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Life-limiting illness

Help for son and his siblings

98 replies

Jankwrs1 · 27/10/2015 12:21

My 17 year old son has cancer. We were told this week that it has spread to his lungs. He is likely to decline further treatment as he does not want to prolong our pain. He has a twin brother and slightly older sister. They are all very close.
I don't think he has very long so these are the things I am doing/helping him with: I have put money into his account so that he can choose and order Christmas presents for his sister and brother (he asked me to do this and he wants to choose lasting things like jewellery); I have started a journal that I will give to his twin, describing these last times between them; his sister and I are putting together an album of photos of family and friends- his sister has asked his mates to send her ones of them all together. Hopefully we will be able to show him the album and then his brother can keep it afterwards.

His sister has also discussed the tattoo that the three of them were going to get when my son was first diagnosed. Obviously he will not get it now but her and other brother will (he will get when 18). Something that shows the love between the three of them.

Apart from discussing his funeral wishes, is there anything else at all I can do to help his brother and sister, and him through this. We (including his dad) are all supporting each other. I just don't want to have missed something, please.

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SharonBotts · 28/12/2015 21:19

So, so sorry. He sounded like a really lovely boy. Wishing you strength at this time.

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lunar1 · 28/12/2015 21:25

I'm so sorry for your loss, my thoughts are with you all.

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uhtceare · 28/12/2015 21:28

So very sorry for your loss. I hope you and your lovely family draw some strength from each other. Flowers

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ExasperatedAlmostAlways · 28/12/2015 21:34

Just seen your thread for the first time. I'm so, so sorry for your loss and hope you can all be comforted by all the things you done in preparation. Take care of each other x

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Overrunwithlego · 28/12/2015 21:34

So sorry to hear this.

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Jetcatisback · 28/12/2015 21:35

So very sorry for your loss, I hope you and your family can find some comfort in treasuring your memories Flowers

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timelytess · 28/12/2015 21:35

Flowers I am so sorry.

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Inaminutenow · 28/12/2015 21:37

So so sorry for your loss! Take care x

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ajandjjmum · 28/12/2015 21:56

Sending sympathy - you sound such a beautiful family.

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Mrsj70 · 29/12/2015 15:29

I am so very sorry x

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Penfold007 · 29/12/2015 16:07

I am so very sorry for your loss. You were all so strong Flowers

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FlumptyDumpty · 30/12/2015 00:12

I am so very sorry for your loss. He sounded like such a wonderful boy. I can't imagine the unspeakable pain you must all be suffering, but I'm sending heartfelt sympathy. Flowers

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QuizteamBleakley · 30/12/2015 18:38

I have only just seen this thread. I am so very sorry for your loss. You all sound so wonderful; I hope that the memories you made help you through these dark times. Flowers

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ShesGotLionsInHerHeart · 30/12/2015 22:25

Oh I am so very sorry. Your family sounds just wonderful, you must be so proud of all of your children. Flowers

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Stinkyfeet · 30/12/2015 22:44

I'm sorry for your loss. One day at a time now. Love and strength to you and your family xx

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inlectorecumbit · 30/12/2015 22:54

Flowers l am so sorry fro your loss x

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Hellenbach · 05/01/2016 21:36

Jankwrs1 I cannot imagine how hard this must be for you all. My thoughts are with you. What a hard time x x

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cbigs · 23/05/2016 13:32

Op I came across this by mistake but was so moved by it. How are you all? I have a 17 year old boy and I just crumble inside for you .im so sorry for your loss . Truly . SadFlowers

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Jankwrs1 · 23/05/2016 21:54

Thank you very much cbigs for thinking of us and everyone for your support. I haven't posted here for a while but lurk often. We are a close family trying to muddle through as best as we can and still just getting up, doing a day and going back to bed. Never imagined losing a child. He was the love of my life along with my other two children. No cure for a broken heart, is there? Miss him dreadfully but part of me still believes he is out with friends- five months on. Weird. A coping mechanism I guess.
Watching your child dying in front of you and being powerless to help is horrific. My heart goes out to all suffering loss.

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cbigs · 23/05/2016 23:45

There are just no words really are there. I always marvel at how people carry on in such pain. Incredible strength . All three of your children sound remarkable and a credit to you.
Im glad to hear you are pulling together . I wish I had something of use to offer.
Xx SadFlowers

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Jankwrs1 · 24/05/2016 21:20

Cbigs, you have offered your support and that is enough and very much appreciated. I could never imagine how anyone could continue to function after the death of a child. I guess you just do because you have no choice. If my other two are ok then I'm ok; I will deal with me later.
And so we go on...

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HumphreyCobblers · 24/05/2016 21:28

I am so sorry Jankwrs1

Your son sounded like an amazing person to know - thinking of other people rather than himself XXX

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Jankwrs1 · 24/05/2016 22:03

Thank you so much, Humphrey he was just an ordinary kid who became extraordinary (mother's bias!) in his response to the most dire of illnesses. We have lots to learn from our children. Don't mean to sound pompous but it's true.

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