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Mum pancreatic cancer, on syringe driver how long?

117 replies

ILoveaSunflower · 15/10/2026 22:46

Looking for a hand hold and some advice.
Mum was diagnosed 8 weeks ago with stage 4 pancreatic cancer that has metastasized to the liver.
Her decline has been shockingly rapid and she is now on a hospital bed at home with a syringe driver for the pain.
I have been spending as much time as I can over there but also trying to work ful time with two kids.
I'm wondering if she's nearing the end and I should get signed off to be there with her everyday? Or if I've got longer?

OP posts:
dontsayltb · 21/10/2026 21:33

Couldn't read and run. No-one can tell you how long your Mum has exactly. But my lovely Dad only had a few days left after he was put on the syringe driver last year. The last three days he was completely unconscious, and we thought it was imminent. But he went just after 3am on the third day. Others in the hospital told me that this is very common. I don't know why. Sending you lots of love xx

Flannelfeet · 21/10/2026 21:46

Oh god love you 🥺 I lot my mum to pancreatic cancer 8 years ago. I truly know how painful you feel right now. Thinking about you with much love. ❤️💔💐

FlotsamJetsamsam · 21/10/2026 21:48

I am so, so sorry you're going through this. I know how incredibly difficult this is, there are no words to describe it. You are doing a brave and beautiful thing being there with her.

I can't remember exactly how long it was after my Mum's breathing changed significantly (became laboured and noisy) that she passed, but I don't think it was very long. Probably less than 24 hours. I think it can vary. I know it's really hard to hear but most likely she's unaware of it. It sounds like she's comfortable which is a blessing.

I'll be thinking of you. Sending love and strength from a stranger. Take care of yourself.

BitterTits · 21/10/2026 21:51

Hi OP. At this point with my DM is was a few hours. I'm afraid you will remember her like this for a long time, so try to look at plenty of photos and videos if you have them. Sadly I don't have many.

ExperiencedTeacher · 21/10/2026 21:52

Our experience with pancreatic cancer was incredibly quick too. Under 2 months from diagnosis. She didn’t leave hospital.

Im so sorry you’re going through this. It won’t be long now. Say to her what you need to. My favourite memory from the end was our little sleepover talking about our favourite memories. She couldn’t respond anymore but I know she’d have loved it. xxx

Offredismysister · 21/10/2026 21:52

It was 36 hours for my loved one. There were 4 of us there on rotation & we’d all gone out of the room into the kitchen for a cup of tea. They died alone while we were gone.

ExperiencedTeacher · 21/10/2026 21:54

Offredismysister · 21/10/2026 21:52

It was 36 hours for my loved one. There were 4 of us there on rotation & we’d all gone out of the room into the kitchen for a cup of tea. They died alone while we were gone.

It was the same for my loved one. There was a 30 minute gap in people being there. That’s when she went.

AlloftheTime · 21/10/2026 21:57

Sounds as if it won’t be long now. Please look after yourself during this time. Do talk to your mum, hold her hand or do anything you might have done in the previous few days.

🌟

madameimadam · 21/10/2026 22:00

I really am sorry @ILoveaSunflower

From experience, once their breathing changes, it’s not long. For my mum, I felt a shift in her and just knew she hadn’t got long. She died a few hours after I felt the shift. Same with my dad.

Keep talking to her. They always say that hearing is the sense that stays until the end so she can hear you.

It’s the hardest, saddest thing I’ve done but in a funny way, it also felt like a privilege. My parents did so much for me and I knew there was no question that I would be there for them at their passing.

i wish you strength and love OP. I’m so sorry xx

NooNakedJacuzziness · 21/10/2026 22:00

My dad died from this too - his breath was a bit laboured and noisy towards the end but went soft and quiet just before he went. Sorry you’re going through this too OP xx

WeMeetInFairIthilien · 21/10/2026 22:12

I am so, so sorry you are going through this.

May your DMum pass gently.

Many of us have walked this path. Tonight, we walk alongside you.

Courage.

LilacMeadows123 · 21/10/2026 22:21

I'm so sorry you're going through this.
My mum passed a few hours after how you've described. It too was very sudden and rapid deterioration. Completely traumatic to lose someone so quickly.
Such a good thing you took the time off and are able to be with your mum even though it's heartbreaking. Thinking of you x

Jopo12 · 21/10/2026 22:41

My dad died of pancreatic cancer 3 years ago. The big difference between that and other types is that the end for pancreatic is like a cliff edge, not long and slow.

From your description, it sounds like she's going to go very soon, possibly just a day or 2, so please be with her as much as you can.

I'm so sorry for you, this is awful thing to go through. Make the most of the little time you have .

WimbyAce · 21/10/2026 22:41

So sorry OP, best wishes to you and your family xx

OctoberUsername · 21/10/2026 22:47

My dad was like this for 10 days at EOL. I’m so sorry you’re going through this.

SuperGinger · 21/10/2026 22:47

Lots of special hugs to you. Xxx

runnerducky · 21/10/2026 22:55

I’m so sorry, OP.

For my mum, this was the final hours. Her breathing started to rattle, which they said was due to secretions and she wasn’t in any distress. Her breathing then suddenly got very quiet and with longer pauses between breaths. She let a breath out, and didn’t take a breath in for about 30 seconds. Then one last breath that was let out and then no more breaths.

