trying to stay positive
kayleigh1991 · 21/01/2014 10:37
I'm really interested to here other peoples experiences with infertility? any success stories? I'm just going through the process of tests etc. which is stressful and draining but hopefully find the answers I need. I'm defiantly ovulating as I already had my first set of bloods waiting for my partners now. Advise and a chat needed :)
Natalie1988 · 22/01/2014 15:48
Just keep positive whilst going through test ect, I know it's tirering and stressful but at least if something is found they can give you the help you need. I found out 4 years ago that I've got pcos, been ttc for 5years now and still nothing but just changed over doctors and hospitals due to relocating so just waiting for a new hospital appointment and go from there. I know it is hard, it's been hard for me for 5years, everyone round me getting pregnant ect but I'm not giving up hope, thinking positive, loosing weight and doing everything I can plus hopefully some better help from hospitals. I know it's not a success story but one day it definitely will be for us both x try not to let it get you down x
kayleigh1991 · 23/01/2014 14:18
I know how you feel I think about it daily, so hard when you see people just getting pregnant at the drop of a hat.
sorry if this is a bit inquisitive but did you have any signs before knowing you had pcos? irregular periods or anything,
I don't think anyone will know what we go through unless there going through it themselves. I'm sure we will have what we want at some point
Natalie1988 · 23/01/2014 15:03
Yes I was having irregular periods, sometimes ide go like 10months without a period. Loads of times I thought I was pregnant due to missing a period and ide do a test and it would be negative once again, in the end I have up buying test and although it's really hard I try not to think about getting pregnant (as some people say this works) unfortunately still not worked for me but when you are trying it can be so stressful and it shouldn't be, it should be fun.
Your right, no one actually knows how it feels for us, I just always feel like I have no one to talk to and when I talk to friends who already have kids all they say is "don't worry it will happen one day" yes but I want that day to be now!
I had to go for blood test each month and for scans to check if I was ovulating, 9 times out of 10 then don't think I have actually ovulated but I'm trying my best to stay positive that one day it will finally be my turn x
naty1 · 23/01/2014 22:41
Natalie how did they know what day to do the test on with such long cycles were you using opks?
Are you going to be given metformin?
Kayleigh try to remain calm just make sure you do all the tests you can look on hfea website for info
I think the nhs should do sperm analysis first or at the same time as it's only 1 day rather than several months. We spent months doing my tests sure it was my issue and found it wasn't.
As with few sperm a retest and you can go straight to ivf wouldn't matter if you're ovulating tubes are ok or anything
Natalie1988 · 24/01/2014 07:52
This was my arguement all the time as to how did they know what day to test me on, they always tested me on day 2 and day 21, never any different so I could have been ovulating at a different time of the month.
No I wasn't using opks.
They tried me on metformin then took me off it when they put me on clomid as they said metformin could halm the baby if I got pregnant then someone else told me I should of carried on taking it. Now I'm waiting to see what my new doctor and gynae say, they may try me back on metformin who knows?? And the clomid they say for me didn't work.
naty1 · 24/01/2014 09:09
I got pregnant while taking metformin (icsi)
And carried on until the early scan I think.
I can see why they would use day 21 as they do need to use some date but if someone regularly had 40 day periods say surely a later test would make more sense.
I can see they would want to not use during pregnancy but pcos also has higher miscarriage rates so if the met helps that
I suppose too the idea is to prove you have an issue and not ovulating around day 14 or 15 may be the issue(I think I saw that ovulating too late isn't good for egg quality, although others said they still managed to get pregnant as long as they knew when to try)
Hopefully they will be of more help
ThisIsYourSong · 24/01/2014 09:48
Just wanted to pop on and give you some hope . My experience with assisted conception was a long time ago (5 years), I had PCOS on one ovary and possible endo plus we had male factor, so straight to ICSI.
I got pregnant with twins on my first IVF, out of about 22 embryos by day 5 we had two remaining.
The waiting between appointments is incredibly hard. I did lots of diet changes, cut down a lot on alcohol and did acupuncture. I got Zita West's book, went through and made notes of all my problems, the vitamins that helped each, and started taking them each day. That alone made differences to my cycle.
After every appointment DH and I would go out for dinner or do something together like go for a walk, so we made sure we communicated rather than just sitting and watching TV or something like that.
Anyway with three children now (DS3 conceived naturally) the details are of tx sketchy so I won't be any help with that sorry.
Good luck to you both. As hard as all types of infertility is, PCOS is not the worst condition to have. Probably not much help, but hope it gives you a bit of comfort.
kayleigh1991 · 24/01/2014 10:50
My partner handed his sperm test in on Monday so it has been the longest week waiting ( still not heard). Natalie I know what your saying everyone says to me don't worry It will happen when its suppose to but just like you I want that now. I have found finally admitting and talking about it has been a big help and its really nice to hear other peoples experiences. Maybe now you have a new Dr they will give u more support and patience to find out exactly when your ovulating. All these ovulation kits cost money as well as pregnancy tests. I had a similar experience I missed a period ( this was actually due to stress) only ever missed one, my periods are very regular so genuinely thought I was pregnant and had symptoms but clearly was all in my head. It really is a stressful thing. Lets keep our fingers crossed we deserve it as much as the next person probably more after all we have had to deal with x
Natalie1988 · 24/01/2014 13:45
I may mention to my doctor about taking metformin again as that did help me loose weight also.
I'm glad that there's people like you lot who actually write back, I feel like I have someone to talk to by coming on here so thank you all.
