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Recurrent MC--Testing and beyond--Part 5 continues here

999 replies

LAF77 · 02/05/2011 09:23

Here is the list of us on the thread and where we are in our journey through RMC. Nearly 4,000 posts in a year, so mark your place for the next thread.

Part one Part one

Part two Part two

Part three Part three

Part four Part four

STARTING TESTING
LOLA78: mc1 Dec 07 (6wks), DD Oct 08 (problem free pregnancy and natural birth), mmc2 Nov 10 6wks ERPC at 10wks, mc3 Feb 11 at 7wks - suspected ectopic but mc naturally, mc4 mar 11 at 5wks (started 75mg aspirin from a week before bfp) - hospitalised for excessive bleeding and clots. Now referred for testing at local fertility clinic, we have started having blood tests and am on 5mg folic acid.
SCOOTERCHASTER: DS Oct 08 (managed for SVT heart from 35wks), mc1 Sept 10 (7wks), mc2 Dec 10 (9 wks - hb @ 8wks), mc3 April 11 (7.5 wks, hb day b4 mc).
HAIRYLIGHTS, age 42, MC1 (Jun 10, very low HCG, suspected ectopic, methotrexate), MC 2 (Nov 22 2010, MMC,ERPC, no heart beat at ten weeks, fetus 8 week size), MC3 (MMC - Medical Management, Feb 13 2011, MMC at 7 week scan). Waiting to TTC
PANDA 3MMC, no.1 (embryonic loss - empty sac) 7weeks, no.2 at 12 weeks, no.3 at 8 weeks. Awaiting raft of tests for recurrent MC
CLAIREDELOON Age 38 1st mmc, development stopped approx 5 weeks (2007), 2nd mmc development stopped at approx 6 weeks (2009), 3rd mc development stopped at 9 weeks after seeing hb at 8+3 (2010). Bicornate uterus, starting testing Feb 2011.
NOTSOBARRENBROOK Age 35. 1st mmc @ 6 weeks (Jan 2009), 2nd mmc @ 6 weeks (Jan 2010), 3rd mmc @ 11 weeks, development stopped at 6 weeks 3 days (March 2010), 4th mmc @ 5 weeks (August 2010). Possible adenomyosis, awaiting hsg and results of testing from St Mary's.
MILKYWAY2007 Age 28 - DD age 3. 1st MC Oct 2009, 6 weeks. 2nd MMC March 2010, 11 weeks (baby passed away at 7 weeks). 3rd MC July 2010, 6 weeks. 4th MMC 24 Jan 2011, 9 weeks - no amniotic sac, baby measured 7weeks 4 days, no HB, had seen a healthy HB at 7 weeks. Blood clotting, hormone, genetic karyotype and shape and health of uterus checked and all clear. High dose folic acid prescribed.
LUCKYFOR2 Age 32 - DD age 5. DD age 3. 1st MC May 2010 found at 12 week scan passed away at 9 weeks. 2nd MC September 2010 natural at 8 weeks. 3nd MC January 2011 at 16 weeks, saw hb at 13 but no hb at 15.5. All tests have come back clear. Going to take Aspirin and Progesterone in next pregnancy (will be on Promise trial) currently ttc.
IGGI999 - Age 40, 3 year old DS. 3 MC last year, at 6, 8 and 8 weeks. Last two had hb detected. NHS blood tests came back clear, except for presence of antinuclear antibodies. To take aspirin for this. Going to see Shehata in May as think steroids are needed.
CONFU3ED - Age 35 1st MC 1998 14 weeks. DD age 11. 2nd MC July 2009 5.5 weeks. ERPC Twice. No tests. 6 months Clomid 3rd MC January 2010. The foetus sent for testing - came back fine. Been referred to recurrent MC clinic at the hospital for tests, waiting for appointment. Was told I have PCOS through a scan but never diagnosed.

