Stage 4 cancer... ? incurable? Thread #2 is here. In memory of our inspiring, lovely mowly77

[Tilllly]

New thread
All welcome, reluctantly

@TwigTheWonderKid I'm glad your son is ok.
Smudge looks like he rules the roost lol.

@WrenNatsworthy I'm happy things seem a bit more positive for you now.

@Tilllly I'm sorry you are going through such a difficult time.
I'm just rubbish at knowing what to say but I'm sending you positive vibes.

I got home yesterday from my few days away.
I spent my time going for gentle walks, eating lovely food and visiting landmarks.
I did however get a bit brave and decided to join my son's on a GoApe course thing in the woods although it was a smaller version & they had the choice to do the low course only which I opted for as I don't like heights.
So I found myself in a helmet & harness zip lining through the woods and swinging through the trees.
I did need help in some places as because of my PICC line I was weight bearing on just one arm but I completed the course and I'm proud of myself.
I'm sure my Oncologist wouldn't approve but oh well I had fun.

@Tilllly Oh sweetie. All the hugs. I hope you have many months / years despite the nasty effusion.
I kept meaning to try and reply to your post about tiredness but seeing this, no wonder you've been tired.
My Dad and I used to send angels to each other, his favourite was a cartoon of an angel which was just a man with wings playing a brass instrument. I used to draw or find pics to send, or imagine angels of light in lovely colours flying over to him (when there was an ocean between us, but angels don't mind things like that). Anyway, sending you some nice ones in sunrise colours, gold and pink, all filmy and made of light! Hope they don't clash with your decor 👼

@Tilllly I’m so sorry, that must be quite something to get your head around. I know it will come to us all.

I remember mowly posting and it felt calming to me - she kept her sense of humour which you also have. She still has her zest and personality. For me it took a bit of the fear of this stage away.

I'm not frightened, @RedRosesPinkLilies , I'm annoyed
I thought I had 2-3 years, only 4 weeks ago. The pace this has moved at surprised even the oncologist
No one expected all the bone cancer, whilst I was on 2 chemos and immuno
And the all-singing, all dancing sotorasib doesn't seem to be doing much either
And even the antibiotic I've now got, doxycycline, made me sick this morning
Just rude

Oh @Tilllly I'm having a little cry and sending you all the love I can muster. Plus a stern slow down to those wonky cells.

Hope Daisy dog is snuggling you lots.

This is awesome, well done.

Thanks.
I'm paying for it now but I had fun so I'll deal with the pain and tiredness 😀

@Tilllly indeed! This is how I feel - annoyed and robbed!
I thought I’d get at least six months without recurrence - because on a newish wonder drug. But my cancer markers are going up already - so I think recurrence will happen before summer.
My cancer doesn’t have a lot of treatment options if the best one doesn’t work.
It’s really unfair

It is unfair @RedRosesPinkLilies
I feel like a 10 year old saying it's not fair, but it's not fair I did everything right

It's not fair at all.
I struggle with this my mum has pretty much sailed through life health wise with no life changing disability. She has never taken any health advice has lived on a diet of fat,carbs, sugar and takes no exercise.
I have always tried to take care of myself and yet I get cancer after a lifetime of other illnesses. I obviously don't want my mum to suffer, but come on!
@RedRosesPinkLilies (my cancer twin) My markers are also rising but I'm well and my last scan looked clear (my scan still hasn't been reported properly yet, bet that's not happening in the palaces🙄) my oncologist believes you treat the patient not the cancer. Realistically he told me that there will be more chemo soon (ish) It would be nice to get summer done but I feel that I will be in treatment by christmas.
@Tilllly I hope your breathing is easier and I'm sending you 💕x

@Florsilvestredelcampo I did take heart from your oncologist before- thank you so much for reminding me x

@Florsilvestredelcampo I am also touched at you calling me ‘my cancer twin’ - isn’t that ridiculous to find that lovely. We don’t want to be alone x

Was talking to King Charles this morning and he says his friend who is a quantum shaman from the Andes has got a new cure for cancer, something extracted from the scent glands in a jaguar's bottom. All sounded good till he mentioned the tiny pittance of a price tag, £7 billion. I looked in every pocket and under the sofa cushions but came up a bit short. Thought we could have a whip round or a bake sale maybe?

@Tilllly Yes hope your oxygen level is good. Daisy v. cute sat up to sleep

Thank you so much for doing this research. I'm an ex Vegetarian so I can't @LuciaPillson but I'll happily chuck in a tenner?

Calling @Tilllly are you breathing ok love?

@RedRosesPinkLilies and @Florsilvestredelcampo you are ridiculously cute.

I went for a 20 minute walk today. I am so proud!

@WrenNatsworthy Oh apparently no jaguars are harmed, give them a bit of a tickle and they'll happily rub their bottoms on you.

Well done to have walked for so long!

@WrenNatsworthy
No 😕
It's 90% at best and I'm breathless doing anything

Not quite halfway thru 2nd ABs so hopefully they'll make a difference because I just can't do anything without struggling for breath
Seeing oncologist on Thursday tho

It's this fluid on the lung that's worrying me

Bollocks, I'm sorry @Tilllly

My whole body is crossed for anti bs to work, plus that the fluid problem is fixable.

I thought I was on my way out 2 weeks ago and had a mad turnaround so I'm comically ordering you one.
I'm not Noel Edmonds or anything mind.

@WrenNatsworthy I like to think that @RedRosesPinkLilies and I are more grimly determined than cute!

@Florsilvestredelcampo Definitely!!

If this is helpful to know, we can drain fluid off the lung and usually it's a couple of litres, but it can be drained off. Fucking shit though xoxo

Thank you, it is. If it's from the infection, I'm not so worried, if it's the so-called beginning of the end down the lung cancer, that's more frightening.

@LuciaPillson I'll chip in for the erm extract from a Jaguars bottom 😀

Of to see my Oncologist at lunchtime to find out my latest scan results.
I'm feeling very anxious but have no expectations.
We shall see.

@Tilllly hope it's the lesser of two evils for you.
Keeping everything crossed xxx

I gotcha. Thelma and Louise that shit.