Brain hospice timeline?

[veneeroftheweek]

Does anyone know where it's gone? I referred to it when my dad was initially diagnosed with a stage 4 brain tumour. I wanted to refer to it again but it seems to have disappeared. Does anyone know of another one I can refer to?

No one? My dad has lost ability to use his legs and just wants to sleep. I think we must be coming near to the end. Lots of people referenced that timeline. Does anyone happen to have a copy?

www.btbuddies.org.uk/hospice-palliative-care/51-symptom-timeline.html

This one is similar .... So sorry to hear about your dad X

Something like this? www.hospicenet.org/html/preparing_for.html

Thank you both. I will have a look.

Hi there..I actually joined this website just to answer your question. My husband is in end stages right now and I know how important this information is!

Unfortunately the website has been taken down due to lack of funding but you can find the archive of it at this link: <a class="break-all" href="https://web.archive.org/web/20160110152605/www.brainhospice.com/index.html" rel="nofollow" target="_blank">web.archive.org/web/20160110152605/www.brainhospice.com/index.html

For just the symptom timeline section:
<a class="break-all" href="https://web.archive.org/web/20160324070425/www.brainhospice.com/SymptomTimeline.html" rel="nofollow" target="_blank">web.archive.org/web/20160324070425/www.brainhospice.com/SymptomTimeline.html

Sending you and your family warmest thoughts

@wishthen

Thank you so much finding those two links.

My father died from a brain tumor (not GBM) in July 2009.
I found brainhospice.com on the day he died.

Such useful information.

Anyway, because of you work, I have managed to download that entire website.

My plan to put up that website again so that it can help others.

I will update when the website goes live.

Oh I'm so glad to hear you're going to put it back up!
I had planned to do so after my husband passed away (Oct 2016) but, well...rebuilding my life and kids got in the way! I'm glad I was able to be a little help. The brain hospice timeline helped me a great deal...it's not a crystal ball but it's honest and frank and full of great information. I wish you luck and if there's anything I can do to help out...please let me know!!

@wishthen

I am sorry about your husband.

The non-profit archive.org saved the entire brainhospice.com website. How great is that!?!? They accept donations.

I used a simple piece of software written by a guy which allows me to pull all of the files from the archived website. I also sent him a thank you.

Anyway, the website ( except for the guestbook which is hosted by Bravenet.com ) is now live at www.brainhospice.info

The only change is that I removed the link to Diane Phillips' email address. That email address is defunct.
I wish there was a way to contact her.

You can contact me at the email address I put at the top of the home page on the website. If you are interested, I would like to entrust someone else with a zip file of that website's contents. Just to have another safe place.