UNDERGOING TREATMENT
HAVINGKITTENS Age 41 - MMC1 Nov 07 8wks (discovered due to bleeding at 10.5wks) ERPC, TOP1 for TS21 Aug 08, TOP2 for TS21 Feb 09, TOP incomplete, ERPC performed, Genetic Counselling & tests confirmed no chromosome problems with us, "just bad luck ", MMC2 Feb 10 5.5wks (seen at 8wk scan, no bleeding), MMC3 May 10 (as MMC2), RMC testing at UCH, no cause found - empirical 75mg asprin & vit D + early & regular scans for next pregnancy, MMC4 No fetal pole seen at 6.5 wks, follow up scan 10 days later, told of MMC, then "Something" spotted so instructed to wait another week before they would allow ERPC, ERPC a week later, waiting for NK Cell test results from Mr S on NHS, taking 75mg Asprin, Vit D, Pregnacare Plus (w/Omega 3), 5mg Folic Acid (been taking since 1st TOP to try & prevent TS21 or similar issues), NK Cells levels almost double what they should be. 25mg Prednisone from ovulation - CD1 or if BFP then 'til 12 wks and then weaned off 'til 14wks plus Progesterone pessaries from BFP - 16wks, Folic Acid, Omega3, Vit D - 12wks, Asprin - 20wks.
CRYSTAL5 Age 38 - DS age 4. 6 m/c 1 at 11 weeks, 5 at 5/6 weeks. Ok blood tests, under Endocrinologist for Hypothyroid
LADYBEE 37, MC1 (5wks), DS (2), MC2 blighted ovum discovered @ 8 wk scan, MC3 natural @ 9 wks following hb seen at 7 1/2 wk. PCOS previously diagnosed, Factor V Leiden heterozygote discovered in recent testing. Treatment with aspirin (from BFP) + clexane started at 6 weeks. MC4 MMC @ 8.1 wks (discovered @ 11 wk scan) following hb seen at 6+6 wks. Consultant suggests aspirin + clexane to start at 4 weeks, plus progesterone pessaries. Management of MC tbc.
DIGITALGIRL Age 32 - DS 2.8 - 4MCs since ttc#2. MC1 Nov2009 @5wks. MC2 Apr2010 @6-7wks. MC3 Oct2010 @7-8wks. MC4 Mar2011 @8wks. All natural, except MC4 managed with ERPC for karyotyping. Clotting tests normal. DH & I genetically normal. On Metformin for mild PCOS, plus 75mg aspirin, Pregnacare Plus & 25mcg VitD3. Diagnosed with high NK Cells (1.25) after MC4. Starting TTC in May with prednisolone from ovulation and will add cyclogest once pg. Under care of Mr S.
PUREEQUEEN Age 34, MC1 (7 weeks Jan 08) MC2 (6 weeks March 08), DS born (prem) 2009, MC3 (9 weeks Oct 10). MC4 Jan 2011. First 2 natural mcs latter 2 mmc/ERPCs. Chromosome test MC4 showed she had a genetic abnormality (cri du chat). Karotyping for me and DH fine but with "increase in length on satellite of short arm 13 and 15" (??) . Also have endo &septate uterus. Now TTC and will take aspirin and progesterone.
LAF77 , Age 33, MC1 (7 weeks Apr 10) MC2 (5 weeks Sept 10) MC3 (9 weeks Dec 10). All have been natural mcs and number 1 and 3 were embryonic . No children, First appointment with St. Mary's in April, second round of bloods in May, with results in June.

PREGNANT
MATTSMAMA Aged 41. 1st MMC November 2004. My DS (who I love with all my heart) born 2006. 2nd MMC July 2010. 2 chemical pregnancies September and October 2010. Under Dr Shehata and got BFP on first round of treatment for high thyroid antibodies and high killer cells.
BANANA87 Age 30- 1mmc@7 weeks, DD (2), 1 mmc 6 weeks, 1 mc 7 weeks, Going to try aspirin and progesterone as per consultant. Clotting bloods normal.
MUMMYABROAD Age 36, 1DS (2.9), 1MMC Mar 2010 (@14weeks) Ashermans diagnosis and treatment Nov 2010, Started TTC Jan 2011 BFP on Cycle 2 EDD 4/11/11. Heartbeat seen at 10 weeks.
GLITTERYBITS 1 anembryonic MC (12 weeks), unexplained infertility, 1 round of clomid, currently pg and terrified!
JUSTMEE Age 21, MC1 (7 weeks), MC2 (6weeks), MC3 (5weeks) currently pregnant with 4th pregnancy using clexane injecting 20mg a day
LOVELYBUNCHOFCOCONUTS Age 23, 1 MC (13 weeks), 1 MMC (10 weeks - growth stopped at 7), 1DD born 2008, PCOS diagnosis, bi-cornuate uterus. EDD 03/10/11
LOVEMYSLEEP Age 39, 1 mmc, dd born(now 5), 2nd mc (9wks, 2days), 3rd mc (9wks, 3days) and 4th mc at 5 wks. All tests on NHS came back clear. Currently undergoing treatment with Dr.Shehata for very high natural killer cells - aspirin, progesterone, steroids, omezaprole and one intralipid infusion completed.

