Onwards and Upwards: Staying stale in the teacup of life

[biscuitsandbandages]

This is my 3rd thread as I go from a shock diagnosis of leukaemia towards what will hopefully be a cure.

Life is shit but I am strong and there will be happy times again.

Thank you everyone for your ongoing suppport x

Sending prayers your way biscuits. Amazed and awed by your strength and courage.

HP or ketchup, my dear?

Well done for soldiering on, you're doing brilliantly. Onwards!

Goodnight biscuits - keep buggering on (which is a Churchill quote, I think).

"See" you tomorrow - I'll be thinking of you at breakfast time (and lots & lots of other times, too).

(((xxx)))

Can sympathise about the NG tube. Poor Biscuits. No wonder you're dreaming of bacon sandwiches! I now have an image of you like The Very Hungry Caterpillar!

Perhaps look on the next few months as a sort of hibernation in your cocoon, as your body recovers from the assault it's just endured and accedes to the infiltration of the donor cells (100%!). Then, surely, as you enter the New Year, you shall reemerge from your metamorphosis like a beautiful butterfly, with a renewed sense of hope and vigour.

Stay stale X

Hope you had a good night and that your tube has settled nicely.

Thinking of you biscuits. Just remember this is your cure. It's so worth all the crap you're going through now. Xx

If they offer you chewing gum that tastes like a three course meal, decline. Mr Wonka hasn't got it right yet and you'll just turn into a blueberry. Stick with the ng tube and crushed biscuits

In case you have not been adequately informed by previous posters please consider this further notification that you are indeed amazing.

Yes definitely stock up on the halal beef bacon. Or any other bacon. You can't ever have too much of the stuff I say

Keeping going biscuits, there are great things ahead for you.

Hope you're feeling better today, biscuits. We're all thinking of you. Keep on trucking.

Eugh feel so sick.
Im fed up of them changing medication regimes to the exact opposite of what I suggest. Now the ng is down they want to give everything that way but the volume is too large so I vomit.... missing my doses and --> more pain and vomiting.

I need most iv and the 3 they cant do iv I can swallow the liquid or capsules. Arghhhh

Poor lamb. Well look it's your NG. They should be listening to you. Can you negotiate dosage size? 1/2 now, 1/2 in 5 minutes? Would that help?

I tried to negotiate a break as I was feeling sick. She flustered about needing to go to hand over gave me one minute then cajoled me into agreeing to try again. So I threw up on her and she went to handover

Grrh! Maybe she'll have handed that over though - 'when biscuits says stop or I'll be sick - listen to her' See if you can get them not to start giving the meds without agreeing a two stage process WILL be needed.
Does the neutropenia mean you can't have ice cubes? I think that's one of the most helpful to calm nausea (short of good drugs!) but I suspect it may be ruled out for you?

Grr to nursey wanting to go off shift more than prevent you puking
If it's any consolation, the pre-handover-mental-shutdown is not uncommon: I had a similar thing during DD2's delivery. Madwife who was about to go off shift told me firmly that I shouldn't have asked for a room to deliver in as I couldn't possibly be in proper good-going established labour because I "wasn't looking unconfortable enough" and that I should "head out to [nearby town] for a meal and come back later (I refused to go). She then popped out to handover.
The midwife who delivered me less than 15 mins later introduced herself while catching the baby's head....

Hope that some shit-hot drugs are heading your way very soon to make you feel a bit better xxx

Sorry to hear that, Biscuits

Is TPN an option? That's what I had when they removed the majority of operated on my colon. Different issue, granted. I'm sure you've thought of everything already.

Ask them if they can use less volume to flush it. And if they say no, ask the nutrition nurse/dietician. They always use far more flush than strictly necessary. And know loads about blood but nothing about anti-emetics. If you are getting desperate ask to see the pall care team for advice on it, I used to see a lot of transplant patients at this stage as it's so miserable.

And yes to TPN. Surprised this wasn't first choice, we used to use it all the time.

Still waiting for drugs though nurse I trust is on the case and is going to do what they can iv.... but too busy to get to me yet :-(

Apparently graft vs host of gut is reduced if gut keeps ticking over... even if everything goes straight through so tpn is last resort. They want me to have a buscopan and levo pump to help with nausea and pains but that would mean yet another line tying me to the bed. Inhave 4 so far and getting to the commode urgently every 20 min day or night is a mission enough!

Quite quite fed up.... and ridiculously thirsty. Am drinking fizzy drinks which help with the nausea. .. but swallowing is so painful.

Basically try as they might its all damage control as the effects of the radiation and chemo is to rip off the lining of my gastrointestinal tract from my teeth to my tail its not attractive in biscuitland right now I can tell you!

But it will get better and grow back qnd things will improve.

Ugh - you're right - it sounds revolting in biscuitland but yes, those lining cells will grow back, it will get better. Here's hoping you have a better night and the nurse you trust comes up trumps. Sending positive vibes though magic wifi waves x

Everything is better with ice and morphine. ........ iv drugs started and feeling much calmer. Sleep now.

Chin up biscuits. You will get through this. Hope you are feeling less grim today.

Hooray for morphine. Hope you managed some sleep, dreaming of those little biscuit snuggles which will fill your life. It must be hard to tolerate the pain and discomfort but keep the gain in mind.

Ginger biscuits?

Everything is better with ice and morphine.

That's good to hear

Hope things are a bit better today xx

Hope you've had some decent rest biscuits, and that you start to feel better soon. x

What a horrible day you had yesterday. I really do hope that you got some sleep and that today is easier for you.

Thinking of you often x