Onwards and Upwards: Staying stale in the teacup of life

[biscuitsandbandages]

This is my 3rd thread as I go from a shock diagnosis of leukaemia towards what will hopefully be a cure.

Life is shit but I am strong and there will be happy times again.

Thank you everyone for your ongoing suppport x

hi biscuits, been following your post, dp is having chemo, he has a 40hr drip every 3 weeks, just finished 2nd round, his is secondary cancer, had soft tissue sarcoma in his leg last year, had surgery and radio therapy, they did a full scan a week before he finished radio therapy and found it had spread to both lungs, they messed him about told him he had time to wait before having surgey on lungs, when they opened him up they couldn't do anything as they had left it too long. so all they can offer is chemo.
know what you mean about toast that's all he wants to eat but toast is banned in the hospital. a member of the night staff decided to make toast for herself a couple of years ago. she set fire to the kitchen as she put toast in and walked away. now toast is banned on all wards. dp doesn't eat cereals for breakfast so has to starve till lunch, then he can't eat it due to sickness.
dp says the cancer is just a test, fight hard enough and it will be beaten.
you will be home with your little crumbs soon, trying not to laugh at something funny they say to you, getting lots of hugs and snuggles with lots of fun and laughter.

Hi b just a quick check in to see how the neutrophils are doing.

Hi davidsother half. Sorry he's been through the milk! I really hope the chemo is working for him! My life without toast would be blue and sad and I am certainly not going through what you guys are!

Thoughts with you, biscuits.

So great to hear from Others Who Have Put Up A Brave Fight, and won or are winning.

Sorry to hear the hair is taking such a beating. Necessary collateral damage, of course, but must be very upsetting nonetheless. In years to come you'll be sitting in hairdressers' chair having a relaxing morning of pampering and all of this will be A Thing Of The Past.

Keep going, strong lady. Stay stale.

Thoughts with you, biscuits.

So great to hear from Others Who Have Put Up A Brave Fight, and won or are winning.

Sorry to hear the hair is taking such a beating. Necessary collateral damage, of course, but must be very upsetting nonetheless. In years to come you'll be sitting in hairdressers' chair having a relaxing morning of pampering and all of this will be A Thing Of The Past.

Keep going, strong lady. Stay stale.

Thoughts with you, biscuits.

So great to hear from Others Who Have Put Up A Brave Fight, and won or are winning.

Sorry to hear the hair is taking such a beating. Necessary collateral damage, of course, but must be very upsetting nonetheless. In years to come you'll be sitting in hairdressers' chair having a relaxing morning of pampering and all of this will be A Thing Of The Past.

Keep going, strong lady. Stay stale.

Mumsfret - trying to fill this thread singlehandedly!

Hope you're having a good day biscuits.

Eek! Sorry biscuits. Sorry all. So used am I to saying everything thrice (& still never being listened to!).

Blardy Internet connection

Septic again. Damn. Feel awful but better than I did during the day. Back on antibiotics and fluids and a good dose of iv paracetamol.

All best wishes to your husband davidsotherhalf. I cant believe they banned toast! Thats cruel!

Found you again!
Been thinking about you hobnob!
Will pm you.

Good grief, biscuits! It must be your turn for an easier ride soon.

I just hope the leukaemia feels worse than you do!

Chin up, Lovely.

Sending positive vibes xxx

Just popping in to say to you to stay stale, lovely Biscuits.

I may not post that often but you & yours are in my thoughts every day.

Blimey, there are so many eloquent posters on this thread. I can't pretend to be able to keep the level as high but will let you know that I'm still behind you every step of the way biscuits.

Xxx

Morning Buscuits- I agree it must be your turn for a bit of good luck/ respite soon. I hope that comes soon for you. In the meantime, keep doing with you're doing, eating whatever takes your fancy (and is allowed) and taking support from all the other people on this thread who have or are going through what you are. You will beat this!

So sorry to hear you are feeling awful again. I hope you feel better soon.

Keep going, there are happier times ahead biscuits x

I wonder if your hair will be the same when it grows back. A friend lost all her naturally very straight hair to chemo and it grew back quite curly and much softer.

Hi biscuits. If you are eating a lot of toast can I recommend toasted cheesey baps with bovril on? Food of the gods!

Eugh feel awful and cant even stomach toast now.

Am literally living on biscuits!

And do you have a favourite? Does your favourite change? Enquiring minds want to know . I'm rather partial to a mcvities digestive dunked in either tea or coffee - caught just at that optimum point before it disintegrates... It's a skill carefully honed over years!

I do not like the ginger ones or custard creams. Bourbons are welcome. Unfortunately its the little 3 packs of biscuits as I cant eat anything that I cant finish in one sitting or it has to go in the bin :-( I cant keep a packet of nice chocolate hobnobs handy

Still very glad the antibiotics seem to be working.
Ive been given a date in september for my transplant and about a million appointments for tests before then. Its such a long way to travel wach time and dh has to take time off work to take me as I cant go on my own :-(

A date is very exciting! September is not that far away.

Leukemia is v much a whole way of life almost - you are just so connected to the hospital and your team, you never see anyone else. Haematologists don't really understand the concept of a life outside, or that your family might have to earn money or get childcare - they can only see the chemo protocol! Even their specialist nurses tend to be along the scary lines and not so much the hand-holding. But they are like that for a reason and it does work in the end.

We've just had a nice trip to stand out in the rain due to a fire alarm from a burnt toast incident Clearly toast is more controversial than I realised. At least you can't burn biscuits.

I'm quite sure your DH wouldn't want to be anywhere else. Glad you've got a date to work towards, moving along to road to full recovery!

Oh yes bourbons are nice if someone has eaten all the jammie dodgers

That sounds good that you have got a date next month for your transplant. Another step along the road.

As ajandjjmum says I'm sure your DH wouldn't want to be anywhere else but supporting you. I hope the traveling to and from test appointments isn't too exhausting for you on top of everything else.

Hope you feel better soon.

Shall I arrange for a box full of mini packs of chocolate hobnobs to be delivered to you biscuits?

Bourbons are great but nothing beats a Jaffa cake and I usually eat a whole standard packet in one go

Great that you have a Sept fixture/goal in sight, biscuits. Hope you feel better soon.

Firstly, it's great that you have your date in September, that's not that far away.

Secondly, you need to apply yourself a little more, surely you could polish off a whole packet of biscuits if you put the effort in? I'm a biscuit eating expert, I'd say start small with a packet of Oreos, then chocolate fingers, then when you've got those under your elasticated waistband belt work your way up to a full pack of chocolate hobnobs.

Thats exactly it kundry! Thats exactly what they are like. All the tests can be done by this hospital (ive had most of them) but no they also need me to go and have them all there.

I also have to meet the radiotherapy consultant tp be consented for total body irradiation. I know the risks. Its going to make me feel very ill and can cause tumours and damage to all my major organs. Just like chemo. But unless they can suggest a safer option to kill the leukaemia just hand me the pen and the form.

Nice student nurse has just sourced me nice biscuits. The new shos start tomorrow. A new set to train ;-)