GRADUATES WITH BABIES!!
LUNATIC dd1(4) 2 mmc (8 wks) dd2 stillborn (32+5). Seen at St Mary's. clotting problem, pg #5 aspirin 150g daily. Ds1 born 9/2/11 c/s @ 35 wks
STILLFRAZZLED Age 35, DS1 (3.6yo), 1 mc @ 5 weeks Jan 09, 2nd mc @ 9 weeks March 09, DS2 born @ 35+3 on 04/01/11 with Intra Uterine Growth Restriction but currently home and doing well.
MUMATRON Age 28 2 dc then 4mc, 3 @9weeks 1@5weeks, tests showed possible free protein s ishoo. dd2 born 06/01/2011, aspirin, claxane and high dose folic acid through pg.
JULEZBOO Age 29 1 mc @ 14 wks, DS1 (8yo) 4 mc @ 5/6 wks, DS2 (3) 2 mc @7 wks... DS3 (14/01/11 @35 wks) Dx with Factor V Leiden and Septate Uterus. Clexane and Aspirin throughout pregnancy and progesterone with DS3.

OP posts:
pebspop · 25/06/2012 12:41

got my hysteroscopy this week. going to see if i can start ttc if there are no problems found as i will just be waiting for the blood test results and i can't see any reason to wait. i have had these bloods done twice already and i know i will have to take an aspirin from bfp.

will see what the consultant says. fingers crossed he says yes and i can get a sneaky cycle in before my blood test results appt.

maples · 25/06/2012 14:55

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Message withdrawn at poster's request.

pebspop · 25/06/2012 20:02

i am going to ask my consultant about the new guidelines tomorrow. as i always have mmc i would be amazed if waiting a week to two weeks would make any difference to me. i have carried babies for much longer without realising i had mc'd.

i wonder if you can have a private erpc/medically managed to hurry the process along? theres no way i would want to wait that long. i had to wait for a week to confirm my last mc and that was pretty shit. to have to wait another 7-14 days might have finished me off!

maples · 25/06/2012 21:29

This reply has been deleted

Message withdrawn at poster's request.

cartoonface · 26/06/2012 08:35

Is there room for another?. I am currently waiting to have an erpc (friday) after my 2nd mmc.
My doc has agreed to do some basic bloods for me afterwards. I will go private if my doc can't do much rather than wait for another mc. But I have no idea what mite be causing this or what they will test for and what they can do. How likely is it to be just bad luck?

Ostrich78 · 26/06/2012 20:31

Maples, that is shocking. You would have had to wait for 3 weeks? I originally read it that you had to wait 15 weeks!! Any chance you could post a link to the thread you're talking about please? I've had 2 mmc and 1 mc and not had to wait more than 1 day. Imagine that it would be awful to wait for a 7-14 days. Fingers crossed ill not have to go through it again but would hate anyone not having that option.
Pebs - would be interested to find out what your consultant says - hope it goes well x
Laf - thanks for the link x it took me ages to read!
Hello cartoon, sorry you find yourself here, hope the next few days go quickly for you xx
My af has finally turned up, hooray! Now just have to wait until 18th July for my appointment.
MT - hope you're well xx

maples · 26/06/2012 22:08

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Message withdrawn at poster's request.

maples · 26/06/2012 23:45

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Message withdrawn at poster's request.

pebspop · 27/06/2012 07:33

Didn't ask my consultant about the new guidelines sorry. I forgot!

I has the hysteroscopy and they confirmed heart shaped womb. Apparently nothing to worry about but I won't google as I know doctor google says worry. A nurse at epu saw a heart shaped womb on an early scan once but everyone else said it wasn't. I think dr google says it can cause mc but that nurse and consultant said it doesn't.

