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Infertility

Our Infertility Support forum is a space to connect with others in the same position, discuss causes, treatment and IVF, and share infertility stories of hope and success.

IVF at Belfast fertility

104 replies

chocolate336 · 07/08/2021 11:50

Hi...I was just wondering has anyone had IVF at Belfast fertility recently? Thanks

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MimiArm · 07/08/2021 13:38

@chocolate336 Hi there - I haven't but I went there for all the initial assessments and wasn't impressed. At the time, we had other options, which they wouldn't entertain and I felt like they didn't listen and just wanted the money for IVF.

We've since switched to In-Ovo and, so far, the service is much, much better. I even learned that I have PCOS, something that Belfast Fertility would have known through the tests (a yeah ago) but didn't bother to tell me!!

chocolate336 · 07/08/2021 13:48

@MimiArm Thanks so much for the reply. A bit of my background... we had our first fresh cycle last year which failed...although lucky and got 5 frozen embryos. First FET ended in chemical pregnancy and I've literally just had my 2nd FET and have got a BFN. I've been told...'your young...just need to keep going until one sticks'. Easy for them to say. We have paid through access fertility so not even sure if we can transfer our embryos to another clinic. My main issue with Belfast fertility is the terrible waiting list....your talking 6 months between each go! What's the waiting list like at ovo?

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chocolate336 · 07/08/2021 13:50

@MimiArm and I'm sorry to hear about your bad experience with them...I don't think your the only one unfortunately. Glad to hear your in a better place

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MimiArm · 07/08/2021 13:59

@chocolate336 Oh that's not good with the waiting list at all. And I'm very sorry to hear your attempts have been unsuccessful. In-ovo have a wait of about a month for initial consultation, but provided you don't need any further tests, then there is no wait list! They don't force retests either. My AMH, etc is a year old now and he was still happy to use it. He also asked me to get up to date bloods from GP to save money.

My background: TTC 18 months. I've just turned 40, and DH is 37. I'm not ovulating (PCOS) and H has less than average morphology. We tried Clomid for a few months and got pregnant in Dec but unfortunately had a MMC in Feb of this year. Went to In Ovo in June and Dr Diakos was great, really listened and said he will do a HyFoSy, then straight to IVF (but offered Gonal f trigger shots as alternative). We're at a standstill now because the day after that consultation, I stayed to bleed heavily and it lasted 43 days! Stopped for a week, but my lining was still full, so was given provera to induce a bleed and I'm on CD4 now and bleeding heavily. Once bleed stops, I'll have the HyFoSy turn hopefully first round of IVF.

It's so draining isn't it! With Belfast Fertility, they wouldn't even give me Clomid/Letrozole as said there was a long wait list. I argued with them over how there could be a wait list to give a private prescription!

chocolate336 · 07/08/2021 14:12

@MimiArm So so draining....it's the waiting list that is getting to me the most! I had my chemical last time and had to wait 3 months for my review appt after it happened Shock DH is 34 and I'm 32.....they put it down to DH low morphology and recommended ICSI. I had asked for the endo scrape and x2 embryos to be put in and they really wouldn't entertain that as I'm young and say the evidence for the endo scrape is very poor. I got the answer....just need to keep going until one sticks'. They are so blasè about it all. Everything is still pretty much through zoom and the waiting list just continues to get longer. Oh goodness....I hope your ready to get started and commence soon Daffodil in-ovo seem to be more attentive by the sounds of it.

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MimiArm · 07/08/2021 20:14

@chocolate336 I can totally relate to you and know how frustrating waiting is. Also agree with you about the Zoom calls and Belfast Fertility. In-Ovo have real life consultations and the consultant (Dr Diakos) does not rush you, or push you into something/not give you option for something. I would definitely recommend switching if you're able to. I'm not sure how that would work.

E.g. Belfast Fertility only gave us option for IVF but In Ovo set out the two available options and the pros and cons of each and how it was entirely our decision.

The wait time for the initial consult would be 4-6 weeks but then full steam ahead after that.

"Keeping going until one sticks" just lines their pockets. You want a proper conversation with proper answers and someone that will listen!!

The whole set up in NI is shocking - I was referred as urgent case on NHS well over a year ago and no chance of ever receiving a letter - but women on here I'm friends with her were referred 6 mo the ago and have had their free treatment and tests already!! Makes me so mad!

chocolate336 · 07/08/2021 22:44

@MimiArm Seems to be such a difference with the clinics. Losing the will with them. They keep saying 'your young'. But with 6 months between each go I'm not getting any younger. This will only be go 2 this year...won't get another go until next year now. Hurrendous. They are making the process more stressful. I will deffo enquire to see if our package with access fertility can be changed over. Your clinic seems very supportive. Even our NHS appt was face to face. We got referred to NHS well over a year ago....had our initial consultation with scan and bloods etc last month.....we've now been told the waiting list until starting date for NHS is about 18 months!!!! I was in shock.

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chocolate336 · 07/08/2021 22:46

And that's for the RVH. I'm not sure what the Ulster waiting list is Confused

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MimiArm · 07/08/2021 23:01

@chocolate336 I can well believe it. When I was referred, I would have qualified for multiple IVF attempts. Now that will have dropped to 1 this year. I doubt I'll ever get a letter ...

