problem free pregnancy and natural birth), mmc2 Nov 10 6wks ERPC at 10wks, mc3 Feb 11 at 7wks - suspected ectopic but mc naturally, mc4 mar 11 at 5wks (started 75mg aspirin from a week before bfp) - hospitalised for excessive bleeding and clots. Now referred for testing at local fertility clinic, we have started having blood tests and am on 5mg folic acid.
SCOOTERCHASTER: DS Oct 08 (managed for SVT heart from 35wks), mc1 Sept 10 (7wks), mc2 Dec 10 (9 wks - hb @ 8wks), mc3 April 11 (7.5 wks, hb day b4 mc).
HAIRYLIGHTS, age 42, MC1 (Jun 10, very low HCG, suspected ectopic, methotrexate), MC 2 (Nov 22 2010, MMC,ERPC, no heart beat at ten weeks, fetus 8 week size), MC3 (MMC - Medical Management, Feb 13 2011, MMC at 7 week scan). Waiting to TTC
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 28 - DD age 3. 1st MC Oct 2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear. High dose folic acid prescribed.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. All tests have come back clear. Going to take Aspirin and Progesterone in next pregnancy (will be on Promise trial) currently ttc.
IGGI999 - Age 40, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. NHS blood tests came back clear, except for presence of antinuclear antibodies. To take aspirin for this. Going to see Shehata in May as think steroids are needed.
CONFU3ED - Age 35 1st MC 1998 14 weeks. DD age 11. 2nd MC July 2009 5.5 weeks. ERPC Twice. No tests. 6 months Clomid 3rd MC January 2010. The foetus sent for testing - came back fine. Been referred to recurrent MC clinic at the hospital for tests, waiting for appointment. Was told I have PCOS through a scan but never diagnosed.

UNDERGOING TREATMENT
HAVINGKITTENS Age 41 - MMC1 Nov 07 8wks (discovered due to bleeding at 10.5wks) ERPC, TOP1 for TS21 Aug 08, TOP2 for TS21 Feb 09, TOP incomplete, ERPC performed, Genetic Counselling & tests confirmed no chromosome problems with us, "just bad luck ", MMC2 Feb 10 5.5wks (seen at 8wk scan, no bleeding), MMC3 May 10 (as MMC2), RMC testing at UCH, no cause found - empirical 75mg asprin & vit D + early & regular scans for next pregnancy, MMC4 No fetal pole seen at 6.5 wks, follow up scan 10 days later, told of MMC, then "Something" spotted so instructed to wait another week before they would allow ERPC, ERPC a week later, waiting for NK Cell test results from Mr S on NHS, taking 75mg Asprin, Vit D, Pregnacare Plus (w/Omega 3), 5mg Folic Acid (been taking since 1st TOP to try & prevent TS21 or similar issues), NK Cells levels almost double what they should be. 25mg Prednisone from ovulation - CD1 or if BFP then 'til 12 wks and then weaned off 'til 14wks plus Progesterone pessaries from BFP - 16wks, Folic Acid, Omega3, Vit D - 12wks, Asprin - 20wks.
CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks. MC4 MMC @ 8.1 wks (discovered @ 11 wk scan) following hb seen at 6+6 wks. Consultant suggests aspirin + clexane to start at 4 weeks, plus progesterone pessaries. Management of MC tbc.
DIGITALGIRL Age 32 - DS 2.8 - 4MCs since ttc#2. MC1 Nov2009 @5wks. MC2 Apr2010 @6-7wks. MC3 Oct2010 @7-8wks. MC4 Mar2011 @8wks. All natural, except MC4 managed with ERPC for karyotyping. Clotting tests normal. DH & I genetically normal. On Metformin for mild PCOS, plus 75mg aspirin, Pregnacare Plus & 25mcg VitD3. Diagnosed with high NK Cells (1.25) after MC4. Starting TTC in May with prednisolone from ovulation and will add cyclogest once pg. Under care of Mr S.
PUREEQUEEN Age 34, MC1 (7 weeks Jan 08) MC2 (6 weeks March 08), DS born (prem) 2009, MC3 (9 weeks Oct 10). MC4 Jan 2011. First 2 natural mcs latter 2 mmc/ERPCs. Chromosome test MC4 showed she had a genetic abnormality (cri du chat). Karotyping for me and DH fine but with "increase in length on satellite of short arm 13 and 15" (??) . Also have endo &septate uterus. Now TTC and will take aspirin and progesterone.
LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic . No children, First appointment with St. Mary's in April, second round of bloods in May, with results in June.

