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Not a good day. leukaemia diagnosis.

975 replies

biscuitsandbandages · 14/04/2014 03:44

When I woke up this morning I was a mum of 3 with an 8 week old baby.

Now im a cancer patient on thr coronary care ward.

This cannot be happening to me.

OP posts:
biscuitsandbandages · 01/05/2014 23:55

I'm not exaggerating to say this thread has helped me turn my frown upside down. Of course there will be rants but all of your support (and without embarrassing desert too much, meeting her online gave me my first taste of hope let alone all the practical tips from her and blondepip)

Thank you everyone and sleep well xx

OP posts:
saffronwblue · 02/05/2014 01:09

Sleep well biscuits . I think it is you who has done the hard work of processing this hard stuff and finding positives where you can. X

tara49 · 02/05/2014 01:51

Wow - what a different lady - you are starting to make the journey towards home now and we can hear your humour and optimism shining through which is great. I think about you daily although I don't always post, rooting for you. x

Panicmode1 · 02/05/2014 03:31

Fab news about your LB! You are doing brilliantly.....another day done in prison, another day closer to your release date and return to your family. Smile

icklekid · 02/05/2014 03:43

Having just read this whole thread firstly I am in tears (blame pregnancy hormones) but secondly biscuit I just want to say how in awe of you I am. I am so glad mn has been able to support you at this time. You were so open at the start and felt how we would all feel but to read of your positivity is so inspiring. Thank you and will be thinking of you and hoping all continues to go well

butterfliesinmytummy · 02/05/2014 04:05

Gotta love you biscuits, talk about bouncing back! I understand that treatment and recovery is more of a roller coaster than a flat road but with an attitude like yours, you'll get through it all x

biscuitsandbandages · 02/05/2014 06:28

A few tears this morning. I miss them all so much. But tears are better than sobs and the pain is mixed with love so im choosing to let the em flow for a while.

OP posts:
imip · 02/05/2014 06:31

Wow, biscuits I'm sorry... It takes a lot of strength to be brave, so faltering occasionally is perfectly understandable...

Let them flow for a bit, don't sob though... Wish I could think of a funny website to distract... I seem to only ever be on mumsnet!

Thanks
fidelineish · 02/05/2014 06:36

It must be so alien waking up every morning without them. Flowers

Here, have some Cake for breakfast (we need a chocolate emoticon) x

GretaGarbosLeftThigh · 02/05/2014 06:55

Morning biscuits! I haven't posted for a few days (serial name changer) but am amazed at your fantastically level headed resolve, you star! Smile

Do you have any visitors planned today?

My day will involve going to my local hardware store (do you have one of these? Oh the smell in there is just wonderful Grin))to buy a big lock and padlock to secure our shed as there has been a spate of out building burglaries in my area. Think of me later as I curse our crappy drill whilst trying to fix the lock on the shed (knowing my DIY prowess I may be visiting you via A and E later, have the hobnobs ready Wink)

Mindless chatter aside, let those tears flow and then go and you will be ready for the new day of kicking Leukaemia's arse

Mumsfret · 02/05/2014 07:18

I shed many tears in hospital, biscuits. Most were cathartic, though; the release brought about by crying can help a lot, I find. I often feel better, psychologically, after a good old blub! If it drags you down into a spiral, though, please try and find someone to talk to. Don't suffer alone. Take strength from all your supporters on MN, too.

I thought I'd let you know about some of the things you've got to look forward to, now that I've seen a glimpse of it myself...

A messier home, for sure, with many things (though not all, amazingly!) out of Their Usual Places. Somehow, it doesn't matter. It's a happy home.

Excited, slightly (and unusually) coy, but deep-down joyous children who are delighted to have their mother back in the bosom of the family home - not quite at the helm yet (someone else can steer for a while) but back to Where She Belongs. Somehow the fact she's not in the driving seat (yet) doesn't bother them; Mummy's home.

Endless snuggles with your beautiful DD, all of whose physical and emotional needs have been met, admirably, in your absence. Fact is, no one or thing can ever replace those special cuddles with Mummy. She'll feel the warmth emanating from you.

A hitherto (outwardly) stoic but now clearly tired and worn-out OH. He's deeply grateful to you for making it back to the Mother Ship. He's even more grateful for you now he realises how hard a ship it can be to steer single-handedly! He didn't mind holding the course for a while (by golly, though, he's had way more help than you ever get!), and he'll continue to steer it (under your gentle guidance) until you've found your full stamina again (indeed it will always be more of a joint effort from this point on) but - for now - all that matters is to know you're back, you've survived, and you're somehow stronger for your experiences.

Hot, decent cups of tea (with biscuits, on demand!). I don't know about you but hospital tea never tasted quite right (water too cold?) and they were forever running out or failing to offer the biscuits!

Home-cooked food. Let them do it for a while. It won't be perfect but it'll be a darn sight better than hospital food!

