Hand hold - DH likely to die in next few days

[Bahemoth]

My DH went to hospital a month ago with seizures that wouldn’t stop. He was resistant to all medication so they had to put him in an induced coma on ICU to try and stop them and reduce swelling on the brain. This last option hadn’t worked, as they don’t know the underlying cause for the seizures and they’ve now told me he’s unlikely to survive.

We have two young children and I’m not sure how I can face life without him or how I would break the news to DS9 when the time comes. My other child is 4. I’m in bits, he’s only 39 and was fit and healthy before this.

Just a hand hold and sending you the strength you need to keep your chin up. x

Checking back in so often with this thread. Still thinking of you all OP xx

Just checking in to say my thoughts are with you. You're one of the first families I think about when I wake up. Still holding your hand x

Also sending you best wishes.

Sending my best wishes to you and DH. Sincerely hope things are improving 🙏

@Bahemoth

Still praying and hoping for all of you. I hope someone is taking care of you. 🙏❤

Thinking of you.

I just wanted to give you all an update on DH. They think he’s now getting better which is fantastic news and I can’t tell you how relieved we all are!

He’s woken up and still in ICU but talking and his memory seems ok. They still don’t really know what’s wrong with him, most the team seem to think he has a mitochondrial disease whilst a couple of others think he has auto immune encephalitis. They’re going to do a muscle biopsy on his leg to see if it is mitochondrial. He’s also had his immunotherapy and is now on a high dose of steroids.

His hand and arm are still twitching a bit but now they think the seizures are a type of epilepsy called EPC (s subset of epilepsy that gives continuous seizures) which can be caused by mitochondrial or encephalitis and is less dangerous than other types of epilepsy. So they don’t think his brain will continue to swell but they’ll do an MRI next week to check.

So amazing he’s improving after a very close call but unfortunately if it is mitochondrial the outlook isn’t great but he should be able to have some sort of life I think.

overall, they think he’s getting better but still remains a bit of a medical mystery.

Fantastic news that he is getting better OP, and here's hoping it isn't mitochondrial and instead is something more easily treatable.

This is fantastic news!! Thanks for the update, I've been thinking of you. Best wishes to your husband for a speedy recovery 🍇 xx

So glad to hear this OP. I was thinking about you all yesterday. May he continue to recover well.

Amazing news . Sending hugs and positive thoughts to you and your family 💕

This is fantastic news, I'm so pleased for you and your family.

Such great news!

That's amazing news OP. I am keeping you all in my thoughts

So happy for you, sending lots of positive thoughts you and your husbands way.🤗

Wow, that's amazing news. Can't imagine the relief you must be feeling x

Wonderful news, continued best wishes OP.

Wow, this is such good news. Sending big hugs to you.

Gosh what amazing news! So so pleased OP xx

Amazing news OP, have been thinking about you over the past few days. I hope your husband continues to go from strength to strength.

Wonderful news. Hugs to you as you've been through the wringer.

Great news OP. Interesting to see that autoimmune encephalitis is now considered a possibility. Have they done a lumbar puncture to check for any antibodies that could be involved? It may not throw up anything, which was the case with my DH, but it could help to narrow it down. If it does turn out to be AE, I highly recommend getting in touch with Encephalitis International (aka Encephalitis Society), who are a mine of information and support for sufferers and their families/carers.

That is great news to date @Bahemoth. Been thinking about you. Praying the news continues to be good for him and sending hugs

That is amazing news. I am so so pleased for you. This has brought a tear to my eye. Big hugs and please keep us updated with his progress. ❤️