Please or to access all these features

Life-limiting illness

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Pulmonary Hypertension

5 replies

Unreasonabubble · 30/04/2021 00:57

Does anyone have this? Or is anyone waiting results?

I am awaiting a date for a chest x-ray.

My main problem has been breathlessness. I cannot talk on the phone without having to have a break to breathe, let along walking around the block. This has been going on for 18 months. GP prescribed Folic Acid tablets.

Has anyone had similar experiences but been diagnosed with something completely else?

OP posts:
Unreasonabubble · 30/04/2021 01:01

Just so I am not drip feeding, I have high blood pressure which I take medication for.

My breathlessness has been out of this World. I cannot hold a conversation, I cannot walk up the stairs and then talk. I had a Mammogram last week and they told me to "hold your breathe" for a minimal amount of time and I could not do it.

OP posts:
gelert5619 · 30/04/2021 01:35

I so feel for you. I've recently been diagnosed with Pulmonary hypertension (40 - 44 should be half of that) Interstitial lung disease and bronchiectasis. Am waiting for angiogram. V breathless & fall asleep very easily during the day. Have CPCP at night. Rather shocked at diagnosis & trying to be pragmatic but acknowledge anxiety. Am at high risk of Pulmonary Embolism, Dr expected to prescribe anti-coagulants, as well as other meds already prescribed. Sending you a hug.

Unreasonabubble · 30/04/2021 03:30

Wow! Thank you for your replay @gelert5619. This is vey new to me and am awaiting all the results.

I present with everything that might be PHA but I await the final conclusions.

I have been breathless for the past two years but because of Covid, I have not been seen by a GP.

It changed today as I felt I had to phone in and say, despite being prescribed folic acid tablets, I felt so unwell and despite of this, they held a vaccine meeting without me.

OP posts:
Unreasonabubble · 30/04/2021 11:35

It changed today as I felt I had to phone in and say, despite being prescribed folic acid tablets, I felt so unwell and despite of this, they held a vaccine meeting without me.

That bit just does not make sense, where was my brain?

OP posts:
Fluffycloudland77 · 10/06/2021 09:17

They think dh has it. We’ve been saying his chest is bad for over a year (he has heart problems) & cardio saw him thinking we’re troublemakers & then after an ecg and echo came back saying “basically you’re right”.

He’s been referred for a right side catheter to confirm, a CT of his chest as he had Hodgkins years ago & a ref to respiratory professor. Dh hasn’t googled so doesn’t realise yet.

One thing I’ve recently learnt is the effect of hyaluronic acid supplements on the joints and soft tissues. It attracts moisture into joints etc but production decreases with age. I’ve been taking them and all my joint discomfort has gone, I don’t make a noise when I get up anymore and after a day at work I’m not tired and achy. Preliminary trials have shown an increase in lung patency ie you can breathe better in copd patients and PH patients.

I’ve ordered some for dh too. I’m on one from amazon, £6 for 2 months supply 200mg a day.

New posts on this thread. Refresh page