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Infertility

Our Infertility Support forum is a space to connect with others in the same position, discuss causes, treatment and IVF, and share infertility stories of hope and success.

IVF September/October 2017

999 replies

Filipinam · 02/09/2017 09:18

Hi Ladies! Finally I will have my first IVF treatment as soon as my next cycle starts which I expect it to be more or less end of September/beginning of October. My periods are very irregular so I never know exactly. My consultant suggested antagonist protocol which I will receive in post soon. I am extremely excited but then realistic about the fact that it might not be successful first time.

How are you feeling ladies? When are you due to start your Ivf Journey? Fingers crossed for all of us fighters;-)

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Aliona19 · 24/10/2017 14:15

Minster keep forgetting to ask. In previous posts you was saying you have heath problems for 6 years. How long do you have left of this therapy you having? Or is it not know? Or you have to keep doing it xx

Atikakck · 24/10/2017 14:22

Aliona - a wud love to know myself sum cure haha BT dats y gp did for me blood test so Thursday a will know the results..

Minster - heat problem lyk a body heat? A hv dis problem a fink my blood nt go propa to parts of ma body cz for example ma hand r frozen even ryt nw nd a hv all dis red Lil veins wen they cold same ma feet...

ElizabethCatherine · 24/10/2017 15:04

Hi everyone. Been off the forum for so long because I was in no state to even look at my forum. I just got home yesterday afternoon after 2 whole weeks in hospital. An experience I never wish to have ever again. My OHSS turned so severe it left me in there for so long. Within a few days my body accumulated 9kg of fluid. I was on drips of medication at first to try and help bring the fluid back into the blood steam so it could eventually drain through the urine but it began to fill my body so quickly and fill my lungs the pressure was unbearable to the point where I couldn’t speak, move or open my eyes. Critical care team got called in and I was given morphine and rushed to theatre where an emergency drain was out through my abdomen. They only froE the area where they cut the skin to put the drain in but I was on no anesthetic when the tube went in and punctures through the cavity it was horrendous. Immediately 1.5 L came outing out I could feel it all over my hands it literally spewed out. A further 4 days I had it in and drained 3L a day. I can not even begin to describe how scared I was and the doctors didn’t have answers as to when it would start getting better but it got worse while I was in there so thank god I was kept in hospital. I felt like a vegetable. I was on a constant rotation on pain killers but that only helped relive a bit of the pain, that didn’t take away the fact that I had the pressure and felt like my lungs were collapsing. I had to be given oxygen and sleep with it as well. I couldn’t get out of bed without assistance and had to pee on a chair at my bedside... eventually when I could move it was sliding one foot to the other hunched over like I was 96 the pain was something else. The nurses had to hold me up and shower and dress me. I have never felt so useless and like a vegetable before. I would not wish it upon my worst enemy. I am finally home and recovery slowly but will be at home recovering for a further 2 weeks in my apartment as I am not out of the woods yet. Still walk slowly and have shooting pains and the sweating the most I have ever seen my my life I wake up completely drenched and now have diarrhea but I am so thankful that the worse is over. I can not believe that was the outcome of my IVF treatment and what I had to go through. It blows my mind.

Aliona19 · 24/10/2017 15:09

Health! I meant health 😅

ElizabethCatherine · 24/10/2017 15:12

I have finally had a chance to catch up on everything and want to say a huge congratulations to @dinksandbinks and @Scotslass01 on your BFP’s whaf wonderful news and I am thrilled for you both.

@dinksandbinks I was told OHSS gets worse if you get pregnant so that why was I was not allowed to have the transfer so I can see why you are struggling more after transfer and I am sorry to hear that :( Hopefully soon everything calms down for you because I know your pain and it is not fun.

@Minster2012 I have 2, 3 day embryos frozen as well... I am praying that they work because I am not sure my body could ever handle another ivf procedure again nor would I want to put myself through that again there were times when we weren’t sure if I was going to pull through it was very serious. I just hope the success rate is the same as a blasto because I am trying to be as positive as I can about things but I am so used to bad news and being let down and things not working that I am starting to loose hope on it I’ll ever get to be a mumma :(

Aliona19 · 24/10/2017 17:14

ElizabethCatherine Wow girl. Going through hell like that you definitely deserve to be a mumma and you will be. Hope you will get the strength back in no time. So sorry u had such a bad time, it will all be worth it at the end

Hardygirl78 · 24/10/2017 17:55

Elizabeth, what a nightmare you've been through, puts my own niggles into perspective.

Harry, I'm one day behind you, we'll stay strong together!

harry78 · 24/10/2017 18:10

This reply has been deleted

Message withdrawn at poster's request.

Minster2012 · 24/10/2017 20:02

Right then, wow what a day to be out all day!

elizabeth welcome back not only to the forum but to the land of the living it seems! What a horrible time for you. As someone who has been in a similar situation weak, unable to wash myself as an adult from being perfectly fine a few weeks before, trust me, it gets better, u will be yourself again, feel right again, & feel ok enough to face those injections again- it's shit that they let you be at risk of OHSS, with so many follicles it was a very big risk, my NHS clinic cancels any cycle with over 20 follies. But FET success rates are v good & less invasive, could be done unmediated perhaps & when u are fully better. 3 day embryos of good quality successes are also good so I'm told, not as high as blastos of course but what's to say they would have made it to blasto?? Concentrate on getting better, your babies will be waiting Flowers

