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Life-limiting illness

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Stage4 pancreatic

96 replies

AnotherGreatYearfck · 28/02/2026 17:45

My wonderful, gentle, DF was diagnosed this week. He’s 83. We are waiting for a date for his hospital appointment. What will happen in it? Do we have a chance to ask questions? If they don’t offer treatment, can we insist on it?
I’m feeling exhausted already, but need to be there for dad and mum.

OP posts:
Lorddenning1 · 16/04/2026 06:08

Sorry you are going through this, it’s so tough to watch them go, I was like you I didn’t want him to prolong the pain and suffer.
we found out his cancer had returned in the April, liver cancer and secondary lung. He was ok for a couple of weeks but then went down hill very fast.
Friday he walked to the chip shop, Saturday struggled to walk from room to room, Sunday he took to his bed and stopped eating, and he died on the Thursday. He was in and out of consciousness from the Monday.
im glad it took him quickly, he didn’t deserve it.

Londonnight · 16/04/2026 06:21

I'm really sorry to hear this. My really good friend died from this a few years ago. For her it was very quick --- 3 months from diagnoses.
Some people last longer, but you can go downhill very fast.

She had Macmillan nurses come in to support and advise.

Wishing you all the best for you and your family.

NooNakedJacuzziness · 16/04/2026 10:37

So sorry to hear this OP. I’d go to him asap, you won’t regret it. My poor Dad died from it nearly two years ago just 2 weeks after being diagnosed, it can be so devastatingly quick, although looking back I’m so glad he didn’t suffer for months. Take care x

DeftGoldHedgehog · 16/04/2026 10:47

My mum had it aged 85 and had palliative chemo on the advice of the oncologist and nurses, which initially seemed to help with the symptoms, but eventually the chemo seemed to make things worse, she was too weak for it, ended up in hospital for a week (which made her really fed up), came out and had some kind of stroke and never really regained consciousness. Even in hospital she hadn't been herself at all, I wonder if she had a mini stroke before/as she went in, but I'm glad we could have her with us at home where she died peacefully, this was just over five months after diagnosis. The local hospice charity were really helpful and helped to arrange the end of life palliative care at home. She was never in any pain with the cancer throughout after diagnosis though - Oramorph controlled it well.

tsmainsqueeze · 16/04/2026 19:26

TalulahJP · 15/04/2026 21:36

there’s no need for pain. the minute it starts get on the phone and get help. nobody should suffer.

my relative had various painkillers and then a syringe driver which was really good. didnt poop for nearly a fortnight. i’d have gotten laxatives had i known earlier.

macmillan are available 24 hours a day, so when required, don’t worry about what the time is. dont wait when there’s pain just phone for help.

Sadly this was not our experience with either district or macmillan and my relative was in indescribable pain until they eventually came despite my phone calls .
I agree there is no need for pain but the reality is that sometimes when the patient is at home care and pain relief is inconsistent until they are in a hospice.
I work with animals and we do a much better job with pain control than i witnessed with a human being.

Flannelfeet · 16/04/2026 19:48

I am so,so sorry to read this and my thoughts go out to you and your family. I lost my mum to this 8 years ago and know first hand how you are feeling. Stay strong 💐 ❤️

TheJaqual · 16/04/2026 20:01

im so glad you’re going. I’ll be thinking of you all

ArtfulDoddger · 16/04/2026 20:23

My step father was diagnosed with pancreatic cancer at the beginning of July, he passed 5 weeks later. Up until diagnosis he appeared fit & healthy albeit with noticeable weight loss. I’m sorry you are going through this and my thoughts are with you x

TheBroonOneAndTheWhiteOne · 16/04/2026 21:49

AnotherGreatYearfck · 15/04/2026 20:53

Thank you @Cassandra1982. I have decided to go up to my parents this weekend and get things in place. I think he needs the hospice service now and not chemo.
Thank you everyone for your kind words and input. I had already, kind of, decided what to do, but you have confirmed it

Please go immediately.