PREGNANT
MATTSMAMA Aged 41. 1st MMC November 2004. My DS (who I love with all my heart) born 2006. 2nd MMC July 2010. 2 chemical pregnancies September and October 2010. Under Dr Shehata and got BFP on first round of treatment for high thyroid antibodies and high killer cells.
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, Going to try aspirin and progesterone as per consultant. Clotting bloods normal.
MUMMYABROAD Age 36, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 BFP on Cycle 2 EDD 4/11/11. Heartbeat seen at 10 weeks.
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus. EDD 03/10/11
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells - aspirin, progesterone, steroids, omezaprole and one intralipid infusion completed.

GRADUATES WITH BABIES!!
LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5). Seen at St Mary's. clotting problem, pg #5 aspirin 150g daily. Ds1 born 9/2/11 c/s @ 35 wks
STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction but currently home and doing well.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

babyjames I know the feeling. I have spent today in baby shops getting gifts for my friend that has just had a little boy, and my nephew is 1 2mrw so I'm feeling more fed up this evening
Not sure what they are going to test for, not got a clue what to expect tbh. I'm 26 so really hope the consultant doesn't just send me away. Just hate this waiting game, last mc was in June and my appt isn't until next month. I hate trying to avoid getting pregnant when we have been trying for so long!

teaandchoc do you mind if I ask how much it's costing you privately?

Not sure yet, I'm going to wait and see what tests I need but can keep you posted if you like. Although there are loads of ladies on these threads who can probably advise. I think 1st consultation was £160 and only 30 mins so not cheap!!

Know how you feel - everyone I know is pregnant and due on one of my due dates!! Feel like I'm doing lots of avoiding at the moment

That would be fab thanks. This threads great, makes me realise I'm not alone in all of this, as all my friends seem to fall pregnant by just looking at their husband and have no issues!

I know! I'm just sick of feeling miserable. I'm eternally grateful to have my dd so know I can't really complain but the older she gets and the more interest she shows in babies makes me feel so guilty I can't give her a sibling. And just can't help looking at my friends bumps growing and thinking it should have been me! I just want a straightforward life!! Sick of dealing with stuff!!

Thought I would update as saw a few people had posted recently and I have just got back from the hospital and an appointment to find out the results of the blood tests we had (and MRI scan they gave me to check out if my fibroids were an issue. They weren't - apparently I have one small one that measures under 1cm in the uterus and a larger one that's outside the uterus, so presumably not a problem).

All of my tests were normal, except I have Factor V Leiden - a clotting disorder - which is apparently quite common and means they'll give me heparin when I next get pregnant. The consultant did say there was no evidence it actually helped but said they give it to patients that have this anyway. I have to inject it up until 14 wks. She'll also prescribe 5mg folic acid, which is a much higher dose than you get in the shops I think.

So now we just have to get pregnant (for the fourth time)! She said to let them know as soon as I get a positive and they'll give me a blood test, then another 2 days later to measure hormone levels. I think they'll do an early scan too, which will be reassuring. God, it's quite scary to have hope again.

Really chuffed pepspop to hear you're pregnant. I think I will do the Pregnacare (if the time comes again) and maybe aspirin too (although consultant didn't say to take it seems like it might just be another unproven thing that might work).