Kayleigh fingers crossed for you and your partner, it will be our turn soon we deserve it x
naty1 · 24/01/2014 14:08
I haven't found any weight loss on met but not sure it affects my weight too much I would say I have lean pcos 5'4 9 st
I just think I don't eat well used to skip breakfast eat lots of chocolate. I think I get cravings.
I wonder if my pcos is immune system based as also now have thyroid probs.
I feel for people who are larger with pcos as they are required to loose weight but it may not be due to that or at least they could have been thin with it.
Although it still is a really good idea having only positive benefits.
I do tend to probably binge a bit.
Eating brown bread rice and pasta and less of these carbs does help
kayleigh1991 · 24/01/2014 14:42
I'd not leave the doctors until they give you the help and support you need. I feel the same I would always read these kinds of things but found no one would ever write any conclusions or write back for that matter. But THANKYOU for listening and replying. Like you said it will be our turn we have to just stay positive
Expectingtwins1975 · 24/01/2014 19:47
Hi Kayleigh ... I ttc for 6+ years with nothing happening. Our infertility was 'unexplained' Did ICSI in oct last year now expecting twins after our first go. Only ended up with 2 viable embryos so have been extremely lucky. Although ivf wasn't exactly pleasant - it wasn't as bad as I thought it was going to be.
Good luck with yours!
Natalie1988 · 25/01/2014 10:24
Wow, I love hearing success stories, gives me some hope. Just hate waiting for hospital appointments ect x
fflonkl · 25/01/2014 15:07
Hi there thought I'd share my story too. We did IVF last year and were so very lucky to get a BFP on our first try (DD is now 10 months old; we had been TTC-ing for about 4 years). The issues were all mine - fibroids, endo, blocked tube.
I was on a fairly high dose of Menopur for 18 days and got very blase with injecting myself
I like to think that what helped with the whole process was how fit I was (was doing huge amounts of exercise before starting and throughout) and keeping a positive attitude over the whole period, which in turn meant I was very relaxed about it all.
We went private by the way as the NHS made us wait 7 months between the first consultation and the follow-up appointment (I was about to turn 39 at this point).
Natalie1988 · 26/01/2014 10:03
Another lovely story. One day it will be my turn to tell my success story. I have started loosing weight again, wouldn't even say I need to loose that much tbh but just keeping it up as then the doctors can't blame anything on my weight ect.
Shellster52 · 26/01/2014 20:27
Thank you (ExpectingTwins and fflonkl* for you success stories. It gives me hope too that you were born 75 expecting (I assume!) and that you were 38 fflonkl. I am 36 and when I hear of how younger people conceive so easily, it makes me feel over the hill. I am a very poor responder with IVF but my embryo quality has improved with each of my 3 IVF's so I can only hope that IVF 4 will work to make my $20,000 worthwhile!
Natalie1988 · 26/01/2014 20:49
Shellster52 have you not be able to get a try of IVF for free on the nhs because of your age ect? I'm only 25 but have been trying for 5years and not been offered IVF but on the nhs website it says we should be able to have a free try, some people get up to 3 try's for free. Xx
naty1 · 26/01/2014 21:23
IMO they beed to sort out the postcode lottery for nhs treatment. If its going to be 1,2,3 goes it should be equal.
It is 1 round my area. But each also has additional rules for weight smoking etc. in some areas if you are successful on round 1 you can continue to round 2 for a second child, but not others.
Natalie do they not refer after 3 years for unexplained?
It is a bizarre situation. We were referred after 1.5 yrs due to low sperm count. But i could still be waiting with just my pcos. I think it would be 4 years ttc now
kayleigh1991 · 27/01/2014 13:29
Something strange has happened this month AF has arrived 5 days early? of course im reading about implantation bleeding but all signs for that is brown/pink in colour well yes last night that is what I had so you can imagine the hope I have well today its heavier it still isn't like a normal period for me? does anyone have any similar stories as I'm thinking this is just an early period and another thing to shatter my hopes.
naty1 · 27/01/2014 14:53
I have no idea. I was always thinking about the implantation bleeding, turned out when i got pregnant i didnt have it.
But lots seem to.
Probably just best to wait and see.
I had a strange cycle around xmas(but then i have pcos and too many sweets didnt help me)
Did you say if oh had been checked yet?
About 25% cases are just men and 25% are both
kayleigh1991 · 27/01/2014 16:33
My partner spoke to the doctors today and it was inconclusive so he has to test again another week wait I suppose! Thanks for advice I will just wait don't think I am but when you have been ttc for so long u cling to every little bit of hope x
Natalie1988 · 27/01/2014 16:46
Kayleigh I know exactly how you feel when you get your hopes up at every little thing. I have my fingers crossed for you!
Naty I got referred to the gynae after 18months of trying, I do have pcos, my partner has been tested and he's fine. I have been tried on clomid and metformin but they never up my dose of clomid which was promised at the start and then they said if that doesn't work I'll be sent for ivf (again promised and that never happened) it just annoys me so much they don't understand what we have to go through. It had been so hard for me for the last 5years x
kayleigh1991 · 27/01/2014 22:16
It's heavy now so clearly mrs AF came early just because my body likes to do that! Never mind always next cycle :( thanks for chat and advice really nice to people who understand xxx
Natalie1988 · 28/01/2014 17:08
Aw Kayleigh keep your chin up Hun, I know exactly how your feeling right now x
Shellster52 · 28/01/2014 23:59
Natalie, it's so frustrating when they don't have any set protocol and you don't know where you stand with them telling you they would up your Clomid if it didn't work and then changing their mind. Then they tell you they will refer you on to IVF if it doesn't work and then they don't. I have had very bad medical help and know how frustrating it is. To answer your question, I am not eligible for NHS as I am in Australia!
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