I’ve posted this before but I found some of the ideas within immensely helpful when my mum died, about taking the time to be present in the moment. I hope it helps you when the time comes.

When someone dies, the first thing to do is nothing. Don't run out and call the nurse. Don't pick up the phone. Take a deep breath and be present to the magnitude of the moment.

There's a grace to being at the bedside of someone you love as they make their transition out of this world. At the moment they take their last breath, there's an incredible sacredness in the space. The veil between the worlds opens.

We're so unprepared and untrained in how to deal with death that sometimes a kind of panic response kicks in. "They're dead!"

We knew they were going to die, so their being dead is not a surprise. It's not a problem to be solved. It's very sad, but it's not cause to panic.

If anything, their death is cause to take a deep breath, to stop, and be really present to what's happening. If you're at home, maybe put on the kettle and make a cup of tea.

Sit at the bedside and just be present to the experience in the room. What's happening for you? What might be happening for them? What other presences are here that might be supporting them on their way? Tune into all the beauty and magic.

Pausing gives your soul a chance to adjust, because no matter how prepared we are, a death is still a shock. If we kick right into "do" mode, and call 911, or call the hospice, we never get a chance to absorb the enormity of the event.

Give yourself five minutes or 10 minutes, or 15 minutes just to be. You'll never get that time back again if you don't take it now.

After that, do the smallest thing you can. Call the one person who needs to be called. Engage whatever systems need to be engaged, but engage them at the very most minimal level. Move really, really, really, slowly, because this is a period where it's easy for body and soul to get separated.

Our bodies can gallop forwards, but sometimes our souls haven't caught up. If you have an opportunity to be quiet and be present, take it. Accept and acclimatize and adjust to what's happening. Then, as the train starts rolling, and all the things that happen after a death kick in, you'll be better prepared

You won't get a chance to catch your breath later on. You need to do it now.

Being present in the moments after death is an incredible gift to yourself, it's a gift to the people you're with, and it's a gift to the person who's just died. They're just a hair's breath away. They're just starting their new journey in the world without a body. If you keep a calm space around their body, and in the room, they're launched in a more beautiful way. It's a service to both sides of the veil.

Floppyearedlab · 21/10/2026 23:02

ILoveaSunflower · 21/10/2026 21:18

She's at home so just us monitoring but has nurses and carers visiting. She's been unresponsive since this morning, no more wake ups in pain but no communication either.
Her breathing has gone very laboured and she is making noise on the out breath. It's heartbreaking, I'm so sorry if anyone else has gone through this.
Can anyone say how long this phase lasts?

It is honestly horrible OP. My lovely gran was the same. She died about 3 days after the stage you are at now (tough old ox was resisting the medication on the syringe driver - she wasn’t going anywhere without a fight).

you have done entirely the right thing. Forget work and what the kids are doing. Someone else can sort that for now. You just be with your mum. And take care of yourself.

TubeScreamer · 21/10/2026 23:11

So sorry you are going through this. It sounds like the end is very soon, I’m afraid.

Take care.

INeedAnotherAlibi · 21/10/2026 23:19

IME she’s probably in her late 2-3 days. I would hope she’ll start to be more settled. She won’t feel hunger or thirst. You don’t as the body shuts down. She can have mouth care and sips if she’s up to it but don’t worry that she’ll feel thirsty. Do make sure you’re drinking though!
It’s something I used to do a lot (in a different field now) but one thing I’d always say to relatives is, if you’re leaving, say goodbye, go and take some time for yourself. Just don’t be surprised if they slip away while you’re gone. I felt like most people went ‘I’ll go now while no-one is looking’. Like they don’t want to make a show of it. Happened more times than I could count.
Lots of love 💐

JackandVictor · 21/10/2026 23:19

So sorry, I went through this with my mum last year, also early 70s, also pancreatic. She was like this for two or three days (I lost all sense of time,) before she died. I am so sorry you are going through this too.

nighttimemusings · 21/10/2026 23:22

Sending strength, hoping for a peaceful passing for your Mum

Rainbowlou0001 · 21/10/2026 23:41

I wish I didn’t have to send you a reply as it’s so devastating to see this for our loved ones.
But last year my brother was given a syringe driver and his feeding tube removed on the Thursday and he passed away on the Saturday:
I’m so sorry you are going through this. Sending hugs x

humptydumptyfelloff · 21/10/2026 23:52

I’m sending strength to you and praying for a calm
peaceful goodbye for your lovely mum.

❤️❤️❤️

Waitingfordoggo · 22/10/2026 00:08

That’s absolutely beautiful @runnerducky, thanks so much for sharing.

When my parents died, my DB and I were present both times. We sat with them for a little while afterwards before going to tell a nurse. We talked to them, and about them. We sat and looked at them and held their hands and stroked their faces. There was something in those moments that needed to be treasured, if that doesn’t sound like an odd choice of word- maybe I mean valued, or given due reverence.

I look back on it as an enormous privilege to have been present for their journeys out- the opposite side of the coin to their being present when DB and I made our journeys in, if that makes sense. The full circle.