Thanks for the testing info Tea
LittleMiss I am also fed up of feeling miserable. Bleeding has just stopped after 2nd MC in as many months. I have given up coffee and cut back the chocolate. I have started taking Omega 3 and trying to plan healthier meals. Have made 2 home made soups and a veggie lasagne so far this week. Feel I need to do something whilst waiting for tests!
Guppie think that as soon as I get another BFP I will go to my GP and ask for bloods to test hormones. I was thinking of asking for them to check my Vitamin D levels now too and see if low. Think I a turning into a crazy woman recently!

Babyjames, it's understandable that you feel a bit crazy as it's difficult to think about anything else I think. After my first two mcs I just wanted to be pregnant again asap and couldn't stop reading books about mcs and this forum and other stuff on the internet... but after the third one I felt like I really needed to take some time out and step back a bit. It's been about four months now during which time I've had these tests and I'm feeling in a much better place to try again. I think the hormones make you go a bit funny for quite a while after too.

I've heard the vitamin D thing but my consultant didn't seem to know of a link when I asked her. I think I'll just take Pregnacare, maybe while trying to conceive and if/when I get pregnant again, as hopefully that will contain enough. I think they should test your hormone levels after BFP as much for reassurance if it's happened twice. It's good to start eating healthily. I started introducing more pulses and seeds into my diet as I'm veggie and I'll probably reduce the tea intake to one or two cups a day too when we start trying again. I'm really having a difficult time imagining finding out I'm pregnant again. Let alone imagining I'll ever get to the stage where I get fat!

Bit of a surprise but I'm pregnant! Not actively ttc as awaiting appt for rmc. Not sure what to do now will they still see me? Should I start taking/ doing anything different to past 3 mc? Not sure about baby aspirin etc

Congrats Littlemissimpatient! That is such exciting news! :-)

I think the rmc clinic will still see you although not sure if it will mean they can't test for certain things? But I would think they can do some tests and give you some advice. At what stage were your previous miscarriages? Mine were at 6-8 wks and I've been diagnosed with blood clotting thing so I'm planning to eat super healthy blood thinning foods (!), make sure I move about and exercise regularly and take aspirin to see if that helps when/if I next fall pregnant.

My consultant hasn't recommended aspirin and, from what I've read online, its use hasn't really been proven to help in early miscarriage. But I sort of feel like it won't hurt to take it. If you don't feel like you want to take it, maybe you should try the blood thinning foods (purple grape juice, garlic and ginger are all good) and maybe just make sure you're doing half an hour's exercise, even just walking, every day? Even if a blood clotting disorder hasn't affected your previous pregnancies, it can't help to get the circulation going I don't think!

Also my consultant was going to prescribe super high folic acid - I think 5mg as opposed to 400ug. Maybe that's something will still do when you go for appointment. When is your appointment? Could you phone them to see if they can see you sooner as you're now pregnant? They also told me they would do a blood test as soon as I'm pregnant and then another 2 days later to see if hormone levels are going up as they should, and a scan at 6 weeks. Maybe you could ask for the same?

(Sorry for super long post! Congrats again. Keep us updated!)

It can't hurt to get the circulation going, not help. Doh!

Thank you Guppie.
My appt at rmc is nov so I'll be 8ish weeks I'll try to call them on mon. Also going to contact my gp. Can you buy baby aspirin? How much should I take? I'm going to ask for extra strength folic acid too.
That's interesting about blood thinning foods I never thought of that so thank you.
My last 3 mc were all different, first mmc around 7 weeks, second around 5-6 and thirds mmc at 8-9 weeks. I'm terrified but just a waiting game I think.
Going to ask for scan around 6 weeks but it would be good if they could do blood tests too.

Littlemissimpatient, your mcs are at similar times to mine. I got to 6 and a half first time, then 5-6wks and then 8 wks. Obviously just because of that doesn't mean you'll have the same as me. I don't even think they're too sure that the blood clotting thing I have will have caused mine, but they're going to give me heparin for a couple of months next time just in case it helps.

