scientists identify genetic causes of autism

[elportodelgato]

story here from the Guardian

lots of people on here already know my views so just opening this up for comment. Does this research change anyone's opinion re: MMR?

'I hoped my OP might lure in some folk other than the usual suspects. I'm genuinely interested in those parents who didn't give their DC the MMR as a result of the Wakefield paper and media scare, but have subsequently changed their minds in the light of the GMC ruling and the research (in the OP) on genetic causes. Unfortunately I think these people are usually too embarrassed at being taken in to post here and say 'I was gullible'. '

I didn't not give my dc's the MMR after the Wakefield scare as I didn't think it was a serious concern (and take up here is very high, quite the norm to vaccinate).

I mde my choices far later, ds4 is only 2.2 years old.

I don't read the sun etc, in act I arely read any paper: if I do it comes from the Grauniad but mostly I read EBACO (university research database), but hey a little knowledge eh? Just because I am getting top grades in my MA and using what they coinsaider to be excellent scince and research, on here I become a Sun reader because I don't give the MMR.

And fwiw (no doubt little, nobody listens) Novice not giving MMR doesn't give criminally low vaccination figures; plenty, like me, give separate jabs and my child is no more of a risk to yours than any ohter.

I wish people could manage to grasp that! I was pursued at school (old school, ds3 now in SMU0 for not giving MMR as that's what she'd been told (daughter had cancer- and told by whom? wo is allowed to do that?) and she could not accept that my child was not going to be any more likelt to pass on measles than any otehr.

AS it happens ds3 hasn't had the booster but as he had MMR not long before 3 the chances of him being in that 10% of children who do not develop immunity is even lower than for a child immunised at the average age (late due to infections / GP appt delays as we moved). If there was a blood test free on the NHS that could check we would consider the separate measles if not immune however being a carer blood test + single is unaffordable.

And I have never ever told anyone they are either wrong or bad and I resent the suggestions on ehre that all non MMR'ers even think that way.

I know a great many of these posters from the SN threaDS and they are a supportive bunch not into demionising other aprental choices.

FWIW though if people could step into the SEN world for a bit they might understand why some people beocme less accepting of authority. When you've been lied to and pushed aside for eyarrs in the name of funding you get jaded. I didn't even think it was possible for teh system to fail as badly as I now know it can.

SMA, the low uptake rates of MMR do not translate into high uptake rates of singles. Most parents are not as thoughtful and responsible as us lot on mn and the facts are that if singles are offered rather than combined, uptake really suffers. Low MMR uptake rates are having a demonstrable effect on herd mmunity for measles.

It's not all to do with ASD scares though.

Everyone I know in rl at this school hads taken up the MMR or singles jabs.

In my wider community though lots didn;t bother becuase by 13 months they were back at work and clinic was only held 1 - 3 on a Tuesday; or nobody they know gets measles any mroe; or they just couldn't be arsed. My wider community includes the very many parents of under 5's that I worked with for a few eyars so is quite inclusive (my area quite posh (I am not mind), my work area big deprived estates)

I think wakefield is getting more of the blame for low uptake than is fair.

SMA just read your post again and I do take your point about parents with experience of SEN being more likely, through painful and frustrating experiences with the authorities, to question received wisdom generally.

SMA i gave my dd4 the mmr - not all of my children had it , suprisingly she had asd and the rest do not.
I chose to give her the mmr because i could not obtain single jags.
I would have prefered not to give her the mmr because i had suffered a reaction to the rubella vaccine myself and was worried that she may share the alergy (dont know if its genetic or chance thing ).
prior to the jag dd was a "normal" child.she was bright and social.
She and her twin have not had the booster jags , and i am currently "under siege" from the doctors who persistantly badger me to get them boosted.
Never have i been offered a blood test to check their immunity ,in fact ive been told by HV it doesnt exist..
I knew nothing about wakefields research .
I dont know what caused asd in my daughter , i can guess at various things , but i do not know.
She was genetically tested by prof Lampe , even had the miticondiral and micro array tests they all came back normal.... but dd4 is still asd.

I don't know either with my boys DrLove (you know I am Peachy, right? [)

Dh is convinced of the MMR being a culprit for ds3, however he was found it hard to accept the regression and I do beleive he would have found someone to blame. DH however had as much right as me to vetoe MMR so even if i had not I know he would have done.

The measles jab appt came up for the first time last year when we were on an MN meet up camping trip; Dh and I both cried the night before and absolutely panicked before deciding not to attend until ds4 was older. Now, afaik Wakefield didn't even get press accudsations of being measles jabs: it was our knwoledge of our famillies highlt susceptible status that did it, not anything we had read.

