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Original poster

Alfie Evans 7

926 replies

StayingAtTamaras · 26/04/2018 23:25

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RhinoGirl · 27/04/2018 09:12

Very pleased by that statement from AH. They do amazing things every day and it is such a shame that they have suffered abuse to the extent they have.

Ellie56 · 27/04/2018 09:23

However, what they meant to achieve at Buckingham Palace I really don't know. One wasn't even in.

Grin Grin

Butterymuffin · 27/04/2018 09:27

Moving him won’t be of any benefit to him, it would be for the parents.

This. Doesn't mean it won't happen but for Alfie himself it has no benefit. Hope they can come to an agreement about how to proceed.

CocoaGin · 27/04/2018 09:36

It's the main headline on the DM online that they want to take their son home to live, and it quotes the brothers FB status that Kate and Tom aren't accepting their son will die......

Such utter delusion still. I don't know what it will take at this point.

KoshaMangsho · 27/04/2018 09:37

I said this on the last thread. There have been conciliatory statements in the past and then as soon as things haven’t immediately worked out, the vitriol at the staff has poured out. Given that moving Alfie is a complex process- is his house suitable for carers, will the bed have access to whatever they need etc. This is not going to happen overnight. I would not be surprised if there is an escalation in tensions or we end up back in court.
If the brother is communicating on behalf of the family, albeit unofficially, I am worried that the tipping point for this is not that far off. When you have put all your soul and energy into blaming someone else for your child (again understandably), it’s hard to turn that switch off and miraculously find acceptance.

CanIBuffalo · 27/04/2018 09:47

How are the courts going to ensure that the child will not be subjected to painful amateur attempts to keep him alive?

prettybird · 27/04/2018 09:51

I hope that the family get some peace soon. It's a horrible time waiting for the inevitable. Sad

I know the five stages of grief: denial, anger, bargaining, depression and acceptance are not necessarily linear - and they may need to go through them again once their wee boy dies - so I hope they get good support as and when they need it.

One of the best bits of advice I got when my mum was dying was that in time the painful memories of the husk she became will become less vivid and it will become easier to remember the good times with her. I hope that AE's family will be able to find some better memories of his time alive: the joy when he was born, the little milestones before the degenerative disease set in.

Dh could always tell when my mum was "better" when I visited her as I would come home more upset because I could see the glimpses of the wonderful vibrant woman she used to be. But now with the years passing, the memories of her bringing me up, of becoming, as I became an adult, one of my best friends, are now warm and stronger than the memories of the last few years of her life.

NerrSnerr · 27/04/2018 09:53

I really hope whatever happens the staff at AH (or community staff if transferred) are able to keep Alfie safe from unnecessary intervention.

SilverySurfer · 27/04/2018 09:54

I don't see how they can which is another reason why Alfie shouldn't be moved, the primary reason being it could cause him distress and/or pain.

ItsNachoCheese · 27/04/2018 09:58

Thank you for the new thread

fenneltea · 27/04/2018 10:01

Those are my concerns CanI, I think they want Alfie home to 'sustain life', as they have said, they have no intention of letting him go.

Bornlazy · 27/04/2018 10:04

Maybe they will rent a property that is suitable. This would allow them some privacy, if the address is undisclosed, and give them the chance to look after Alfie away from the hospital setting. I can imagine how difficult and exhausting it must be for the parents (bearing in mind that the mum is pregnant) basically living in that hospital room for days now.

NerrSnerr · 27/04/2018 10:07

This is what concerns me. The army were bringing oxygen masks and I saw people giving advice on how to passing tubes over FB, telling them it’s easy. How far will they go?

GrapesAreMyJam · 27/04/2018 10:14

This reply has been deleted

This has been withdrawn by MNHQ at the poster's request.

Doyoumind · 27/04/2018 10:19

They do appear to be in denial. Even if they wanted to intervene at home, I'm not sure how much it would help. There would be a limit to what they could do. Eventually the inevitable will happen. I would just hope that there isn't unnecessary harm caused.

fenneltea · 27/04/2018 10:27

God it's awful, if there is any risk of causing unnecessary suffering I think he should remain at AH, as cruel as it seems to the parents, little Alfie has to be put first.

user1457017537 · 27/04/2018 10:28

So many messages being deleted from this thread. I feel as though anyone who doesn’t sing from the same hymbook in being shut down. Alfie’s plight has captured the attention of the whole world due to the families’ successful media campaign. I would like to say once again that there is a small number of Alfie’s Army who are quilty of threatening behaviour towards AH and staff. Most people have been holding a respectful vigil for Alfie. Sending Alfie blessings

Soubriquet · 27/04/2018 10:32

Surely there's only so far their homemade interventions can go?

Even a hospital with professional doctors can't stop a person from dying when they are finally going.

FrancisUnderwood · 27/04/2018 10:33

I think Alfie is all round better off remaining in Alder Hey, in terms of safety, comfort, security and care.
Returning him 'home' (not that there really is one) is pandering to the wishes of the parents and i'm surprised it is being considered....all things considered.

His case is not like other cases.

fenneltea · 27/04/2018 10:36

That's true Soubriquet, but I would hope he could for example be given drugs for pain relief or sedation if he needed them, and I don't think the parents would be happy with that, perhaps I am wrong though. My only hope is that Alfie isn't in any pain or discomfort at any point.

FrancisUnderwood · 27/04/2018 10:37

Being discussed on This Morning now.

NerrSnerr · 27/04/2018 10:41

I agree that if we are purely looking at Alfie’s best interests (like it should be) he should stay at AH. I think they’ll go to any extreme to keep him alive.

MNHQ
RivkaMumsnet · 27/04/2018 10:45

Just wanted to reiterate what we have said on previous threads

We are asking you not to post any speculation about the case or any personal comments about the family of this child.

We really do want to allow discussion to continue, but ultimately we'll have to consider deleting whole threads if we can't keep them within the realms of civility. And as ever, huge thanks to the vast majority - who are doing just that!

fenneltea · 27/04/2018 10:45

It's about time what is being said in that interview was heard, thank goodness!

chandlersfraud · 27/04/2018 10:46

Pleased to see quite a few comments on the official page about respecting Toms statement etc.

But there were also a few 'complaining' that they weren't going to get any more updates. amd of course loads about gagging orders and emotional blackmail.