Atik u asked about my treatment for so long- I 1st had skin cancer in 2011 & by the time my GP took me seriously enough so as to remove mole it had spread. I had a treatment then that I had massive side effects to & nearly killed me, ended up in hospital for 3 months but the cancer was all clear at that point but the side effects gave life changing effects (& impacted my fertility I now know), as it had spread there was always a 50/50 chance of it coming back & after 3.5yrs it did, st all points I asked to get my eggs frozen prior to chemo but was told my treatment "is not eligible as it's not normal chemo & we can address that in the future" by that time I'd fallen in love, talking marriage & kids with (now) DH, & they found metastatic tumours in lungs & neck at same time despite being clear on scan 2 months before. He proposed & I got told I had to start treatment or I wouldn't last a year, started this treatment I've now been on every 3 weeks for over 2 years now & tumours basically completely in remission...it was a 2 year course but I was fast tracked as no other treatment or surgery available & so I either stay on it & keep on until find something else to keep tumours at bay or if I stop it to try & carry a child (for instance) I lose my eligibility for it & have to pay privately for it. That costs £5816 every 3 weeks Shock so my consultant asked NHS England & the drug company for an "agreed break" to do IVF to get embryos where we found my AMH v low eggs poor & have 2 embryos, but then had to go straight back on it. So there you go, I can't stop it to carry a child so had to go to surrogacy & my friend stepped in. Feel very pissed off with the NHS for not letting me do it sooner!!

Hopefully no one I know is on this!!!

Aliona19 · 24/10/2017 20:21

Minster2012 It was me who asked.. really sorry for that pain you went and going through. Not sure I understood you right, u will have to keep doing this for unknown period of time until something better will be invented?!? Xx

Atikakck · 24/10/2017 20:23

Minster - u r a warrior xxxx

Just laying down in bed watching Bridget Jones baby haha soo funny do u ladies know any nyc movie at pregnant women lyk maybe similar to this one

Minster2012 · 24/10/2017 21:00

Sorry Aliona I was not paying attention! Yeah I basically just keep going with this until my consultant is allowed to "take over my care" & decide with my permission to drop down from every 3 weeks to something like every 6 weeks for ppl like me who have now been stable for over 2 yrs but the drug licence currently only states "10ml every 3 weeks" so has to be adhered to, or until they invent something different. So yeah I just have to keep going! We obviously can't afford to stop & lose it.
But the last different one tried to kill me, this 1 I have very few side effects, slight sickness & it has given me bad skin vitiligo (white patches all over) but that's nothing to stay alive! But this wasn't invented 6 yrs ago when I was 1st diagnosed so its a very fast moving area!

atik I watched Bridget jones ' baby the other day too! & "how to lose a guy in 10 days" can't think of any other movies

Atikakck · 24/10/2017 21:12

Oh yeah a watched dat too.. Smile

Aliona19 · 24/10/2017 21:40

Minster I have no words other than wtf?!?! What do you mean you not allowed to stop or u will lose rights for free treatment? How the hell is it up to them?!? That’s mad.. and you r right, Gp r useless. Can’t get anything out of them unless it’s really bad. I have few moles to check but I just know I won’t get anywhere, better off going private..
I am really sorry you have to go through this and I am sure it gets you down a lot, but at least you have been given a chance and you clearly fighting for it. I really hope it will get better and you ll be cancer free soon enough and a beautiful baby in your life xx keep fighting

Aliona19 · 24/10/2017 21:43

Attic What To Expect When You're Expecting? That’s about pregnant ladies 😂 not new but maybe you haven’t seen it

Atikakck · 24/10/2017 21:54

Aliona a already watched dat b4 lol need to find sum nyc funny movies to watch during invitro nd a heard after transfer it's gd to laugh too much lol so sum nyc funny movie best at pregnancy will b perfect to c ma partner face wen he watch it can make me too much laugh lolllll xxx

Aliona19 · 24/10/2017 22:01

Atik. Jigsaw 😂

Minster2012 · 24/10/2017 22:02

Yeah Aliona, if I stop it for longer than they allow a "break" for, which was only meant to be 3 months but my consultant (female, amazing) & I got in writing from the head honchos at NHS England & the drug company that I could have a 5 month break as the drug needs 4 months to get out of system, & I needed 3 months to be off contraception (I have to be on contraception for the drug licence too) so it didn't affect the IVF so I had 5 months off!! Bliss! But yeah if I stop it that's it, I'm not allowed back on, I lose my NHS funding for this miracle drug which has taken me from terminal to "incurable but remission managed through treatment" which would cost us £6k every 3 weeks! Madness!

Because my GP told me 3 times my mole was fine and it wasn't so Aliona please go get them checked, had mine been referred when it should have been when I went on the second time it would never have spread.

But I'm very positive, I've been given a lifeline, we thought I wouldn't be here & I'm so healthy it's bizarre, & kids could now be part of that, but I'm no more deserving than any one else in this group. Everyone deserves the chance to be a parent & infertility, however it comes is 💩But we will get there

Elizabeth those little embies will be fighting for you too once you've fought this horrible fight of yours

harry78 · 25/10/2017 07:02

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Message withdrawn at poster's request.

Minster2012 · 25/10/2017 07:27

Stay positive harry, what kind of bleeding is it? Is it lots? Pink/brown, sending hugs, you can still have some bleeding and be in lovely xx

harry78 · 25/10/2017 07:30

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Message withdrawn at poster's request.

Minster2012 · 25/10/2017 07:35

That's understandable Harry, anyone would do exactly the same, its rubbish I imagine, it's not over yet though, you're not out yet Flowers

Aliona19 · 25/10/2017 08:17

Oh Harry don’t give up just yet ❤️❤️

Filipinam · 25/10/2017 08:43

Harry, I had some bleeding yesterday but only when wiping but then it stopped and turned into coffee like discharge but not too much only when wiping, this morning I only had light brown discharge when wiping. I am now 8dp5dt. Fingers crossed. Saturday nearly there to test!!!!!

OP posts:
Minster2012 · 25/10/2017 09:08

See, might not mean anything harry and sooooo nearly there filip!!