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Mum pancreatic cancer, on syringe driver how long?

117 replies

ILoveaSunflower · 15/10/2026 22:46

Looking for a hand hold and some advice.
Mum was diagnosed 8 weeks ago with stage 4 pancreatic cancer that has metastasized to the liver.
Her decline has been shockingly rapid and she is now on a hospital bed at home with a syringe driver for the pain.
I have been spending as much time as I can over there but also trying to work ful time with two kids.
I'm wondering if she's nearing the end and I should get signed off to be there with her everyday? Or if I've got longer?

OP posts:
Trumpton · 22/10/2026 00:19

I sat with my lovely mil for her last few days and this really grounded me.DH and I opened a window and lit a candle and were with her quietly.
The love you have for your mum shines through. She was with you when you came into this world and it will be of great comfort to you to have been with her as she leaves.
Sending a quiet handhold.

“Expected Death ~ When someone dies, the first thing to do is nothing. Don't pick up the phone. Take a deep breath and be present to the magnitude of the moment.
There's a grace to being at the bedside of someone you love as they make their transition out of this world. At the moment they take their last breath, there's an incredible sacredness in the space. The veil between the worlds opens.

We're so unprepared and untrained in how to deal with death that sometimes a kind of panic response kicks in. "They're dead!"

We knew they were going to die, so their being dead is not a surprise. It's not a problem to be solved. It's very sad, but it's not cause to panic.

If anything, their death is cause to take a deep breath, to stop, and be really present to what's happening. If you're at home, maybe put on the kettle and make a cup of tea.

Sit at the bedside and just be present to the experience in the room. What's happening for you? What might be happening for them? What other presences are here that might be supporting them on their way? Tune into all the beauty and magic.

Pausing gives your soul a chance to adjust, because no matter how prepared we are, a death is still a shock. If we kick right into "do" mode, and call the doctor, or call the hospice, we never get a chance to absorb the enormity of the event.

Give yourself five minutes or 10 minutes, or 15 minutes just to be. You'll never get that time back again if you don't take it now.

After that, do the smallest thing you can. Call the one person who needs to be called. Engage whatever systems need to be engaged, but engage them at the very most minimal level. Move really, really, really, slowly, because this is a period where it's easy for body and soul to get separated.

Our bodies can gallop forwards, but sometimes our souls haven't caught up. If you have an opportunity to be quiet and be present, take it. Accept and acclimatize and adjust to what's happening. Then, as the train starts rolling, and all the things that happen after a death kick in, you'll be better prepared.

You won't get a chance to catch your breath later on. You need to do it now.

Being present in the moments after death is an incredible gift to yourself, it's a gift to the people you're with, and it's a gift to the person who's just died. They're just a hair's breath away. They're just starting their new journey in the world without a body. If you keep a calm space around their body, and in the room, they're launched in a more beautiful way. It's a service to both sides of the veil.”

IroningWhileWatchingTV · 22/10/2026 06:21

We too lost a close relative to PC at a young age. It was a horrendous shock.
I’m so sorry OP. Wishing you all the best over this next few days/weeks.

Washandblowdryplease · 22/10/2026 07:02

ILoveaSunflower · 21/10/2026 21:18

She's at home so just us monitoring but has nurses and carers visiting. She's been unresponsive since this morning, no more wake ups in pain but no communication either.
Her breathing has gone very laboured and she is making noise on the out breath. It's heartbreaking, I'm so sorry if anyone else has gone through this.
Can anyone say how long this phase lasts?

Not very long. Has one of the nurses explained the signs that life is ending to you? I have attached a web page in case it is helpful. My MIL lived with us and passes away last year. I hope that this can be peaceful for you.