AnotherGreatYearfck · 17/04/2026 19:12

@Crwysmam I'm so sorry for your loss. What a truly awful illness it is x

OP posts:
AnotherGreatYearfck · 17/04/2026 19:21

Thank you for all of your posts. It’s so sad that a lot of you have been in a similar situation. I’m sorry for swearing and getting quite arsey on my post a couple of days ago. The stress is getting to me.
Dad had his first chemo today. I wasn’t there but my sibling reported back and said he was amazed that they went ahead with it as Dad is so weak. I’m going up tomorrow x

OP posts:
DistractMe · 17/04/2026 19:26

I am so sorry this is happening to you and your family and to your lovely Dad.

My brother died of pancreatic cancer in 2014 and lasted five months from diagnosis to death.

Every case is different, but from the recent deterioration you describe, he may not have much longer now. I would spend as much time with him, and supporting your Mum as you are able.

xx

DistractMe · 17/04/2026 19:29

Also, you have our permission to be as sweary and arsey as you like.

Fuck cancer😡

TheBroonOneAndTheWhiteOne · 17/04/2026 19:33

I'm really surprised they gave him chemotherapy at this point.

AnotherGreatYearfck · 17/04/2026 19:51

TheBroonOneAndTheWhiteOne · 17/04/2026 19:33

I'm really surprised they gave him chemotherapy at this point.

So were we. Both mum and my siblings have been keeping me updated and I’m amazed that the hospital thought he was well enough to go ahead. My brother commented that everyone else in the treatment centre looked in better condition than dad. We shall see how he copes over the next few days. He’s stopped eating because he’s constipated, but the unit have given him some drugs to help. My poor mum is exhausted.

OP posts:
Crwysmam · 19/04/2026 11:59

AnotherGreatYearfck · 17/04/2026 19:12

@Crwysmam I'm so sorry for your loss. What a truly awful illness it is x

It is and hopefully yourDF recieves the same care my DSis had. It wasn’t the best initially but once diagnosed and apparent that it was terminal we couldn’t fault the process.
Concentrate on the time you have rather than focussing on the time you want.

Crwysmam · 19/04/2026 12:08

PS with chemo it’s often given palliatively to help with the symptoms. It’s a balancing act though, he can withdraw at any stage. It’s about quality of life over quantity.

AnotherGreatYearfck · 20/04/2026 10:04

Well, he had his chemo and had a bad reaction to it. He is now in hospital. I’m up here with my mum. It’s not looking good.

OP posts:
corblimeyguvnr · 20/04/2026 11:30

Sending best wishes and strength to you and your Mum.

Ironmanssparesuit · 20/04/2026 12:06

Sorry to hear that OP. Best wishes to you and your family

MonkeyMonkeyUnderpants1 · 20/04/2026 12:11

I'm really sorry OP. My DF died from this cancer in 2024. He was incredibly fit at aged 70. He was a bit stronger than your dad when he had his first chemo session but then deteriorated very quickly. Once he struggled to eat and walk, I'd say he lasted about 4 weeks. He was very heavily medicated for most of that. He spent the last 10 days in hospice which was a massive relief as he didn't feel safe at home. The week in hospice he was basically unconscious. I basically spent the last month with him, going back to my home for maybe 1 or 2 nights. I was lucky to have a very supportive employer who let me work as and when I wanted to from my parents house which I did when he was sleeping (most of the day). Towards the end, he probably won't be able to speak but he'll be able to hear so just keep talking.

stardrops1 · 20/04/2026 17:36

I’m really sorry, OP. My father died and it is a big comfort that we could be with him in his final days and tell him how much we loved him. It’s great that you are together. Wishing you all the best for the days ahead. You aren’t alone.

TheBroonOneAndTheWhiteOne · 20/04/2026 17:50

Oh OP that's very hard for you and your family.

I hope his end is peaceful and pain-free.

ForgotWhatIDidYesterday · 20/04/2026 18:29

Really sorry to hear how poorly your Dad is. My Mum has just had a similar diagnosis and I know how devastating it is.

Blueskies3 · 26/04/2026 11:28

I hope you are ok, OP. My Dad is in the hospital too after immunotherapy side effects. I’m feeling quite scared and worried about it all. Just wanted to say you are not alone.