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Stage 4 cancer... ? incurable? Thread #2 is here. In memory of our inspiring, lovely mowly77

1000 replies

Tilllly · 29/02/2024 08:45

New thread
All welcome, reluctantly

OP posts:
Thread gallery
26
WrenNatsworthy · 26/03/2024 11:28

Happy Birthday to @LuciaPillson 🥰🥰🥰🥰

@Tilllly Amphetamines?!
I wish I knew. I did buy some supplements a while back that claimed to boost energy. It is a bugger.

The Beatles - When I'm Sixty Four (Official Video)

"When I'm Sixty-Four" is a song by the English rock band The Beatles, written by Paul McCartney (credited to Lennon–McCartney) and released on their 1967 alb...

https://youtu.be/wUDRIC5RSX4?si=OvFCAn97G5kdnXpm

Florsilvestredelcampo · 26/03/2024 16:56

This chap moved into my house today!

Stage 4 cancer... ? incurable? Thread #2 is here.  In memory of our inspiring, lovely mowly77
Florsilvestredelcampo · 26/03/2024 16:57

Do we need thread mascot?

LuciaPillson · 26/03/2024 18:05

@WrenNatsworthy Thank you!!!

So yay! Birthday!!

I got the 'stamp of death' (I think that's what the diagnosis is officially called) put on me in Dec. 2022, got ostomy surgery, started treatment in 2023, reached my 63rd birthday, kept going. Had a stable year, nothing shrank but nothing grew, but more recently have had quite aggressive metastasis and symptoms making me feel my respite was over.

But now, somehow, I have survived another whole year and am 64! All very unexpected and nice. I had a nice shopping outing this morning with a family member and got clothing, food, magazines and some home decor stuff.

At the same time I've been utterly freaked out and emotional because my chemo appts haven't showed up on my schedule. But, I've just phoned in and talked to a nice nurse who said the appts were requested, and she will chase them up. So I hope that works and that Easter doesn't stop me from getting the next one, they are always overbooked so there is competition for the chemo spots.

I feel that the chemo is working as some of my symptoms from the mets have slowed down, so I really want those appts. So frustrating when you can't have everything under your control and have to chase everything up.

TwigTheWonderKid · 26/03/2024 20:31
Happy Cat GIF by Salih Kizilkaya

Happy Birthday @LuciaPillson!!!
Here's a picture of a random cat in a party hat because Sir Smudgington is his ever non-obliging self in the hat department...

LuciaPillson · 26/03/2024 20:52

Thank you @TwigTheWonderKid. Smudge, whether millinerily accoutred or not, is always most welcome, but random party hat cat is awesome. I love the way she/he looks simultaneously interested, confused and suspicious, yet willing to do whatever it takes to keep the party going. I shall raise a glass (well, a Chinese mug with water in it) to party hat cat!

Looks like some chemo appts will come through, not on the usual days but I will take whatever I can get and praise whatever UberCat deity has brought this about.

Also, a fox wearing glasses

TwigTheWonderKid · 26/03/2024 22:33

@LuciaPillson not just a fox wearing glasses, but a fox smiling coyly, wearing glasses!

GoldenDog1 · 27/03/2024 05:45

@LuciaPillson happy belated birthday. 🥳🥳🥳

@Florsilvestredelcampo what is that? 🫣

Florsilvestredelcampo · 27/03/2024 08:13

@GoldenDog1 my son made it at school it's a gargoyle. I'm think it's great but I'm equally disturbed as well.
I think I could market it as some kind of God who cures cancer if you rub his tummy!

ShalommJackie · 27/03/2024 10:22

I've got my stage 1 health meeting in 40 mins. My manager is desperate for me to come back to work but I can't yet. It feels like a tick box!!

Tilllly · 27/03/2024 16:02

How was it @ShalommJackie?

OP posts:
Iaspo · 27/03/2024 17:49

Hi all. Nothing to report here. I’ve been toying with keto diet as it’s supposed to help glioblastoma but realised today I’m just making myself miserable… My name is IASPO and I love sugar and carbs….. Not sure whether to just have what I want (within reason and with a nod to a balances diet) as these b@stard rumours have already taken such a lot from me…

love to all 😍

SewingBees · 27/03/2024 18:29

@Iaspo I reckon life, or whatever is left of it, is for living not dieting. As my waistline will attest.

Iaspo · 27/03/2024 18:54

@SewingBees I like your style and have to agree!! Thanks, just had a few haribo jelly babies who have been giving me the eye all day. Pretended they were the tumours and bit their heads off 😂 don’t worry, I’m not normally a violent person…….