The waiting is the worst. The only thing keeping me going after the MMC was the thought of trying something again fairly soon and that was now 6 months ago. I should have been giving birth in a few weeks time and instead I'm still in limbo land (bleeding) and waiting, and waiting.

I would definitely look into a move if I were you as it would definitely be a quicker process. Fingers them crossed for a successful round 😊

I think when we have our IVF they will do ICSI as well, for DH's low morphology.

Saying that, even with the low morphology (2%), we did get pregnant when I had help to
ovulate (Clomid) so it's not impossible for a good sperm to find his way to the right place successfully!

I'm shocked at how long you have to wait when you're already a patient there.

Fabsco · 08/08/2021 08:46

@chocolate336 I have had two cycles at Belfast Fertility. I'm 39 and my husband is 38. We have been trying for a baby for three years and I got pregnant naturally once, but unfortunately miscarried at 5 weeks. Our first cycle in February resulted in total fertilisation failure with 9 eggs retrieved but only six were mature. They couldn't give us an explanation to why none of the eggs fertilised but recommended ICSI in the following cycle.

Our second cycle in June resulted in two grade A blastocysts from six eggs collected, of which three were mature. I developed two large cysts during this cycle, which probably impacted on the number and quality of eggs, but fortunately all three were fertilised with ICSI and two developed well into blasts. I had a fresh transfer and am currently 9 weeks pregnant. Our little embaby is developing a bit slowly (fetal pole and heartbeat only visible at 7 weeks), so we have had three scans with the clinic so far.

My opinion of Belfast Fertility is that they do the best with what's available to them and HFEA regulations. Because they don't do ICSI as standard practice or genetic testing of embryos, their success rates per cycle are lower than clinics abroad. I had an online consultation with an IVF clinic in Spain and were amazed by the amount of testing that they do before offering any further treatment to patients. It includes genetic screening of the couple, a hysterosalpingography, sperm DNA fragmentation, among others. None of that was offered or suggested by Belfast Fertility and I believe it would have been useful to have those done, especially after our total fertilisation failure in the first cycle. Of course it makes sense to recommend ICSI in a following cycle, but it doesn't explain why fertilisation wasn't possible and it could be due to a genetic issue with either eggs or sperm, but would still affect the development of embryos later on. I believe that's what's happening to the little embaby that was transferred and is struggling to develop - it's just heartbreaking.

For us it's a closed chapter on Belfast Fertility as we have decided to do our third and last cycle abroad. We have a frozen embryo stored with them but it makes me anxious that it's untested and may result in another slow growing embryo and possible miscarriage. I would like to have another egg collection before I reach 40 years old and hopefully transfer an euploid embryo with higher chances of success. Spanish clinics also allow for the transfer of multiple embryos, which isn't allowed in the UK if the patient is 40.

If I were younger and had NHS funding for my cycles, I would probably try a subsequent cycle with Belfast Fertility, but unfortunately I'm not getting any younger, have spent over £13,000 with two cycles and meds, and have more questions than answers regarding our still 'unexplained infertility'.

Good luck with your treatment and please consider all the options before you commit to a specific clinic. A local option might look like the most appropriate one but might offer very little in terms of treatment.

chocolate336 · 08/08/2021 09:05

@MimiArm I'm so sorry to hear about your MMC. Your so right though....the waiting is the worst between each go....we would deffo be more content knowing you can just start another go straight away....not the case. Being private with those waiting times....with the amount of money your paying them.....crazy. On other chats ladies are starting straight away across the water....so frustrating. Do in-ovo offer a lot of testing.....more so than Belfast fertility? They are so limited in what they do

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chocolate336 · 08/08/2021 09:15

@Fabsco Thanks so much for the informative reply! I really hope your little one is strong enough....everything crossed for you!DaffodilI never even looked into other clinics.....I know 3 people who have had success with them so I just went straight for it....didn't do enough research and even listening to other girls on other chats mentioning certain tests etc that I never even knew could be offered. We paid for an Access fertility package with Belfast clinic so I feel I'm locked in with them....we went for the 2 cycle package. So we are currently using our Frosties from our first fresh cycle. The waiting list is really affecting me....I like things done yesterday lol. Funny about them not allowing the 2 embryos put in.....for my last review the consultant suggested for two to be put in next time...but he didn't realise that I had a chemical...so quickly changed his mind back to one. So I'll be interested to see what they will do next time. I feel like maybe more investigations should be done...I feel like I would maybe be wasting my last 3 Frosties if we just continued like this. They said the chemical pregnancy was a good thing....certainly didn't feel like it. Not a hint of a BFP this time. Exhausting and so brutal as you know Sad

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Fabsco · 08/08/2021 10:24

@chocolate336 I completely understand and would say that you have a high chance of success because you still have three frozen embryos. At age 32, the percentage of aneuploid embryos is low, while at 40 it is estimated that 50% of embryos will be abnormal. After we heard the devastating news that our embryo wasn't developing as expected, I asked them for some additional tests because I wasn't confident about transferring my second embryo without knowing what could be affecting my early stages of pregnancy.