End of life breathing | Changes in breathing before death | Marie Curie https://share.google/TyvJlJuWnpN03x0cv

Holsareovertooquickly22929eee · 22/10/2026 07:45

We found with my lovely dad that phase lasted a lot longer than it should have done, from the Thursday Pm to the Sat PM when he passed away. It’s horrible @ILoveaSunflower and sending lots of love to you

annonymousse · 22/10/2026 08:56

I lost my mum 2 weeks ago. The syringe driver went in on a Monday evening. After 2 days of partial wakefulness she settled into a deep peaceful sleep for another 5 days before she finally passed away. We were told at the beginning it would be quick but mum was always a stubborn little thing and she took her time. She looked very peaceful and didn't appear to have any pain once they had reached the right level of medication in the driver. I'm so sorry for what you're going through OP and hope your mum is peaceful and painfree.

CanIRunYet · 22/10/2026 10:09

With my Nan (v late diagnosed lung cancer), who was at home and on the syringe driver for a week or so she lasted about 2 days with the noisy breathing (we all thought it would be pretty fast once the noisy breathing began, and she wasn't really awake at this point). After the noisy breathing, she would also sometimes stop breathing between breaths for a little while... we would almost be holding our breath too, thinking she was/had passed, but then she would start again. So breathing became slower with pauses.

thornbury · 22/10/2026 18:32

runnerducky · 21/10/2026 22:55

I’m so sorry, OP.

For my mum, this was the final hours. Her breathing started to rattle, which they said was due to secretions and she wasn’t in any distress. Her breathing then suddenly got very quiet and with longer pauses between breaths. She let a breath out, and didn’t take a breath in for about 30 seconds. Then one last breath that was let out and then no more breaths.

I’ve posted this before but I found some of the ideas within immensely helpful when my mum died, about taking the time to be present in the moment. I hope it helps you when the time comes.

When someone dies, the first thing to do is nothing. Don't run out and call the nurse. Don't pick up the phone. Take a deep breath and be present to the magnitude of the moment.

There's a grace to being at the bedside of someone you love as they make their transition out of this world. At the moment they take their last breath, there's an incredible sacredness in the space. The veil between the worlds opens.

We're so unprepared and untrained in how to deal with death that sometimes a kind of panic response kicks in. "They're dead!"

We knew they were going to die, so their being dead is not a surprise. It's not a problem to be solved. It's very sad, but it's not cause to panic.

If anything, their death is cause to take a deep breath, to stop, and be really present to what's happening. If you're at home, maybe put on the kettle and make a cup of tea.

Sit at the bedside and just be present to the experience in the room. What's happening for you? What might be happening for them? What other presences are here that might be supporting them on their way? Tune into all the beauty and magic.

Pausing gives your soul a chance to adjust, because no matter how prepared we are, a death is still a shock. If we kick right into "do" mode, and call 911, or call the hospice, we never get a chance to absorb the enormity of the event.

Give yourself five minutes or 10 minutes, or 15 minutes just to be. You'll never get that time back again if you don't take it now.

After that, do the smallest thing you can. Call the one person who needs to be called. Engage whatever systems need to be engaged, but engage them at the very most minimal level. Move really, really, really, slowly, because this is a period where it's easy for body and soul to get separated.

Our bodies can gallop forwards, but sometimes our souls haven't caught up. If you have an opportunity to be quiet and be present, take it. Accept and acclimatize and adjust to what's happening. Then, as the train starts rolling, and all the things that happen after a death kick in, you'll be better prepared

You won't get a chance to catch your breath later on. You need to do it now.

Being present in the moments after death is an incredible gift to yourself, it's a gift to the people you're with, and it's a gift to the person who's just died. They're just a hair's breath away. They're just starting their new journey in the world without a body. If you keep a calm space around their body, and in the room, they're launched in a more beautiful way. It's a service to both sides of the veil.

It's 4 weeks since DH passed, but in the moment, this is kind of what I did. He had been moved from ICU to HDU so he could pass more peacefully, and the nurses knew the moment it was close and they left me alone in his room with him. They were right, and it was less than ten minutes later that the monitor slowed and his heart and breathing stopped. On reflection, I don't know that having medical data was helpful but at least I knew I wasn't imagining it, having never been there at the exact moment of someone's passing before. When he died, I didn't call anyone. I just stayed with him until they came in a few minutes later - to be honest, I think they heard me crying and came in response to that, it certainly wasn't dignified movie crying, more like cats arguing in an alleyway, TBH. The minutes after that were very busy though, they wanted to come in and detach him from everything and then for me to leave the room so they could wash him etc. Believe it or not I was in my car in the hospital car park within an hour of him passing.