Regarding my mid cycle bleeding, they found some afterbirth from last years late mc in there. That has now been removed.

Hysteroscopy was fine I an not in pain or bleeding and will be going to work today. I was a bit scared of the ga but I always am!

The best bit was the consultant told me I could ttc now yeah!!!

iloveblue · 29/06/2012 21:45

Good news pebs - glad that the hysteroscopy went well and that the mid-cycle bleeding was explained and hopefully sorted. Yay for ttc!!

Hi cartoon sorry you find yourself here. Glad your GP is being helpful. At what stage have your mc' been?

ostrich hooray for AF - it always feels like a positive step.

I've been to Coventry today to see Prof Quenby and her colleague Prof Brosens. They were brilliant. I had the uNK cells test done, plus some others, but irrespective of the outcomes I will be on progesterone, clexane and possibly steroids (if NK cells high) next time. Prof Brosens thinks my problem may be to do with my womb lining and the fact that I get pregnant very easily. There is some info here.
I feel hopeful again for the first time in ages Smile

cartoonface · 02/07/2012 18:23

hi my first one in march was a mmc discovered at first scan all i know is there was a feotus but wot he could see he said looked around 5/6wks i mc'd naturally 4 days after that scan i was around 11wks. my recent one was a blighted ovum i had a d&c fri just gone after 3 scans just to make sure i was about 10wks

BottleRed76 · 09/07/2012 21:11

Ladies,
I have been advised on another forum that this is the place to be for advice. Just had my second mc (first in March). Both times at just over 5 weeks and approx same number of days following ovulation. HCG levels when tested on day bleeding started were 5 or 6.

I'm aware that 2 can be bad luck rather than a sign of something more sinister but given the similarity of dates I'm seeing my GP tomorrow to discuss what (if any) tests can be started now as I'm about to turn 36. I'm expecting to be told I'll have to have a third mc before tests but we shall see...

I'd be grateful to hear from anyone who has had a similar experience and what tests they have had. What worked? What is the vit D thing? Are there any issues with taking child asprin if my GP advises against it and I take it anyway?

I'm based in the NWest so if anyone has experience of a private doctor in the NWest that would be good to know. Also, what kind of fees to private doctors charge?

Questions questions questions......

Cheers

pebspop · 10/07/2012 12:42

hi bottle - it me again!

glad you found us here.

i am in the north west and went to see raj rai in london. he charges around £1000 for intial consultation, tests and follow up appointment. found it a bit of a pain to get down there but he is one of the best.

i have also seen roy farquharson at liverpool womens (£225 for consultation). he is good but doesn't do testing privatley. i had got a referral from my doctor but didn't want to wait to get my initial consultation so i paid. he is really lovely and is now my nhs consultant who will help me next time i get pg.

www.liverpoolwomens.nhs.uk/Our_Services/Private_Care/

i am not really sure who else you can see around here. those guys mainly focus on blodd clotting. they don't test for nk cells as i said on the other thread.

i think raj rai is your man unless you are going to check out the nk cells or have a third mc and get nhs referral to liverpool.

not sure about the vitamin d thing. i haven't been tested for it. i know some people take 25mg tablets but i don't know how long they take them for or when they start taking them.

BottleRed76 · 20/07/2012 16:57

Thanks Pebs
Saw my doc last week and the local rmc unit (should I need it) is St Marys in Mch. She was all for baby aspirin and had some blood tests.
All your information is very welcome, and good to get an idea of Private fees just in case.
Think I'll ask on the other thread about the Vit D - think it was there that I heard about it.....
Thank you

teaandchocolate · 24/07/2012 16:35

Hi everyone

I've been reading this thread for a few days now and finding it really comforting to know that there are other people out there who?ve been through similar experiences as I'm starting to feel like a bit of a freak!

I?m currently experiencing my 3rd mc. I am extremely lucky and blessed in that I have my DD who is 2, but before having her I had a mmc at 12 weeks (baby died at about 8 weeks after a hb was seen on a scan at 7.5 weeks) which was really hard to go through. I have then recently had another mmc picked up a 9.5 week scan (baby was about 6/7 weeks) and then for this mc I started bleeding at about 7 weeks and a scan confirmed today that there is nothing there.