One of the nurses suggested that I see Dr David Hunter at Knightsbridge Hospital as he runs the recurrent miscarriage clinic there and might be able to offer further tests not offered by the clinic. I made an appointment to see him and can come back here to share what tests I was offered.

Good luck with your treatment and I wish you all the best in your next transfer!

chocolate336 · 08/08/2021 10:53

@Fabsco Age really is a significant factor in all this isn't it. Puts the pressure on waiting so long with each go! I've just went and bought 'it starts with the egg'. Not sure if that was a good idea or not. Oh wow...that would be great if you could let me know about your appointment! Is there a long list to see him? I really really really hope all works out for you!!Daffodil

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Fabsco · 08/08/2021 11:32

@chocolate336 'It starts with the egg' is an excellent book and I would also recommend 'Is your body baby friendly?, which explains in detail some immunological issues that affect fertility. I was tested positive for antinuclear antibodies (ANA) in the past and found this book particularly useful to understand how it can affect my fertility. Curiously, I shared with the fertility clinic that I was tested positive for ANA and they didn't say anything... Many fertility doctors don't believe in immunological causes for infertility.

I was able to get an appointment with Dr Hunter for next week, and will let you know what he says. Thank you so much for your kind wishes and best of luck with everything!

chocolate336 · 08/08/2021 11:45

@Fabsco I'll definitely check that book out also! Curious isn't it....they can be quite dismissive. It really takes you to do your own research and get the ins and outs. I've just had a call from the clinic after my BFN....nurse was very nice. Actually said the waiting list isn't as long now...waited 5 months last time and she said it's not that now.....here's hoping! She is putting down that I want a quick review....as I said I waited 3 months for a review appt last time! Yes do please keep in touch! Sending you lots of luck and I have everything crossed for you x

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IsabelHerna · 25/08/2021 11:31

Hello ladies, I would like to thank all of you for your replies, this thread really helped me.

For me, it's really important to feel listened to, and that they will make tests and make the best of each cycle.

Fabsco · 25/08/2021 12:00

@IsabelHerna Glad to help! If there is one piece of advice that I would give to anyone thinking of starting an IVF journey is to do their research on multiple clinics and not feel that the closest clinic is the best, because most of the times it is not.

Unfortunately our little embaby didn't develop and I had a miscarriage at 10 weeks. Completely heartbroken but not ready to give up just yet. I have since contacted many clinics in Spain and Czech Republic and had my first consultation with a clinic in Spain today. Needless to say, they offered egg donation straight away... Yes, what you heard about Spanish clinics is true. I'm sure they are not all like that, and I'm glad I have consultations with other clinics in the next month or so, but that just shows you that you shouldn't commit to a specific clinic until you have talked to others and compared the protocols. It's a huge financial and emotional investment, so an informed decision is needed.

Please feel free to contact me privately and I'll be happy to share my experiences and research. Best of luck with your treatment!

chocolate336 · 25/08/2021 13:29

@Fabsco I'm so so so sorry to hear about your little embaby! So heart breaking! Sending hugs DaffodilDid you see that Dr in Kingsbridge?

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Fabsco · 29/08/2021 10:58

@chocolate336 Thank you for your kind words. My original consultation date with Dr Hunter was 13/08, when we were in the midst of it all, so I moved the appointment to next Tuesday. Looking forward to meeting Dr Hunter and discussing my case with him. I'll definitely get back here to share what he says!

chocolate336 · 29/08/2021 16:51

@Fabsco I hope he can shed some light and give you reassurance!

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Fabsco · 29/08/2021 16:59

@chocolate336 Thank you! How are you getting on with your treatment? All the best!

chocolate336 · 29/08/2021 19:49

@Fabsco I had my review....they aren't going to change anything and just continue going through my frozen embryos. Think I'll take a little break to be honest...feeling really stressed and moving house as well Confused

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Fabsco · 05/09/2021 09:44

@chocolate336 You're so right; it's important to take a break and look after your mental health. I had my appointment with Dr Hunter and he advised me to wait for six weeks before any blood test is done, due to my recent miscarriage. He did imply though that the tests might not show anything abnormal and the reason why I had two miscarriages might be something to do with egg quality.

I also had my review appointment and they also suggested preparation for the next frozen embryo transfer. I said that I made an appointment with Dr Hunter and they asked me to send my test results over to them when they're ready.

In the meantime, we are planning to start another cycle abroad, either with my own eggs or egg donation. I'll keep you posted here and please continue to send some news! Good luck with the house move!

Notyoungnotwealthy · 16/07/2022 18:31

Hi all,

Wondering if anybody has any experience of In Ovo or Tfp Belfast? Had one NHS funded cycle of treatment at Rfc but it ended in miscarriage. Trying to decide which clinic to choose for initial private appointment. Had a look at the price lists and the thing that is putting me off In Ovo is the hysteroscope....is it really necessary? Don't want to waste money or time on stuff if its not needed (especially something so invasive). Any experiences of In Ovo or Tfp both good or bad would really be appreciated. Thanks!