WrenNatsworthy · 27/03/2024 19:28

Iaspo · 27/03/2024 18:54

@SewingBees I like your style and have to agree!! Thanks, just had a few haribo jelly babies who have been giving me the eye all day. Pretended they were the tumours and bit their heads off 😂 don’t worry, I’m not normally a violent person…….

I think that's almost like a visualisation technique @Iaspo .

Tilllly · 27/03/2024 20:43

My oncologist told me to eat what I wanted

#medicaladvice

OP posts:
Tilllly · 27/03/2024 20:46

He also might have said cut down on the gin, but what does he know?

OP posts:
RedRosesPinkLilies · 27/03/2024 20:49

@Iaspo @WrenNatsworthy That made me laugh!

I’m trying to eat healthily, but I like that kind of food anyway. Certainly wouldn’t deny myself a treat… life is too short 🤣

My reason for trying to not put weight on is my stomach will bloat when this cancer recurs (strong chance that is happening currently), and I want to know whether or not that is happening.

We need to enjoy whatever we can at this point. Why would you not? X

ShalommJackie · 27/03/2024 21:18

Tilllly · 27/03/2024 16:02

How was it @ShalommJackie?

It went ok! Told them I'd be unlikely to return until I've had 6 months under my belt so my boss was annoyed but I don't care!

WrenNatsworthy · 29/03/2024 09:41

ShalommJackie · 27/03/2024 21:18

It went ok! Told them I'd be unlikely to return until I've had 6 months under my belt so my boss was annoyed but I don't care!

Good, and so it should be.
How is everyone? I've still not left the house but I am so much better than this time last week.
I'm waiting for the weather to get better so I can go on a short walk. I've reduced my morphine to 10mg from 20mg so I feel a lot less spannered!

TwigTheWonderKid · 29/03/2024 23:33

Hey all. I'm ok symptom and pain wise although I do keep spiking a temperature in the evenings but I feel ok. Everyone here has had a nasty coughy virus and I'm hoping I'm just fighting that off.

DS1 is back from uni. He was a passenger in a car crash on Wednesday night, so that was fun. He wasn't hurt which is obviously great but as a result he thinks it was no big deal. Bring in a crash on the M4.

DS2 has just done a week's work experience and now he's broken up so I expect he'll be holed up in his room playing computer games for the next week or so.

Captain Smudge is being his usual delightful self

Stage 4 cancer... ? incurable? Thread #2 is here.  In memory of our inspiring, lovely mowly77
Tilllly · 30/03/2024 01:20

Could that just be bluster, @TwigTheWonderKid? Hiding that he's actually shook up?

OP posts:
WrenNatsworthy · 30/03/2024 01:28

Hope it's nice having your boys back @TwigTheWonderKid , I'm sorry to hear about the crash, that is my big fear about when DS starts driving. Thank goodness your DS is ok.

Hello lovely Smudge.

I've been laid in bed mainly still but every day I've done something useful. Tomorrow I am invited to a party and I said I will pop in for an hour. It's not a big one, and at a friend's house so I'll be comfortable, but I'm a little apprehensive. I don't want to pick up any bugs, and I don't want to feel overwhelmed. DH will be a bodyguard though and bring me home as soon as I need him to. Sorry you've got temp spiking Twig, is paracetamol helping?

I've been more active on Mumsnet this week than I have been in years. I need to take a day off tomorrow, I'm getting far too involved!

Hello @Tilllly 👋

Tilllly · 30/03/2024 03:48

Went to hospital yesterday
Kept feeling like I couldn't breathe so used the pulse ox thingy and it was 83%

At UTC, they got it up at 93% if I sat still and quiet but as I'm on coamoxiclav already, had nothing else so off to main hospital

Similar with SATs, 95% dropping to 88% with any exertion. Bloods ok. X ray showed infection was worse and a tiny pleural effusion. So doxycycline antibiotics too

Came home. Not quite AMA but they were going to keep me in. For what tho? There wasn't any different treatments
The pleural effusion is bad news I think. Usually the beginning of the end. I had thought when chemo stopped, I would get the summer at least, average survival on sotorasib being 7 months

OP posts:
GoldenDog1 · 30/03/2024 05:10

Florsilvestredelcampo · 27/03/2024 08:13

@GoldenDog1 my son made it at school it's a gargoyle. I'm think it's great but I'm equally disturbed as well.
I think I could market it as some kind of God who cures cancer if you rub his tummy!

Oh I see it's a Gargoyle now and I actually think it's rather sweet 🥰

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