Hand hold - DH likely to die in next few days

[Bahemoth]

My DH went to hospital a month ago with seizures that wouldn’t stop. He was resistant to all medication so they had to put him in an induced coma on ICU to try and stop them and reduce swelling on the brain. This last option hadn’t worked, as they don’t know the underlying cause for the seizures and they’ve now told me he’s unlikely to survive.

We have two young children and I’m not sure how I can face life without him or how I would break the news to DS9 when the time comes. My other child is 4. I’m in bits, he’s only 39 and was fit and healthy before this.

Another one thinking of you and apart from Winston's Wish, there's an incredible charity called Grief Encounter which specifically supports children with the loss of a parent. My heart just goes out to you all.

So sorry to hear this. I lost my mum when I was a child and honestly I didn't need too much too soon. Try and just get through each minute, each morning, each day and be kind to yourself. I promise you will be ok. My loss and I also lost my brother - has not stopped me thriving in life. You and your children will have brighter times x

I pray you get your miracle x

I’m so sorry. Sometimes despite every sort of treatment, we don’t know what causes status epilepticus like this. I know it’s zero consolation. Life is incredibly cruel.

The ICU your husband is on should provide psychological support either internally or externally or both.

Praying for a miracle for your husband and healing for his body in Jesus name Amen . Praying for strength for you, the kids and the whole family too

This is a truly terrible time @Bahemoth and my thoughts are with you. It may not seem the time to ask, but what @FlyingRoman has said is something you may not have thought of but which might later bring comfort to you all. Ask for help from others, too, especially from good friends and good neighbours if you have them. They would not want you to struggle through this. We are all here for you.

Nothing to add, just to say I'm sorry.

Praying for you and your DH, OP. My own DH died suddenly when he was 42 – he was also in ICU for a while. Our daughter was 2. All I can tell you is that whatever happens, it will get easier, I promise. DD is 6 now and we have a good life – very different to the one I had planned and we miss DH every day – but we are well and happy and living. The resilience of the human spirit is endlessly surprising. I never thought I could carry on without DH, let alone be happy – but somehow, despite still grieving him intensely, I have found a way to live joyfully alongside my grief.

I just want to say I'm sorry and sending you a virtual hug. It's a horrible situation for you all.

Oh gosh, what a horribly sad thing. Sending you love and hugs OP. 😘

So a craniotomy just to release the pressure isn't on the table at all?

I am so glad the ICU team have another treatment idea. It sounds like he is in excellent hands and the team are going to work hard to give him the best chance to pull through. Although I'm not religious I'll also be praying for him. 🌻

so sorry the hear this and hope you find the strength to cope xx

Can you post about his condition on FB groups inc abroad and see if anyone else has encountered a similar condition? You never know, but someone might be able to identify what is going on. There is a TV program based in the states where they put adverts in papers to get suggestions for unidentifiable conditions. A long shot, I know. My husband ended up in a coma for a while on life support when we had a baby and small child. Thankfully he pulled through in the end, but you have my upmost sympathy.

I am so very, very sorry this is happening to your family. I can't even imagine how hard this must be. I don't know if you pray, but I'll be sending some up for of all of you tonight. A lot of us are in other time zones; someone somewhere will be holding your hand at every moment.❤

I have no words of wisdom but just wanted to say that I'm so so sorry that you're going through this. I'll be praying for your husband xx

So sorry you are facing this. I have everything crossed the immunotherapy brings improvement.

Can you do a cast of your children holding his hand, before he goes.

https://edinburghcasting.com/?gad_source=1&gbraid=0AAAAADGKZuyT9LCk7uPt4QgZVK11SYJh9&gclid=EAIaIQobChMI3PDq-LuuhwMV4ZxQBh1owAKLEAAYASAAEgLSA_D_BwE

I think Amazon do similar and could arrive next day?

Praying for you and your DH, OP, that the immune therapy works.

I'm sending you a prayer too OP. x

Aww bless you, I'm heartbroken for you and your family.
If anyone offers you help take it and take one day at a time and if you need it ask the dr for counselling, so you can let it all out, don't keep it in. X

So sorry OP this is utterly heartbreaking, sending all the luck and hope in the world that something works. 🙏 🩵

I am so sorry, OP. Lean on your family. You are now the important person because you must - if the latest therapy does not work - carry on and provide a home for your DCs and yours is the greatest loss and the greatest grief (others have their loved ones with them to support them, but you are losing the person you love most). Let others take the weight for you, both your sister and your DH's family. Just be with DH and with DCs as much as possible. Make sure you eat and sleep, because the days to come may be short on time. Do not try making any plans but live from day to day. Remember the last sense to go is hearing,talk to DH. Hold his hand if you can. Let him know you are there. No-one is more important to him than you, no-one is more important than you.

I am so sorry to read this. I hope for a miracle for you all 💐

WAY are fantastic @Bahemoth I have been a member since my husband died suddenly aged 50 of a brain haemorrhage. I am thinking of you 💐