I?m not really sure what to expect as I?ve never had a natural mc before but at the moment its really just like a period and the consultant said he couldn?t see any sac or anything on the scan so I?m hoping it won?t be too bad? I am supposed to be going to a wedding this weekend ? do you think I will be able to go?! Or is every mc just totally different. I can?t say I really want to go a wedding though as cannot face seeing people (especially as the entire world is pregnant) or having to get dressed up when all I want to do is hibernate?.

So much of what everyone has said on this thread really resonates with me. The feelings of utter dread, rather than excitement, when you get a bfp. And feeling like everything in life is going to go wrong now ? that I?m just a very unlucky person and if bad things are going to happen, then they?re going to happen to me. Its so weird as I almost feel relief now that the scans confirmed its over as being pregnant was just so stressful. But obviously all I want now is to start trying again.

I also wanted to ask you all about testing. I made them take our blood today for karyotyping but it really seems that whatever tests I want I will have to badger them for. The consultant I?m seeing (as had my last erpc privately as the NHS wait was so long) is happy to test/scan me on the NHS ? despite me only having 2 recurrent mc & the fact he thinks its just bad luck. But he said I need to wait a while for clotting tests ? how long is the wait? He said 3 months although I?ve read on here that it is 6 weeks? I also can?t decide whether it is worth all the effort and cost of seeing someone privately in London (I live in Yorkshire) - either Mr Shehata or St Marys, or whether I should try again and see if I get lucky next time?! The only thing I did differently with my successful pregnancy was take progesterone pessaries until 12 weeks so am thinking I could try that next time and see. But I would like reassurance from someone who knows what they?re talking about which is why the specialists really appeal. I know noone can really answer all this for me but just interested in when others decide to stop trying and wait for testing rather than keeping going and seeing what happens ? as the urge to ttc as soon as possible is so strong!! Oh also, my last pregnancy was found to have triploidy which is apparently totally random (although I?m now dubious?) which is another reason why I?m not sure whether to just try again?.

I was also really interested to read about the ?unfussy uterus?/super fertility theory that?s been discussed on this thread, as I literally get pregnant immediately? 1st try all 4 times (once I actually ovulate ? have pcos). Wonder what they can do to stop this though?

So sorry for the mammoth post ? feel like I have so much I want to say as I barely know anyone is RL who?s had 1 mc let alone 3. And everyone I know is pregnant!
Thanks for reading?if you?ve got this far!

cartoonface · 25/07/2012 17:02

ive had 2 mmcs in a row (no dcs) and although my doc was willing to help a bit on nhs theres only so much he seems to be able to do. i have an appointment with dr shehata in 2wks, has anyone seen him before?
teaandchocolate for me im not willing to wait to see if its 3rd time lucky at least they could comfirm for you if u do need that progesterone rather than having this horrible experience again.
re natural mc mine was really heavy and ended up in hosp but everyones diff and you may be able to deal with it at home although i wouldnt suggest you go to the wedding if only for your mental state

GuppieK · 25/07/2012 22:45

teaandchocolate - Just wanted to respond to your message. So sorry to hear that you're going through a third mc. I started one on a Thursday night and was meant to be going to an anniversary thing on the Sunday and I didn't go and was glad I made that decision in hindsight. My emotions were still quite unstable, I didn't want to dress up and put on a happy face and I didn't really want to be around lots of happy families! I think it's not so much the physical aspect of it, although the stomach cramping can be quite bad, but the hormonal and emotional bit that you have to be careful not to ignore. I think if you want to hibernate you should!

I really sympathise with everything you've said. I too am very glad I found this forum and thread as I don't know anyone in RL who has had 3 mcs. I hardly know anyone who has had one, although I do know couples who took a year or two to get pregnant and had IVF. It feels like quite a different thing though. In fact, my friend who took years to conceive is one of the least understanding people I've spoken to when I thought she'd be great! I think she maybe feels some resentment I've gotten pregnant naturally so quickly every time and seems to feel that early miscarriages are just bad luck etc and it's just a matter of time. Needless to say, I don't feel like that so much now!

