Asymptomatic endometriosis?

[EricaJ]

Hi ladies,

I was wondering if any of you have any experience on asymptomatic endo?

Long story short: been ttc for 2.5 years, had an mc at the very beginning (only took 2 months to get pg), then another mc 11 months later and nothing since. Got the tests done and everything came back normal, apart from my slightly short luteal phase, which is being treated with progesterone.

Been on clomid with hcg shot for 3 months and had two failed IUI cycles.

My gyno has suggested laparoscopy to discard (or confirm,and if possible treat) endometriosis. I don't have any of the usual symptoms but apparently 20% to 30% of the cases are asymptomatic.

The laparoscopy is on Tuesday so I'm trying to prepare myself for different outcomes.

If anyone has been through similar and would tell me about their experience, that would be amazing.

Thank you!!

Thanks Erica
I so know what you mean about the naivity - I often envy people that more so than their bumps and babies....that they have no idea what it feels like to be so consumed with ttc every month. I wish I could be oblivious to how painful this is.

It's good to vent though so I appreciate you for offering, and for the similarities between our experiences. I can't understand why it was so easy for me to get diffed AGES ago and now it seems I'm infertile! I also don't quite believe that it's all been caused by the mild endo. I don't think mine was that bad and I've read that people with endo can still conceive despite having it.

Hmmmm. I reckon my FC just wanted to fob me off with the explanation that the endo is to blame, to take me out of the 'unexplained' category. I have a suspicious mind!

Likewise- if you ever want to have a rant feel free to pm me anytime. I've found MN so reassuring since I joined in February. I can't believe I didn't join earlier.

Fankle I thought the same: 'Mmmmhh...so I only had a bit of endo (adhesions on right ovary) and THAT has prevented me from getting pregnant for over 24 months, give or take, religiously having sex at the right time'. narrows eyes

On the other hand, I do really trust my gyno and he seemed fairly convinced that the endo was to blame so who knows. At least he didn't urge me 'to just relax, maybe go on a holiday', bless him!

Hope the period of doom stays away from you this month!! It's about our turn now, I reckon :)

Yes, I reckon we deserve some luck!

Assume you've been told about the research that suggests women are more likely to conceive within 6 months after the laparoscopy and removal of endo. I'm on my 3rd cycle now and expecting to get my period in the next couple of days.

Going for our first appointment with the assisted conception unit tomorrow so hopefully moving forward with iui in the next couple of months. 2 more natural cycles before iui....just hope it works before we get to the medicated stage!

Are you planning to try naturally for a bit longer? You've already had iui, is that right? What would be your next step?

Hello!

Yes, also read about increased fertility on the 6 months after the laparoscopy... so no pressure or anything! :)

Yes, I was 'unexplained' for over a year, took Clomid + trigger shot two months and Clomid + IUI for another two months. That's when my gyno suspected something was going on and sent for the lap.

I am going to have to mix natural and IUI the next few months. Thing is, we are living abroad and the health insurance covers for three IUI attempts. I really want to use the last one during the 'magic' (sarcasm) 6 months period to increase our chances. On the other hand, we are going to be away for summer holidays so we will have to try naturally then anyway.

At the moment is looking like this:

April - tried naturally but don't feel particularly hopeful. Feels like my period is on the way
May - IUI (last attempt paid by insurance)
June - Naturally
July - Naturally
August - IUI (paid by us)

And if nothing has happened by September, our gyno is talking about taking the next step... IVF!! I'm bricking it, to be honest!

I have no idea what we'll do to be honest. I am not even sure we can afford IVF (it's definitely not covered by the insurance) and I don't know... not sure I'm mentally prepared. Fingers crossed I won't be in that position.

Really hope this is our month... Maybe we can become two of those super annoying ladies saying things like 'I gave up hope, thought my period was on the way and BAM! I WAS PREGGERS WITH TRIPLETS!!!' :)

Haha! Yes, let's hope so!

Sounds like you've got a good plan in place (it's reassuring to have a plan of action, isn't it?) Surely you will get diffed before crossing the ivf bridge! You've got a much better chance now after the laparoscopy...the 6 month magic will surely kick in soon!

So we are booked in for our first iui in July. Had my appointment today and the doctor was really nice. Got to go back in to see the nurse about the injections (!) but not until the end of May. Now just waiting for the witch to show up tomorrow. I'm not an early tester - have already wasted too much money in blind and misplaced faith. At least I can prolong the 'what if' feeling until it actually starts.

I got a BFP today. I just can't believe it. In fact, I don't think I will start believing it until I POAS again tomorrow and get the bloodwork done too.

Still so chuffed. It all has to start somewhere, right??

Best of luck everyone!

Congratulations!!!!!

Me too! So happy!!
Great news Erica :-)

Wow, Erica, that's great news! Congratulations Endo surgery can definitely help, huh?!

Thanks Liquorice!!!

Just POASed again and it was BFP again! I just can't believe it.

Fankle! That is fantastic news!! Congrats! Can you actually believe it? Because I'm truly struggling!

Evil Thanks!

When do we start our pro-universal laparoscopy group, ladies??

P.S I don't know why I only saw Liquors post last night ... My mind was all over the place I think!

It hasn't sunk in yet tbh. I wasn't expecting this cycle to work and I had no symptoms whatsoever....so it's a very big and pleasant surprise. Did you suspect anything?

Thumbs up for the laparoscopy eh?!

You as well, Fankle? Brilliant!

Hi!

