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Life-limiting illness

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Original poster

Anyone's arthritis playing up with the season change?

33 replies

mandmsmummy · 24/09/2013 17:02

Hi all
I have spondyloarthritis (an inflammatory arthritis) and am really struggling at the mo. I haven't been too well so could be getting over that too but I am knackered. My right foot puffs up with it and I haven't had that since the winter and suddenly it's back. I literally want to sleep for a week. :-(
Any advice/moral support/etc?

OP posts:

OhYouBadBadKitten · 27/09/2013 07:38

If its hands that bother people you can buy those disposable hand warmers in bulk from amazon.

MrGeresHamster · 27/09/2013 08:09

Oh god yes. My psoriatic arthritis has flared ridiculously... I'm off to the sun in a couple of weeks and it can't come quickly enough.

I can definitely relate to not really telling people when it gets bad. Is it the stuff upper lip issue? I tend to feel that if people know they start treating you differently. It's normally quite invisible so you can kind of just get on with it, grin and bear the pain whilst throwing painkillers down your throats. Good friends tend to notice.

Sidge · 27/09/2013 11:08

I was diagnosed with RA in January and am really suffering at the moment - they switched my MTX to injectable but it hasn't really made much of a difference.

I thought I'd turned a corner a few weeks ago but now I'm so tired, very achey and must be run down as I've got mouth ulcers, headaches, thrush and athlete's foot. I'm not normally this bad! I hadn't thought that it might be related to the weather, the hot weather didn't seem to improve my symptoms and it's still very mild here.

Original poster

mandmsmummy · 27/09/2013 16:16

I've been diagnosed with ankylosing spondylitis today which explains a lot x

OP posts:

Nocturne123 · 30/09/2013 20:40

Mrgereshamster - very jealous of your holiday , I find the heat makes such a difference ! Maybe I should look into emigrating to the south of France :) . Thank god for painkillers though !

FavoriteThings · 30/09/2013 21:21

mandnsmummy
Have they prescribed things to help at all? Didnt want to read and run, but if you dont want to post, that is ok.

Original poster

mandmsmummy · 30/09/2013 21:52

I'm on naproxen twice a day, thanks for posting it helps to talk x

OP posts:

gingysmummy · 21/10/2013 09:50

Hi all can i join? i have RA had it for 7ish years now,i'm not on anything at present as i was preg but sadly lost my baby,not ment to be seeing the consultant till jan but going to have to try and get an appointment as soon as i can as i can barly move.I was in portigal 3 weeks ago but it rained every day and wasn't very hot. I was pining all my hopes on the heat to help my pain.I will prob get started back on methtrexate and hopefully get a steriod injection.Hope you all feel so much better soon

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