The sound of the birds and (I hope, for you too) the heady smell of blossom and pollen in the garden. Even on a slightly drizzly day, it's 100% more life-affirming than the sounds and smells in the hospital.

And you will get there/here, biscuits. Even if, as in my case, you know you'll have to leave The Comfort Of Home again - for further treatment - somehow it'll seem easier, you'll know what's ahead, and you'll appreciate even more what you have to return to (& they, you).

I hope today improves, post-blub. Yesterday was a positive day; keep a firm hold of some of that upbeat mood you tapped into. Strong lady.

As ever, thinking of you.

Spinaroo · 02/05/2014 07:20

The tears are to be welcomed. They show an anger instead of despondency and will give you the strength you need to fight back. Cry away x

Ruprekt · 02/05/2014 07:42

Hey, my lovely!

Can I send you something yet?

Magazine
Book
Chocolate
Sweets
Bubbles
Snacks
Hand cream????

Just say the word and I will pop it in the post! XxSmileSmileSmileSmileSmileThanks

Mama1980 · 02/05/2014 07:50

Morning biscuits, I agree tears can be cathartic, I sobbed many a time, a nurse told me once that tears are good because they show you have something to lose, that you are sad and afraid, both of which tells the drs you will fight like hell for your life.
You are doing great.
Did you manage to get some sleep?
I second the posters who say we would love to send you something if you feel up to it. Nothing like a mumsnet care parcel to brighten up the day Smile
And randomly I just read a good book, 'the oyster catcher' not too heavy and was cute and funny if you're stuck for something to read.
I hope you have a good day, I'll check in later.
X
Thoughts with you Mumsfret as well and the offer to just shout if there's anything you need X

Only1scoop · 02/05/2014 08:33

Hugs Biscuits xxxxx

Nocakeformeplease · 02/05/2014 08:41

Morning Biscuits

Great news about the LP results Smile and lovely to hear you so positive and determined.

DS has his end of treatment CT scan today - that's if he doesn't freak out when the put the contrast in his cannula like last time. Then it's a torturous week waiting for the results Sad

Hope you get lots of cuddles with the mini biscuits this weekend x

Timetogetserious · 02/05/2014 09:59

This reply has been withdrawn

This has been withdrawn by MNHQ.

IwishIwasmoreorganised · 02/05/2014 10:40

Biscuits, you're beating this disease already. Fab to hear about your LP results. That's tremendous news.

tears can feel like a great relief once they've finished. I hope it was that way this morning.

Will you be having many visitors over the bank holiday weekend? Snuggles with your family?

I love mumsfret's words. You are both so elequent when you write.

Lots of love to you all.
Xxx

adv1cen33d3d · 02/05/2014 12:28

Hi Biscuits

I've read this whole thread and I just want to tell you that I'm sorry this is happening and I'm off to give blood on Tuesday xx get well soon sweet heart x

Christelle2207 · 02/05/2014 15:06

Followed your thread from the beginning and ashamed to say not posted till now. Just wanted to say I think of you often - I also have a baby and cannot imagine how difficult it would be to be away from him. Yet you are doing amazingly well in very difficult circumstances...have no doubt you'll be home where you belong with your babies very soon. Xxx

nicename · 02/05/2014 17:05

It sounds like the fear has gone and the fight has taken over. That really is great news.

Each day is a step upwards.

AWombWithoutARoof · 02/05/2014 17:09

Afternoon Biscuits,

How's today been? Anyone been able to visit?

biscuitsandbandages · 02/05/2014 18:34

How did ds get on nocake?

Quiet day today... Slept through one of my drips as it makes me feel quite weird and I don't like it and then takes a good hour to recover.. But recover I do.

Have been working on my blanket... I have 9 squares now but the numbness in my fingers is making typing and crotchet quite tricky.... My tension is all over the place so the sizes aren't as good a match as I would like... Still keeps me busy.

I've been looking at survival data which I know is not something they recommend but I need to know the long term picture. I know I've got to get through chemo and a transplant first and those are the rockier stages.... But from articles today if I can make it through the first 2 years post transplant then it could be a cure.... The data only goes 10 years or so and is already out of date but people are still alive who had transplants for this in 2004.

That could be me and then some!

OP posts:
Only1scoop · 02/05/2014 18:54

Hi chocolate hob bob 'Biscuits' bet that blanket is looking good hence the numb fingers....enjoy cuddles with your family ....thinking of you xx

Swex · 02/05/2014 19:58

Hi biscuits. Hope your evening is going well. Glad you managed to sleep through the weird infusion! And I can't knit or crochet so I bet I would think your nine squares are marvellous! I laboriously knitted a blanket for my firstborn and had wonderful ideas of a large white, silk edged effort. And ended up with a wonky rectangle that is too small. But it we a complete labour of love, so I imagine your blanket will be perfect even of your tension is a wee bit off!