Onwards and Upwards: Staying stale in the teacup of life

[biscuitsandbandages]

This is my 3rd thread as I go from a shock diagnosis of leukaemia towards what will hopefully be a cure.

Life is shit but I am strong and there will be happy times again.

Thank you everyone for your ongoing suppport x

So sorry to hear this corrie. What a terrible shock. Biscuits you are getting through this, it must feel so slow but every day ticked off gets you closer to being back with your kids. Sending strength vibes to you and to corrie too.

Corrie - completely understand how good it would be for you to talk to biscuits when she's up to it - in the meantime, I hope that your treatment isn't too awful - it'll be worth it in the end!

biscuits - hope today has been OK - wishing the next few days away for you! x

Corriewatcher - I have AML too. Please get in touch, we must all stick together and beat this. We can do this.

corrie pm me and we can chat. Sorry you are going through this xx

Grrrrrrr. Campath hates me. They didnt start me on todays until nearly 4pm as yesterdays made my liver cross. Liver us ok so we are going ahead and im not having any of yesterday's reactions yet...... but it means they cant give me the next type of chemo (very liver toxic) until things settle down. I get the weekend resting which isnt awful as its our second eid tomorrow so the kids are coming in.... but it means transplant is now planned for the 13th

Eid Mubarak! Thinking of you today - hope you and your liver are resting.

Thank you.. had a lovely time though feeling rather flat and tired now they have gone. The distance between us has suddenly hit me hard. Either that or ive an infection brewing.

Kids loved their presents and lay on a picnic rug watching old disney classic film and eating their fill of cake and candifloss :-D baby girl so much more active than last eid and into everything! She tried hard to pull my hickman out as even tucked in she can grab it through my t shirt. Lots of gentle 'no' and distraction. She will learn. Hope everyone is enjoying the weekend. After the rain the weather seems to have cleared and it looks lovely out there.

Too soon for an infection surely? Would guess it's Campath crapness making you feel worn out.

Your baby girl clearly knows your line is a good thing

Not neutropenic yet though lymphocytes wiped out.
Liver tests improving
Temperature 38.1 and mild tachycardia....... Agreed a watch and wait policy as hopefully just a delayed campath reaction.

Very pleased you got to spend Eid with the crumbs ?? still keeping all my fingers crossed for you.

Thinking of you.
I am donating the same week as your transplant is scheduled :)

Thinking of you biscuits.

Not sure what to say about campath - hope the awfulness is over soon. Love, strength and healing.

Hang in there biscuits, glad you got to see the family for Eid.

How is your brother doing Lines?

I've just had my first session of radiotherapy.
Basically you strip to your pants and they measure you, tape fluid bags to you to make you into a rectangle shape and then leave you in a room while a large measure beeps as whirs. Then they turn you around and do it again.

Odd.

I'm another one thinking of you.

I'm glad you got to spend Eid with your family. It sounds lovely with them lying on the picnic rug watching old movies and eating candyfloss. (I had some candyfloss recently for the first time in decades and I had completely forgotten how it just disappears in your mouth. Very strange but fun somehow)

I hope you aren't suffering any side effects from the radiotherapy. It all sounds a bit surreal.

Thinking of you biscuits.

We have a friend who (I think) is in the same hospital as you having just had a stem cell transplant. We facetimed the other day and he's doing ok, considering. He's on a feeding tube but spirits are high. Hope yours goes equally as well .

Ooh radiotherapy makes me sleep. All day! They woke me up to take me down and thats it!

Glad to hear your friend is doing ok Allisgood :-)

Hi biscuits, glad to hear you are surviving cam path . It is a horrible drug. Would you be up for a visitor at some point - if yes I may be around at the end of this week. I will bring penguin biscuits.....
Eid Mubarak!

I guess maybe sleeping through it is the way to go biscuits!

It was confirmed this morning that my db is well enough for the transplant to go ahead as planned next week. So, I start my injections this weekend, to prime my stem cells ready for donation.
All systems go!

Hi biscuits have lurked for a little while. Just wanted to say thinking of you x

Sleep well biscuits. Let the chemo do its work while you rest. xx

Hi Biscuits,

Just checking in to see how you were doing. Thinking of you!

Hi all, still here.
Very sleepy all the time.
My liver isnt behaving which is a concern but we are cracking on as no real alternative and just hoping it settles.

Great news about your brother lines!

Hi biscuits.
Sorry your liver isn't liking this. I can't really blame it. Sleeping sounds like a very sensible way to get through this process.
Still thinking of you lots.
xx

Naughty liver! I hope it starts cooperating soon biscuits. Hope you're feeling ok. Sleep is good. Sleep heals.

ah yes - the restorative power of sleep :-)