I've just bought some aspirin from Boots as I'm going to take it while trying to conceive too. You can just ask for it at the counter. You're meant to take 75mg and you can either buy coated tablets or dissolve it in water. I'm a little paranoid about taking it, but I think it's pretty tried and tested and the information sheet the consultant gave me did have the aspirin recommendation on it as they used to recommend it to women who had had mcs, but she crossed it through and said the current thinking is not to take it. I'll ask her more about it next time I see her.

I hope you can relax a bit soon. If I'm lucky enough to get there again soon, I'm going to be exactly the same as you. Excited and terrified at the same time!

Hi everyone! Just came on here to update and LittleMiss I saw your news! Congratulations! Although I know you are probably feeling really stressed now. Can you ring the rmc and see if they advise doing anything differently? I took progesterone in my only successful pregnancy (2 x 400mg pessaries each day one morning and one evening). The experts don't seem to know if it helps but there's a trial on at the moment. It's the only thing I did differently with my successful pregnancy so might be worth a try if you can get someone to prescribe it - my consultant did me a private prescription without another appointment and I've just paid for half of it incase I don't need the whole lot (ie miscarry in between) so it was cheaper.

I've just got back from my appointment with another specialist and not really sure how I feel about it all. He's advised me to have an X-ray procedure next week to check my uterus for any adhesions or abnormalities. As DD was breech he said it can be a sign of a heart shaped womb. He also said multiple operations (2 x erpcs and 1 csection) could cause issues. I thought this was a bit depressing to be honest as its not my fault and can't be the cause of th 1st mc and I know the 2nd had triploidy. But I guess I could have a funny shaped womb.

I am quite annoyed with myself as I didn't ask how much this would cost. I also didn't push for lots of tests as couldn't remember others that were available. He said they wouldn't normally do nk cell testing unless everything else comes back clear. Although in tempted to just demand it a feel I might as well know! Even if I have a heart shaped womb it doesn't mean I won't have high nk cells!

Just feel like he didn't say much and it's more waiting. He wants to see the results of the thrombophilia tests I had done on the nhs. What other tests would st Mary's or Mr shehata do?? I know there's no miracle cure I just wanted more answers I guess but I suppose the consultant is not in as big a hurry as I am!!

Guppie that's so interesting about the factor v Leiden. How do you feel now? Are there any other symptoms / complications with having it? Feel like we all need medical degrees to deal with all this!!

guppie I take aspirin from bfp. it could affect implantation if you take it while ttc.

congrats little miss. I would ring the rmc and they might see you sooner.

Thanks for the info pebspop. I read the same thing on another thread yesterday, so will stop popping the aspirin now! Maybe my consultant does know she's on about... Do you have a thrombophilia as well? Do you know if you'll be on heparin throughout your pregnancy and were you given your advice by local hospital consultant or specialist rmc? (sorry for all the questions!) I hope your pregnancy is still going well.

teaandchocolate - I did feel quite relieved about having the factor v leidon as I felt like it was nothing I could help (!) and that it meant they would sort it next time. Of course since then I've scared myself silly reading about it on the internet - about how it can increase your risk of a blood clot, especially during pregnancy, increase the chance of a stillbirth due to clotting in the placenta / umbilical cord (as baby will also have 50% chance of having the problem too). I think I just need to chill, try to get pregnant and speak to the consultant about my worries once I get there.

The consultant very much didn't seem to think it was a big worry - 5% of people have it and don't know they have it, as I'm not overweight I'm not very high risk etc but if I went on a long haul flight I'd be at increased risk of a blood clot. I suppose I feel thankful I know about it now - I've done a fair few flights to the US in old job where I drank a load of booze and didn't stand up for 10 hours!

