Charlie Gard 20

[CremeFresh]

Don't know if anyone else has started a new thread .

But CY doesn't have much time Solomon, that's what we're saying..

And precisely what Sostenuto just said here. The comments seem unreal.

God why am I even responding to that "fucking unfair" remark. Why the fuck has it affected me like this. Over and out.

Umpteenthnamechange I didn't read it like that, please don't be upset.

Poor, poor thing. She is so in 'fight' mode still and I don't think she could stop if she wanted to. That energy has to go somewhere. I really ache for her.

During a particularly stressful time in my life someone who cared deeply about me suggested that I needed something to calm me so I could see things rationally. She was right and it helped. I hope someone suggests this to her, too.

Of course that was back in the days of Valium as a cure all and I'm sure there are better things out there now.

You could be rightNotonthestairs, this has been her normality for months now, she could be too scared to stop because it would be letting go...

This case has affected a lot of us, I can see that reading all the posts. Sending love to all life seems so random and unfair doesn't it.

To the poster who said her ten year old was struggling with Charlie passing away (I think it was Starlight, can't tell now on my phone) - I understand, my son has too although he's a bit older. He got quite heated about it yesterday saying that parents should always have the final say and that the hospital should let him go home. It was hard explaining why it had come to this and I think he thought badly of me somehow for my opinion.

I'm hoping that CYs account has been hacked or cloned. I've long suspected that there were a core of trolls whipping up the hysteria and frenzy of some of the more naive CA, and maybe they've started targeting C&C themselves.

Which is utterly appalling, but somehow I find it easier to accept than thinking about Connie being so distressed and grief stricken, and coping with it by arguing on SM than not being able to face real life.

No I don't think she's been hacked

I. Believe it's her.

Apparently,The Sun have pulled the thread now .

Why would a relative use her account rather than their's.

It's still up on my FB.

I have donated to both evelina and gosh. I am very sorry for the gard family and hope they find peace but the abuse of hardworking staff and judiciary and the total ignorance shown is shocking.

I think it is her and I totally agree that she can't turn the fight off. She is going to collapse in a big puddle at some stage soon and I just hope she will have proper care to get her better again.

If anyone wants cheering up, Wilf has appeared and posted a very sweet thread.

Who's Wilf?!

www.mumsnet.com/Talk/_chat/2990024-Updates-about-me

Wilf

I'd add that it's not right to criticise CY now even if it seems she should be torn away from her phone. I think it's clear she doesn't seem to have been surrounded by the right personal advice in regard to this. But looking back I acted frankly bizarrely when my DC was first diagnosed and intubated, I was in such shock - I think I had a shower in the hospital paediatric unit and went into autopilot normal mode. I also cracked wholly inappropriate jokes the whole way along at times when DC was incredibly unwell. It was a. Utter shock on my part and complete total disbelief and refusal to believe something bad would or could or had happened and b. Like a shield really. I was always the class clown, but I didn;t know it would turn into warped dark humour on my child's deathbed. Thinking of this I've been horrified that I didn't show my distress in a more normal fashion but I didn't consciously choose to act like this in this traumatic situation. On my child's last night alive I had no privacy to say what I wanted to say to them as surrounded by a few nurses who were chatting about TV and staring every so often as if I were a spectacle. Most of the nursing staff were excellent throughout but these 2 in particular were less experienced and really were not sensitive to the situation. I hated it, and eventually ran out into a far away corridor and sat there on the floor sobbing in peace and staring into nothingness for a good 45 mins when I should have been with my child. Before that, the last time they were intubated after a crash call the anaesthetist told me to kiss them goodbye. I said "no (DC) will be fine" and stood in the corner watching, thinking to myself of course they'll be fine, they have to be fine. To a third party they may well have said why on earth are you not spending every second with them? What kind of a parent wouldn't kiss them goodbye? It was not because of any lack of love or feeling.
It's not for anyone to speculate at this point.

It doesn't matter how his parents are behaving, tbh. Nothing they do or say will make this time easier for them. The people working with them will understand that and will have support to deal with it afterwards. They will remember this as that awful situation they once dealt with. His parents will live with this forever. So, we can sit back and think of all the ways we'd do it better, but actually, we should be just so grateful we're not the ones doing it, this time.

Yep must have been the post I just put in the sun more or less saying why aren't you moderating your own fb account and how low can you get in other words and that they were the worst paper in the history of Britain.

Adorable! That made me smile, thank you

Leghoul