Hand hold - DH likely to die in next few days

[Bahemoth]

My DH went to hospital a month ago with seizures that wouldn’t stop. He was resistant to all medication so they had to put him in an induced coma on ICU to try and stop them and reduce swelling on the brain. This last option hadn’t worked, as they don’t know the underlying cause for the seizures and they’ve now told me he’s unlikely to survive.

We have two young children and I’m not sure how I can face life without him or how I would break the news to DS9 when the time comes. My other child is 4. I’m in bits, he’s only 39 and was fit and healthy before this.

Aww @Bahemoth I cannot imagine the emotions you’ve been going through but everything crossed for more good news going forwards x

So pleased he is awake. Hope recovery continues. Good luck to you both.

that sounds such a relief for you op

Wonderful update OP, hope his recovery continues

Oh my gosh @Bahemoth this is such amazing news. I'm shedding tears of joy and relief for you and yours. Please keep updating us. Since my prayers to the gods seemed to have worked😉😀, I'm not stopping now till he's out of those woods. Onwards and upwards!

What fantastic news OP. So very, very happy for you.

So happy for you all!!

So pleased for you all 💐

Fantastic news, so happy for you that there is this improvement ❤️

So so happy for you! As I’m sure everyone here is, it’s amazing news!

Wonderful news, sending lots of positive vibes to you.

@Bahemoth So happy to read your update! He is awake and talking--just wonderful, wonderful news! Your DH had a lot of people pulling for him!

Wonderful news!

Are you taking care of yourself, love?

While you're taking care of everyone else, who's looking after you? I hope someone is doing that for you, and I pray that things will continue to improve.❤

Hoping things are still improving OP. You remain in our thoughts x

Thinking and praying for you daily

So hope things have continued to improve for you OP. Sending love and strength.

thinking of you still x

How are things OP?

Still checking back OP. How are things going?

Still thinking of you.

Hi all - I just wanted to update you all on DH after all your kind words. He’s doing really well! He’s now out of ICU and on a ward. He still doesn’t have a diagnosis but the docs are pretty convinced it’s mitochondrial disease even though his blood tests and muscle biopsy for it were both negative. He’s also having his DNA genome tested (or something like that to check for epilepsy and GLUT1 mutations). All other tests, scans etc have all been negative.

He can’t walk yet and struggles to use his left side but he’s mentally ok (a few cognitive issues) and is making amazing progress each day. He’s finding the hospital a challenge as he’s been there almost 3 months now so is quite depressed but they’re hoping to move him to a brain rehab facility soon which is just near our house. I think this would really help him progress a lot faster and help him mentally.

So thanks again for all your advice and help. It really helped get me through a truly awful time. And if he gets a diagnosis, I’ll post an update here as I know lots of you had ideas on what it may be. xx

Thanks for posting an update. That's really good news.

So happy to hear this OP. Sorry your DH is struggling but wow what a miracle from your early posts that he is ‘back with you.’ Thoughts to all of you for a proper diagnosis and continued recovery for DH. xx

Really pleased to hear he is making progress and I hope it continues. Let's hope the doctors' assessment is right so that he can get the appropriate treatment.