That is so true it's like you need a medical degree to deal with this! I remember after the second mc my GP said we were lucky we could conceive as mc is so much easier to get to the bottom of than infertility. I have friends who have dealt with infertility and I know it's devastating and frustrating, but this isn't feeling much easier to be honest!

teaandchocolate - I also meant to reply about your tests. Are you still waiting for NHS test results to come back? The only ones that I know that I had done were for STDs, thrombophilias and some hormone (possibly testosterone level) test they did by taking blood at the start of my cycle. And the karotyping. There might have been more but those are the ones I remember her going through with us.

Have you seen an NHS consultant and a specialist in London? How long did it take you to get a private appointment with specialist? (We are thinking about doing the same for second opinion on treatment). Did they seem much better than the non specialist?

The NHS also did an MRI scan for me as my internal scan showed up fibroids (fortunately MRI showed they weren't a problem as one is small and the other is growing on the outside of my uterus). But they were able to check the shape of my uterus then and fortunately it's okay. They had to do MRI as said an x-ray didn't show up inside the uterus well enough, but I suppose if they're just checking the shape of yours then an x-ray is enough. The waiting around is really frustrating - for appointments and then results. It's good they would do the nk cell testing there - my consultant said it seemed to be the latest 'fad' but was unproven, although many posts on here and the book I've read by Alan Beer obviously tell it differently. I also forgot to ask about some blood tests - like vitamin D (I think), which some people seem to have had tested here. It's tough to remember it all once you're there.

Just checking in. Hope your all well and not too stressed with this annoying waiting game. I'm going to call the rmc clinic today so fingers crossed they will move my appt forward instead of just cancelling it. Also going to try get gp appt to see if they can put me on aspirin and extra folic acid happy to try anything going

Can I join you please? I'm waiting and waiting for my follow up appointment with my consultant after losing my 6th baby just over five weeks ago. I lost my baby boy at 21+5 and was told that was due to a placental abruption but the placenta was tested and was fine. I'd had three major bleeds with him in the run up to going into labour and at this stage now it seems crazy that no one scanned my cervix. I lost baby 2 at 11+3 at home and baby 3 at my parents house at 7+3, I asked for these babies to be tested but they weren't. My fourth baby they put my on progesterone and aspirin. I had a mmc measuring 8 weeks and found out at the 12 weeks scan. With baby number five they'd decided it was a blood clotting issue even though I haven't tested positive for that and was put on clexane injections and aspirin. I miscarried after just ten days of getting my BFP. So then onto baby 6. She was going to be my little miracle. I had clexane ready to go when I got my BFP, I had spotting on the day I was due on and again a week later but other than that no bleeding at all. I was vomiting like mad and everything was going so well. She was incredibly active and kept waving at my scans. Then at 16 weeks I went to the loo and there was fresh blood. You must all know that feeling when you see it , that dreaded red and all colour drains out of your face. But I tried to be positive, it wasn't a lot and I wasn't in pain. That was until I got to the hospital and cramps set in. I had a scan and was told my cervix had shortened and was funnelling. They rushed me into theatre and put in the cerclage. I had contractions all of that night and thought it was over. But by morning it had settled down so I went home for 2 weeks bed rest. Then a week later I was eating dinner when I felt cramps, they got worse and worse and I had to wait nearly an hour for the ambulance. By the time I got to hospital I knew it was over and just wanted someone to get the stitch out. The doctor didn't want to do it so I lost her through the cerclage. It was only when another doctor tried pulling out a piece of placenta the next morning that they realised it was my cervix they were pulling! It had torn so I was rushed back into theatre to have it stitched up. I can't afford to go private but all the waiting drives me crazy.

So here I am, still waiting for a period, having tons of cm with blood in it still, waiting to see my consultant, having constant panic attacks about death, waiting for the councillor to call with an appointment, waiting to get an appointment at St Marys, dreading next Thursday because Evie's being cremated and I don't think I can face it...oh and wondering if I'll ever get to know what it's like to hold my live baby in my arms.