The clinic we used has recently closed but AFAIK there is one in Bristol; I have read about the immunity tests but not had one- someone like autism speaks might be able to tell you mroe though? They definitely are out there.

I don't lknow Wakefield and whilst I do think a few things he did were misguided I don't have enough to make a judgement on (taking into account the thing before about alck of acceptance of authority). I do however know a few people who do know Wakefield and they find him to be a good man with principles and a strong sense of right and wrong. I ahven't yet found any reason to discount their takes over what is reported in an incredibly biased press (and anyone who follows the rpess and politics knows how bad the press is, doubly so if like DH they worked in the field (not a reporrted) for several years)

what limited info i have about wakefield leads me to think he wanted to help the kids with asd... i think that could only be a good thing.
It is an awfuly hard thing to watch your child live with , to cope with as a parent.It takes over your life.it affects everyone in the family. how could wanting to find a link , a cause be wrong? .
If someone had given me a way to prevent the asd in my daughter i honestly would have done it. If they could show me a way to cure her now, id take it. My baby girl is trapped in a world of her own , i only see glimpses of who she is in her own mind and it breaks my heart.
Wakefield imo tried to help parents like us and kids like ours... he might not have got it right and it cost him dear , but at least he tried.

I agree dr.

And do take heart: your dd could improve so much. At 3 ds3 walked into a world wherer he was silent, incontinent and unreachable. Now he is almost seven and is at a great school (SNU attached to MS), dry, and talks incessantly. He is still very much SN but any sadness is purely from us: he is the happiest child I ever encountered. Today at sporrts dat ijn the sack race the child in front of him came out in tears at ahving failed to win, ds3 strolled in minutes after everyone else laughing hysterically.

I would still cure him and ds1 (and dss2 who has dyspraxia) if I could, they could take my legs happily in exchange but with ds3 the hardship, at least right now, is certainly not his.

How old is your DD?

Sad isn;t it SWC?

I genuinely thought I was going amd as the techers at ds3's old school llied to my face; it was only when someone I trusted came to me to say they ahd ocncerns and a SNAP bloke got involved that I could accept it was them and not me.

It's a hard learning curve.

SMA - dd4 is 5 next month. She `s mainstreaming after the summer.
think i should stay away from threads like these ....it gets me depressed . Think im still looking for the miracle cure( dd was dx in april)

dito the lying teachers too btw ....(not with dd4 yet , with ds2 adhd, but it does make you think your going .

It takes at elast a year post dx IME to get past teh first hit.

But you know whwre we are in SN. X

at asking the "wrong question" wrt clinical need. that is what is at the heart of this subject.

it's an easy one - do you think that children presenting with abdominal pain, blood and undigested food in stools, among other symptoms shouldhave been investigated for these issues, or not?

(thank you drloves for answering. it's really not a difficult question, novicemama)

will just catch up on rest of thread, as am aware it has moved on.

drloves, do come and join us on SN.

SMA is right, it's hard, and made harder when it is not only the difficultiesyour child is having that you have ot come ot terms with.

The overall struggles to get answers, of any sort (and not only to "big" questions, like what caused the ASD, but to smaller ones,like which school, or what intervention can we get, etc) is something that should not have ot be endured.

drloves It didn`t only cost Wakefield dear, it cost the lives of several children, and disabilities of many more due to unnecesarily contracting Measles as a direct result of his phoney research.

It makes me sick !

I can`t beleive that people honestly think that you can inject a child with autism!

Did wakefield ever say that people shoudln't have MMR? No, I know that much.

And those aprents could have had single jabs. If I can afford them, (albeit with a struggle) as a carer then they could.

Wakefield did not tie anyone up and prevent them from becoming immune to measles.

Is there any research that links Autism to the MMR vaccine?

Reliable clinical research?

He published research that was not true.

How irresponsible is THAT?

He made it fit his suspicion.

what research did he publish that isn't true? link please

where has anyone said that you can "inject" autism?! I think that most people on this thread have a very good idea about ASD, OnEdge.

How did he make his research fit his suspicion? again, credible links please.

OnEdge I suspect you havnen't read all thrad as you would know I am not a non- vaccinator nor a definite Wakefiled follower so have not claimed any researrch exists.

Vut sf is right: can you post links to lies?

OK

briandeer.com/solved/gmc-charge-sheet.pdf

briandeer.com/solved/gmc-charge-sheet.pdf