At least at home you can go at your own pace. Thinking of you and your family, @ILoveaSunflower

ILoveaSunflower · 22/10/2026 18:55

I'm so sorry to hear of your losses but thank you for sharing and thank you for sharing those words @runnerducky .
I don't want her to die but I don't want her to go on too long like this it's heartbreaking. We are all here though. Taking it in turns to sit with her and chat.

OP posts:
DontLiveByTheClouds · 22/10/2026 18:58

I'm so sorry @ILoveaSunflower . The only experience I have of someone with pancreatic cancer they had three months from diagnosis to death.

Waitingfordoggo · 22/10/2026 19:00

I think all of us here know exactly what you mean that you don’t want her to die (of course you don’t) but you also don’t want to see her suffer like this. Death is going to be the release from her suffering- and then she will be free. She won’t know it’s all over, and it’s the rest of you that will be in pain then. In the nicest possible way, I hope it won’t be too much longer for your poor mum. 💐

TheChosenTwo · 22/10/2026 20:19

It’s totally understandable and a complex emotion, you want them to be out of pain and not suffering but you also know the only way this is going to happen is when they are longer with you. And obviously when you throw your unwavering love for them into the mix it’s a horrible conflicting melting pot of emotions.
keep chatting around her and with her, lean on those around you for support (and there are always people here too). Keeping you in my thoughts 💐

tonsattingforbjudes · 22/10/2026 22:48

I am so sorry. You are doing a wonderful thing for your mother. I do know how horribly difficult and upsetting it is. I went through this with my mother about six months ago and the days and nights were so long. I got through a lot of the hours reading and re-reading Winnie the Pooh which was her favourite book from childhood with the Winnie Teddy sitting next to her. I did sometimes shed a tear as I read some sections but it helped to have something to focus on. I went for a short walk outside every hour or so which also helped. I was very lucky to be supported by the wonderful carers and nurses around her as she was in a care home.

Just do whatever feels right for you and your mum at this time. You are a wonderful daughter to her.

Sober23 · 22/10/2026 23:13

I was with my mum in the last week of her life at home with palliative care support. It was less than 72 hours after the syringe driver was in that she died. She was very sleepy for about 2 days and then in the last few hours very wakeful and sat bolt upright just before she died. I thought she was choking or going to vomit but nurses told me it was her last breaths. It was actually really distressing to watch.

I hope your mum's passing is peaceful and you can feel good about all you are doing for her. Give yourself a lot of grace xx

double0seven · 23/10/2026 05:17

ILoveaSunflower · 22/10/2026 18:55

I'm so sorry to hear of your losses but thank you for sharing and thank you for sharing those words @runnerducky .
I don't want her to die but I don't want her to go on too long like this it's heartbreaking. We are all here though. Taking it in turns to sit with her and chat.

This is a very special time. In the future you will look back at it and get comfort from it. You will realise how blessed you have been to be able to be there with, and for your Mum.
Thinking of you and your lived ones

NooNakedJacuzziness · 23/10/2026 09:24

I have to say that Mumsnet were an absolute godsend the last few days and hours of my Dad’s life. There was always someone there in the early hours of the morning to offer support, so post when you need to OP x

AlloftheTime · 25/10/2026 06:54

@ILoveaSunflower
sending you hugs and the strength you need to navigate this time.

Placeoftides · 28/10/2026 21:11

I've done this with my dad. Sending you so much love @ILoveaSunflower don't be afraid to ask for more medication for your mum if she's distressed, it took me a while to realise my dad wiggling his toes when nearly unconscious was a sign he was in pain

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