Ps I'm sorry you've had to hear my rant twice now tea and chocolate!

Just wanted to give you a hug Muminwaiting so so sorry for all you have been through. I think you have been really let down by the NHS. All this waiting on top of loosing your darling angels is terrible. Is there anyone who can put some telephone calls in and try and chase things up for you. Sending you thoughts of peace and strength.

amuminwaiting - I was so sad reading your story. It's such a terrible thing to go through and it sounds like you really haven't had very good advice so I'm glad you're going to St Mary's for a consultation (I haven't been but have read on here it is much better than local hospital gynacology depts). I'm amazed you haven't been referred earlier? I'm at work but just wanted to reply quickly to say that I hope this thread helps and is a place you can share what you're going through with other people who have been through similar. I can sympathise greatly with your panic attacks - since my last mc I often have nightmares about bleeding and dying as it was such a shock waking up in the night in a pool of blood. My thoughts are with you. I can't imagine how it must feel to get so far and have a bond with the baby inside you only to lose her in such a traumatic way. Please let us know how things are going here. x

Hi everyone! Sorry for the delayed response. As you may have seen from my other thread I've been stressing about whether to have the hsg X-ray. After much dithering I've decided not to and am now booked for a sis scan in london at a clinic I've used before and really like.

Amuminwaiting - don't be silly, I think you should keep sharing your story and I hope it makes you feel a bit better? You've been through such a horrendous time and makes me feel a bit pathetic for getting upset over my mc as I have my dd. you are so brave. Just keep going and I really hope you get what you deserve.

Guppiek yes I'm still waiting for my nhs thrombophilia test to come back. I didn't see a specialist in London, saw one in sheffield as it's much closer but to be honest I wasnt hugely impressed. Not entirely sure what I expected but he didn't seem to want to do anymore tests except for the hsg which I'm not sure is necessary. The problem seems to be that there is such a diverse range of opinions as to what causes mc and no two specialists work in the same way or do the same tests. So it's really hard to know where to go. I think id have rather just gone to London but not even sure who I'd see. Mr Shehata is the nk cells specialist but he tests for blood nk cells whereas the man I saw and various others (including quenby) test for uterine nk cells by doing a biopsy (which sounds grim) so even there there's no consistency. Then St Mary's are amazing for clotting issues but don't believe in nk cells. And its apparently v hard to get a private appointment. So it's impossible to even know where to go!!!

I'm kind of hoping that I'll just be lucky next time and it will work. However I need to feel emotionally ready to try again and potentially face another mc. My biggest worries are whether I can cope psychologically rather than physically. It's so hard isn't it!

teaandchocolate I know what you're saying. I'm finding the waiting so frustrating. Every time I lose a baby I say immediately afterwards "never again", then a few days pass and the burning need to have a baby takes over again. This time I've been banned from trying again until at least March to give my cervix some time to heal. I think that's why this time is so much harder, I don't have trying again to focus on. But at the same time I'm petrified of losing another baby.
Today I had tea with a neighbour and she seemed really surprised that I was willing to go through it all again. But I can't imagine not holding my own living child in my arms. She kept saying there were other ways for me to feel fullfilled in my life...but other than being with my DH, this is the only thing I've ever truely wanted. Please tell me I'm not crazy to keep going. I can't give up.

Hi can I join please. I've had 2 mmc in the last 5 months the most recent 5 weeks ago. I was told it was bad luck and nothing would be done until I'd had 3, we weren't willing to chance it so went for a private consultation she was lovely and arranged some tests but on the nhs so we didn't have to pay. Just had the tests this week so have a while to wait for the results. We aren't ttc at the moment just until we know if theres a problem or not I think we need some time anyway I don't feel like I want to just yet don't feel ready. It's good to hear similar stories although I'm sorry that anyone has to go through this. Good luck and best wishes to you allx