Fankle, felt exactly the same. No symptoms, no nothing. I had pretty much a date penciled in for IUI in May. I am rather constipated and my boobs feel sort of swollen but then I am on progesterone, so it could be that...

My blood came back good yesterday, Beta HcG 372, so was over the moon.

HOWEVER, I had some orangey discharge this morning (I KNOW. Not pink or red or brown but orange) ... rang my gyno in panic and he said, don't worry, take your progesterone and just get rest. Call him if the spotting continues, becomes red or get any sort of pains Nothing has happened since 9 am but I am, obviously, running to the loo to check my pants every 10 minutes.

Who knows if this the beginning of another mc or or just the beginning of 9 month-long mindfuck...

Nevermind. TEAM LAPAROSCOSPY!!!

Oh Erica. Hope the spotting has stopped. Orange doesn't sound too bad though...could be delayed implantation bleed? I am dreading seeing any spotting and am also on knicker watch! Honestly- it's like you get a couple of days of bliss and happiness and then the menkul starts! But I really want to try not to stress and plan on taking things very easily. In my last pregnancy I carried on as normal with my running and gym classes. Now I reckon I will lay off and just to some gentle yoga.

My boobs are sore but that's about it. I keep pushing them to check they're still sore! I woke up in the night and they didn't feel sore so of course I worried. But they've gradually gotten more tender as they day has gone on. Phew!

Reckon we may have to keep each other sane for a few weeks!

Thanks Giraffe yes- a bfp on Sunday on my 3rd cycle after laparoscopy. I had just booked to have iui starting June/July!

Are you also an asymptomatic endo sufferer/laparoscopy survivor?

Thanks Giraffe yes- a bfp on Sunday on my 3rd cycle after laparoscopy. I had just booked to have iui starting June/July!

Are you also an asymptomatic endo sufferer/laparoscopy survivor?

Yup, see my story way back at the beginning of the thread :)

There was only one bit of spotting at around 9 am and nothing since so feeling relatively calm.

I also keep checking my boobs! And my knickers obviously... Crazy! :)
At least I haven't tested again to compare the lines to the previous ones (I got pictures on my phone). Give me a few days though...
I also kept my usual exercise routine during my first pregnancy but sticking to walking and yoga from now on.

I definitely need a 'keeping sane' buddy!!

Hooray! This thread gives me hope. Had my lap a week ago today. Still a bit ouchy but recovering well. We've even tried dtd (very very gently)as I'm so obsessed about not missing an opportunity but I don't think I've ovulated. My ovaries are probably still in shock.

Wishing the bfp-ers all the best!

Thanks Worried

FX the miracle lap will woke for you soon too!

How are you today Erica?
I'm a bit peeved as went to see my gp (she always runs about an hour late so had to wait for ages) only to be told that I have to contact the community midwife and arrange to see her for bloods and booking in appointment. Apparently it's 'midwife led care' where I am. The midwife is on leave this week so I called the main office and they fobbed me off and told me to arrange it through my gp. Feel like I've gone round in circles today! Grrr!

Other than that, feeling ok. Just sore boobs and a noticeable increase in cm (tmi)!

Thanks Worried ! Really hope it works for you too! By the way, I took some opks on our holiday (I know I say I wouldn't but I am part of the 'must never waste a chance/month' club). None a single one was remotely positive (and I normally get positives) but I am sure it was in that week that we conceived... mainly because we were in different countries before and since... so you never know!! Fingers crossed!

Fankle Hiss and death stares at people fucking around with your appointments. So frustrating. I am feeling ok... do you want tmi? I am constipated like you wouldn't believe it! It happened last time too so I am crossing my fingers it's a good sign. Also swollen boobs and horrendous insomnia (the insomnia could be because 2.5 years of on-going insanity though).

Really hope you get your appointment soon!

How are you doing Erica?
Have you moved on to the ante natal threads yet? I've looked but haven't joined as I'm scared I'm tempting fate. Everyone on the Jan 2015 thread is so optimistic and full of symptoms I don't have. My symptoms have completely disappeared this morning . I've only really had sore boobs for the last week, and occasional tiredness, but I've woken up today and everything is 'normal'. I'm trying not to worry... but I am obviously

Finally got an appointment with the midwife...27th May seems like a long way away. I should be nearing 8 weeks by then if I make it

Finding it hard to concentrate on anything work related..

Hi Fankle,

Same here. I've looked but don't dare to join. I am worried to jinx it and also...you know, I am not at the stage where I am super confident I'll have a baby in January 2015. It still seems fairly unreal and it seems to be that they are so many obstacles on the way...

I had my blood tests today again and the result was good, Hcg levels are increasing at a good pace and I am having my first scan on Sunday.

I also have very little symtoms that come and go: I will go to bed with swollen sore boobs and wake up feeling completely normal. I was really constipated for a few days but ahem, back to normal now. I mentioned it to the gyno (twice) and he reassured me (twice) that is completely normal for symptoms to not be constant and that it's not a reason to worry at all.

I completely understand that the 27th of May seems ages away. Don't meant to sound like spoilt brat but is there a way you can afford to get a blood test or scan done earlier, privately? I know it's easy to say when you don't have to pay for it (our stuff gets covered by my husband's work insurance) I've ben feeling like you do now the last few days and it was unbearable. In fact, I know that I will probably start to panic again on Thursday or so.

Try not to worry about the symptoms being inconsistent though, apparently it's completely normal!

Sending you positive vibes!