Hand hold - DH likely to die in next few days

[Bahemoth]

My DH went to hospital a month ago with seizures that wouldn’t stop. He was resistant to all medication so they had to put him in an induced coma on ICU to try and stop them and reduce swelling on the brain. This last option hadn’t worked, as they don’t know the underlying cause for the seizures and they’ve now told me he’s unlikely to survive.

We have two young children and I’m not sure how I can face life without him or how I would break the news to DS9 when the time comes. My other child is 4. I’m in bits, he’s only 39 and was fit and healthy before this.

I’m so sorry to read this OP. What an awful thing to be going through. I really hope you have a successful outcome from the treatment 💕.

Have you considered getting a second opinion re the encephalitis? One thing I have discovered since my DH had it is there is a lot of ignorance around this disease, even among the medical professionals.

Just sending you all the luck OP, miracles do happen.

So sorry OP. Hope the new treatment works.

Sending you positive vibes and praying that the new treatment works.

Sending you so much love OP so sorry your going through this xxx

I am so sorry you and your family are going through this. I hope this new therapy helps your DH. Sending positive thoughts, strength and a hand-hold to you all.💓🙏

For all its’ ups and downs MN really is a wonderful place when it matters most. So much genuine kindness and support here. Sending you a handhold and all the good vibes I can OP. Let us know how things are when you can. We’re all here for you.

I’m so sorry to hear this, you’re doing brilliantly x

So sorry to hear this, will be thinking of you and virtual hand holding tight. I hope the new therapy will work for your DH x

A quick google on the treatment and this came up.

According to the Mayo Clinic, 81% of patients with suspected autoimmune epilepsy who were treated with immunotherapy experienced clinical improvement, and 67% became seizure free.

Obviously you don't know whether it is autoimmune and your DHs condition does sound very serious. However, don't give up hope OP. Could you reach out to any other experts to see if they have any further suggestions? Clinicians do often have slightly different knowledge and experiences, so it's always worth trying. Xx

Oh good this is awful. Thinking of you and your children

Thinking of you and your kids op. I hope the plasma treatment works.

Am rooting for you OP.
very tight hand hold for you right now.

Sending you love and strength OP. Fingers crossed this treatment works. ❤️

Hopefully your dh pulls through,I understand the like a bad dream.witnessing all that goes on whilst in ICU with a loved one is an unreal experience at times.wishing you and your family all the best.

So sorry to hear this, you must be devastated.
I lost my husband 9 years ago, albeit he wasn't as young as your husband, and when the time came I was in denial and now cannot remember those early days. The only advice I can offer is to take help whenever offered, your young children will be confused and need lots of love and support. Let people cook for you, (I forgot to eat) and don't think you can do this alone and try to be all things to everyone around you who are also grieving. Think only about getting through 1 day at a time. I still grieve for the times we missed and definitely feel robbed but now I can look back with fondness and smile about the many good times we had.
Sorry I can't offer more and hope you find strength. Life can be so cruel x

Thinking of you and your DH 💜, praying for a miracle.

I'm so sorry love 🥲

Someone close to me has had anti-NMDA receptor encephalitis several times. Treated with IVIG alongside steroids and other meds to prevent seizures. It's a relatively newly recognised condition (think first ever diagnosed case was 2007). The IVIG is key treatment and has turned around an episode more than once for the person I know.

Thinking of you OP.

So sorry to hear this. ❤️

So sorry to hear about your DH and thinking of you all .

So sorry, OP. Wishing you comfort and strength.

A hand hold and hug from me. Sending wishes and hope that you get that miracle.🌸🌈

I'm so sorry you're all going through this. How awful. I hope you can take one day at a time. 💐