I also felt the same relief as you describe when the third one went wrong. I was really going out of my mind in the days leading up to it with worry - I think my hormone levels had probably already begun to drop off. I feel a bit sad that actually I don't have the same urge I did to try again. I'm currently waiting for a referral to a specialist so the doctor has told me to stop trying in the meantime. I don't really feel like I could cope emotionally with being pregnant again at the moment though, so I'm okay about that really.

With your questions about testing, I don't really know too much about it. My doctor did the blood clotting tests - he said he could get the results quicker than if I waited to see the specialist. Those came back negative a couple of weeks ago, and said thyroid function was normal too. So now I'm waiting and not really sure what the specialist will test for, although I think the midwife said they would want to wait until 3 months after the miscarriage to do the tests so everything was back to normal.

I think the super fertility thing definitely sounds like something you should be aware of when you next try to conceive. It took me 3 cycles to conceive each time, so I guess still fairly quick, but 1st time all 4 times sounds very quick. Did you read the post someone wrote a month or so back about trying to conceive at the right time of the month and making sure you're not doing it too late? I'm also interested in the killer cells theory and would probably pay to have that tested for privately if the NHS tests don't find anything wrong. I kind of have a sense that's what it could be, but that's based on nothing other than the feeling my body is somehow reacting all wrong to being pregnant. I feel like it's ridiculously good at miscarrying..! It just gets rid of it and, 28 days later, there's my period again and everything's back like clockwork. Bloody depressing!

Anyway, sorry for going on. Look after yourself with lots of healthy food and drink (and cakes!). Oh, and seemingly everyone around me at the moment are announcing pregnancies too and now the weather's turned nice I'm noticing loads of pregnant women strolling around with their bumps showing under nice summer dresses too! Urgh. Close friends aside, I'm trying to stay away from the lot of them!

teaandchocolate · 26/07/2012 11:42

Hi cartoonface and GuppieK thank you so much for responding to me, means a lot and really sorry that you're both going through this too.

I've been doing loads of reading about mc recently and it just seems like noone really knows what causes them and most treatment is a case of trial and error. I was given progesterone for my 2nd (successful) pregnancy more of a precautionary measure, but now thinking maybe it helped. Although it wouldn't have helped my 3rd as it had triploidy. That's why I'm now leaning towards this 'unfussy uterus' theory but its not based on much! And there doesn't seem to be a solution - GuppieK - for my successful pregnancy we DTD throughout my cycle, whereas my 2 recents ones, we only did when I ovulated, so that seems to go against the possible theory that's been mentioned on here?!

Its just so hard isn't it as there don't seem to be any answers!! I have vaguely decided to try one more time but try to get a prescription for progesterone that I can start taking as soon as I get my bfp. If that doesn't work then I will pay for testing I think. Although that in itself doesn't seem easy as from what I've read the different specialist subscribe to different theories about mc - Dr S focusses on NK Cells whereas St Marys focus on clotting issues?!

Cartoonface I'd be really interested to hear how you get on with Dr Shehata as I would probably go and see him as apparently its easier to get an appointment there than St Marys and the treatment seems more comprehensive. I also wanted to say how much I feel for you as I really dont know what I'd do if all my mc had occured before my DD. I am so lucky I had my DD in between as she has obviously made all this much easier to deal with - I was a wreck after my 1st. I'd also say don't give up hope as it was just luck for me that I had her in the middle of my mc's and although I know its really annoying when people say this - you have every chance of a successful pregancy next time. There are stories all over these boards of people having 4/5 mcs and then a successful pregancy without doing anything differently...that's what I keep telling myself anyway!

GuppieK I was having a conversation with my friend yesterday about how infertility seems to be much more socially acceptable and talked about than miscarriage. I know a few people who have IVF whereas, as I said, noone talks about mc and recurrent mc seems really shocking and horrific for people and they dont know what to say. I wish it was more openly discussed. For some reason I feel a bit embarassed about it. Its such a rollercoaster being constantly pregnant, then not, then pregant, then not, with nothing to show for it and everything a secret.... I also dread seeing friends having 12 weeks scans when I go for scans at the epu....have become totally paranoid!

