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Original poster

Multiple System Atrophy

4 replies

BiscuitBeast · 27/06/2017 18:31

Can anyone share their experiences of caring for someone with this?

I'm feeling helpless and completely out my depth.

Thank you.

OP posts:
Babyroobs · 03/07/2017 23:11

Has your relative or yourself been newly diagnoses with this ? have you got a clinical Nurse specialist whom you can talk to?

cupidsabsolutepsyche · 12/10/2017 10:39

Hi OP, I don't know if you're still here, but I have some experience of MSA, my FIL was diagnosed around 18 months ago.

I can try to answer any questions you have, and in the meantime, offer a handhold to you Flowers

LeastOriginalUsername · 22/11/2017 23:43

I'm sorry for stumbling on this so late ... I have experience of this with my DF; please let me know if I can help in any way

Original poster
BiscuitBeast · 07/12/2017 21:30

Sadly my beautiful mum passed away yesterday morning. It's been a very tough 6 months. She was actually diagnosed as having Progressive Supranuclear Palsy (PSP). Very similar to MSA.

OP posts:
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