DH has had brain tumour for years and today, for the first time, I'm genuinely scared.

[PlantPhoenix]

We've coped with surgery, coped with life getting back to normal, coped with regrowth, radio /chemo and resultant fatigue, coped with shielding. And now he has new tumours, has started chemo but his mobility is increasingly impaired by a lack of balance. And tonight, having watched him wobble about all weekend, and I think probably getting worse, I've realised that I'm scared. So scared.

Oh OP, I’m so sorry for you and your family. Sending you strength and a 🤗

So very very sorry to read this OP - sending hugs xx

Oh Plant, I feel so sorry for you. This is awful news, especially at this time of year. I lost my dh just over a year ago. He had had a lengthy illness, but his death came when we didn’t expect it. He was in hospital for some tests and I just got a phone call telling me to make my way to the hospital, which was 80 miles away. I think I have some insight to what you are going through.

The only thing I would say is that, I know you won’t feel like celebrating Christmas this year, but try to make it as happy a time as possible, so that you and your dcs will have some loving memories to cherish. 💐

You poor poor thing. What a terrible condition to have to wrestle with. And I bet you're trying to be super upbeat and positive for everyone else too. I hope you're giving yourself some credit for how hard you're working to stay emotionally stable right now. You're doing amazing

I am so sorry to read your thread @PlantPhoenix. I truly hope you are able to have Christmas together and that months so turn into a year or even more .

I’m so sorry to hear this OP. Sending you love.

So sorry OP xx

Sending love and positive thoughts xx

I'm so sorry Plant

I’m very sorry, @PlantPhoenix. A good, very old, friend is in the same position as your DH. It is utterly, utterly shit, and scary and unfair. We have watched him change so much, on and off, for the last two years. Hateful disease.

I'm so sorry, OP. Wishing you peace, comfort and hope for whatever's ahead xxx

So sorry op. I hope you have the most memorable Christmas, take care of yourself xx

Just caught this thread.. OP I'm thinking of you all and wishing you a wonderful Christmas period together.. Big hugs

@PlantPhoenix I never visit this forum but you popped up on Trending. You might notice from my name that I am in the same situation as your DH but it hasn't got me yet.

I want to say from someone in our situation that we love you very much even though we're wobbly and sometimes crabby. In many ways you have to be much stronger because you have so many people relying on you and you have to deal with the practical shit and keep smiling even though you're terrified and feeling so lonely sometimes.

All my love to you and your husband and family and I wish you the very best of Christmases.

So very sorry 💐

As always, the wisdom from @peachgreen is amazing.

I’m so sorry

My friend lost her niece to a brain tumour then end of last year. The symptoms no one realises are horrific.

I'm sorry his is happening to you OP

What information/advice do you have from his specialist?
Is there any support available to you?

Sending you all a handhold @PlantPhoenix

Enormous ((((((((HUGS)))))))))) . It must be so bloody hard. I am sorry you're all going through this.

I'm so sorry.

Sending best wishes.

So sorry OP. I’m in a similar situation, with my son who is slowly dying of vasculitis. The tension, the worry, the constant fear is unbearable. And yet, what can you do but bear it?
Wishing you a gentle, loving, happy Christmas with lots of memories and sweet moments

So very sorry @PlantPhoenix. Clearly you've been and are, amazing. Sending love and strength. x

Very sorry to hear this. There aren't words enough really but sending you lots of love and strength for the time ahead.

I’m so sorry that you’re going through this. Xx

I'm so very sorry that this is happening to you, your DH, your family. It is utter rubbish. Sending the best of wishes for as much of a holiday season as can be made, in the circumstances. That can be just being together, doing nothing. No big demands on yourself or your DH - just be. And treasure these moments.

We'll be here for you when you need us.