Anyway, sorry am rambling on again! Still undecided about the wedding - will see how the bleeding is at the weekend. Feel ok in myself but haven't really done much and have visions of getting really drunk and saying something embarrassing when someone asks when I'm gong to try for number 2....

xx

cartoonface · 27/07/2012 10:22

i also feel embarrassed about having mcs which is totally stupid really. and do find that no one talks me me about it only one of my friends. shes the only one with kids though so i think she maybe understands more than the others. i dont know anyone in rl whos even had one mc.
teaandchocolate ill let you know how i get on my appointment isnt untill the 9th of aug though. read one awful story about a woman who'd had 18 mcs did finally have a baby but her treatment wasnt very straight forward by the sound of it and am slightly freaked out now but the other stories on their website seem much better and he gets really good reviews. im crossing my fingers that its quite an extreme case with that particular woman.
today is 4weeks exactly since my d&c so i am awaiting af.

pebspop · 01/10/2012 10:43

thought i would update. i am currently 13 weeks pg and everything seems to be going well. i am taking high dose folic acid (5mg), 75mg aspirin, heparin and pregnacare.

this is the first pg when the scans have shown i am measuring correctly so i am seeing that as a good sign.

i had a mmc at the 20 week scan last year so i am hoping i get through the next couple of months and i might be able to relax a little bit.

i am going to scans every two weeks upto 20 week scan and have a special midwife who visits me at home as often as i need to help and reassure me.

Littlemissimpatient · 04/10/2012 20:41

Hi Ladies would you mind if I joined in?
I'm currently awaiting my first appt at the recurrent mc clinic after my 3rd mc (2 in 6 months). Really nice to see some positive stories on this thread but its so sad to see how common it is

babyjamesblackberrycrumble · 04/10/2012 22:58

What will they test for littlemiss? I had a mc in august and having another now. Not had a period between. I'd like to ask for some sort of further investigations as in my 30's. I would consider going private if I need to. Feeling very down at the moment :(

teaandchocolate · 06/10/2012 09:44

Pebs that's fab news. I will keep everything crossed for you. Try to relax as much as possible until 20 weeks. Amazing that you get a special midwife, that must feel really reassuring.

Littlemiss I've also booked to have tests next week. Have had a few done already on nhs (even though I've only had 2 recurrent mc, & another before my dd) but am going to go private for the others. It's annoying as we have private healthcare but they won't cover it until I've had 3 in a row & I just can't face going through another one when I know there are tests I could have. Even if they don't find anything at least I've done all I can.

Babyjames I know how you feel. Mc is so awful, depressing and rubbish. Hope you're ok. I did find that I felt better after some time had passed. Your body has been through a lot especially with no break in between. Try to rest and do something nice for yourself if you can. Although I know there's nothing that makes you feel better when you just want a child.

babyjamesblackberrycrumble · 06/10/2012 09:56

So sorry for your losses Pebs and Tea
Wishing you all the best with your current pregnancy Pebs :) , hope you are able to take the time you need to relax. Its great to see you have a special midwife.

What tests have you booked Tea I too want to do all I can as can't face this again.

teaandchocolate · 06/10/2012 10:18

I've had karyotyping and thrombophilia done on the nhs. Still waiting for thrombophilia results as had to wait a while after last mc to have them done and takes 6 wks to get them back. Also had thyroid function and blood count & blood sugar done at gp. That was for another issues but I believe it can affect mc. There are a few tests your gp can do I think. Like thyroid, iron, vit d and hormones. I know I have pcos so hormone levels are rubbish but not had them retested for a while.

Next week I'm going to a private clinic to talk about other tests. Not sure exactly what they'll do but the website says they do other clotting tests as well as nk cells and they look at the structure of your womb and cervix (although not sure if that's relevant for me as I've had dd). I also want to talk to an expert as feel like im a bit lost and don't understand whats going on. Even if they can't find anything I'm hoping I'll feel more positive about trying again.

Also with my dd I took progesterone for 1st 12 weeks which I didn't for any of the other (failed) pregnancies so wondering whether that could help. Even though at the time I was told I wouldnt need it. I had to get the prescription for that privately as gp wouldn't do it. Found the gp pretty useless to be honest which is why I want to see someone specialist.

You might need to wait a while for some of the tests though as pregnancy hormones can affect them. Although it does feel good actually doing something!!