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Onwards and Upwards: Staying stale in the teacup of life

1000 replies

biscuitsandbandages · 28/07/2014 08:41

This is my 3rd thread as I go from a shock diagnosis of leukaemia towards what will hopefully be a cure.

Life is shit but I am strong and there will be happy times again.

Thank you everyone for your ongoing suppport x

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5
Aethelfleda · 02/10/2014 00:33

Thinking of you biscuits. Xxx

saffronwblue · 02/10/2014 03:56

Thinking of you biscuits. Each day down is another day closer to being back with your family.

biscuitsandbandages · 02/10/2014 09:01

Skyped with the wee ones this morning and remote supervised them getting ready for school. They seem very relaxed. No tears yet but a little strip from my eldest last night. I left them little presents which kept their minds focused elsewhere for a bit. I miss them. Just had a steroid infusion to try and counteract the predictable reactions to today's chemo...... Hoping it won't be too bad. Inshallah Inshallah inshallah.

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Goldmandra · 02/10/2014 10:03

I love that could can still be involved in the morning routine! Smile

Here's hoping today goes smoothly for you xx

Legionofboom · 02/10/2014 12:21

I'm so glad you are still able to be involved with everyday life, albeit remotely for now.

I love teddy in the hospital picture, sitting up there on the shelf, keeping an eye on you Grin

I hope things are going ok. Thinking of you and sending lots of positive thoughts x

ljny · 02/10/2014 16:14

Thinking of you, biscuits.
Wishing you luck, sending good vibes.
You're on the home stretch now!
All the best.

biscuitsandbandages · 02/10/2014 16:15

Teddy says "I love you mummy" from each of my boys. In the early days this daft ex cosleeping mummy would wake in a panic convinced I had lost my tiny baby in the sheets (still only about 7lb by that stage). Teddy gave me weight in my arms and I slept through.

First lot of chemo going in. Campath I do not like thee. I suspect we shall not be friends. Confused

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Musicaltheatremum · 02/10/2014 17:58

Hoping for the best for you. I have followed your threads from the beginning.

Aethelfleda · 02/10/2014 20:06

Keep on keeping on biscuits. We're all rooting for you.

magimedi · 02/10/2014 22:25

Hope that chemo is doing what it should be doing, however much you don't like it.

I was pleased to see that your bed was at least by a window - I realise that looking out is not the same as being out but at least you have a view out.

You are in my thoughts at waking & sleeping.

beatofthedrum · 02/10/2014 22:41

Sending love and keep strong. You are being so brave and absolutely amazing for your children. Thinking of you so much. Hang on in there xx

barefootcook · 03/10/2014 03:25

This is my first post on your thread Biscuits. Just wanted to say that you are amazing and I hope the transplant is successful. I will be thinking about you and sending positive vibes and prayers.

Panicmode1 · 03/10/2014 05:47

Keep going Biscuits...another day of chemo done is another day closer to freedom and health. Stay strong. Stay stale. Thanks

biscuitsandbandages · 03/10/2014 07:47

Morning everyone. Campath is horrible. I look like ive been drawn on my an enthusiastic toddler, covered in large red itchy wheals up to a few cm across. I needed salbutamol yesterday as got wheezy and spiked a fever. It modulates your immune systrm so basically I felt like I had flu with a bad allergic reaction to boot...... all entirely predictable apparently but not preventable. One more day of it today... not sure I will get much crochet done though I was able to skype with the kids again this morning.
Onwards and upwards. Now on day minus 7

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Goldmandra · 03/10/2014 08:21

Morning biscuits.

You said you didn't think you'd be friends with Campath and now I understand why. At least the leukaemia cells are going to be feeling worse.

Having you still participating in the morning routine must be really good for your LOs.

Have you worked out which is your favourite nurse yet?

ajandjjmum · 03/10/2014 08:34

It's getting the baddies - glad you've spoken to your DC this morning. Just remember how amazing you are, and how much support you've got from your friends on MN - never mind everyone rooting for you in real life! Is it rooting, or routing?!!! x

Legionofboom · 03/10/2014 09:08

Campath sounds hideous biscuits but not enough to bring you down it seems. I did smile at your attitude. Having posted about the wheals, the wheezing, the fever, feeling like you have the flu with an allergic reaction, I love your reaction is that you're not sure you'll get much crochet done. Grin

I love your story about Teddy. He sounds very precious, and like I like the thought of him up there keeping an eye on you.

Stay strong biscuits. We're all here for you.

magimedi · 03/10/2014 09:53

I bet those leukemia cells are hating the Campath as well.

Hooray for the wonders of Skype.

You are in my thoughts so often during the day.

FarelyKnuts · 03/10/2014 10:02

Thanks thinking of you

Mumsfret · 03/10/2014 11:56

You can crochet to your heart's content when you're over this bit and en route to a cure, biscuits. Take heart, things so often get worse before they get BETTER. You are nearly at the summit & soon you'll be climbing (nay, free-wheeling) down the other side. Xx

biscuitsandbandages · 03/10/2014 13:52

I've done another couple of squares :-D the rash is settling and I feel a lot better but they haven't been able to start today's dose as apparently my liver is feeling poorly (it didn't tell me!) I think I missed lunch while in ultrasound so going to raid the ward snack cupboard :-)

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magimedi · 03/10/2014 14:39

Pleased to hear you are feeling better but sorry about liver & missing lunch. Hope the ward snack cupboard has some goodies in it.

Am v impressed with the crochet skills - I can neither knit nor crochet!

Do you read much & have you got a kindle? Am asking as I love my kindle & spend far too much time looking for cheapo/freebies so can always send you any links you might be interested in.

Stuffofawesome · 03/10/2014 17:48

Keep surfing

Onwards and Upwards: Staying stale in the teacup of life
Corriewatcher · 03/10/2014 18:08

biscuits. I realise you've got an awful lot on at the mo but I was wondering if you would mind if I pm'd you. I'm a mum of 2 in the Home Counties who's just been diagnosed with leukaemia. Just like you it's come completely out of the blue - 3 weeks ago I was dancing at a friend's birthday and 2 weeks ago I was telling friends over coffee that I felt rather run down.... Just had my lines put in and starting inpatient chemo for 4-6 weeks on Monday.
I'm determined to fight this so I can see my children grow up and have a load of support from family and friends but I don't know anyone who has actually been through this.

OrangeyTulips · 03/10/2014 18:18

corriewatcher we're in your corner. Sorry to hear of your diagnosisThanks Thanks Thanks

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