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Charlie Gard (16) Future implications arising from case

999 replies

Puzzledandpissedoff · 24/07/2017 19:43

If anyone wants to post, perhaps we could consider what implications today's case might have for others in future ... ?

OP posts:
muckypup73 · 25/07/2017 15:54

straighttalker, I personally think they will mourn the what ifs, they should be spending every second with Charlie now but they are choosing not too and choosing to go through this rigmaroll instead.

SomeDyke · 25/07/2017 15:54

"Also according to CGF, GOSH's proposal was in line with the MNetters here who know about transfer teams: that C would arrive home and be extubated about an hour later."

Which is clearly not what the parents want. As regards the legal side, Charlie has a Guardian -- so given that previously the judge said Charlie could not be removed from GOSH without his explicit order, if/when he is moved now, who has legal responsibility? Does the Guardian continue in place? Does the court assume responsibility? If private staff were hired to provide care, what is their legal position? Has there been another case like this one in the UK??? I think it has already been explained elsewhere (many thanks for the specialist knowledge!) that even in a parents home, the hospital/transfer staff are still responsible for the care of their patient, even/especially when that care is end of life care.

I just want to see that Charlies interests are protected, right to the end. I think the Guardian, GOSH, and the judge have that, but what a course they need to try and steer!

But I am very grateful for the information that has been provided on here as to how such situations are usually handled nowadays. As I said before, very different to what my mother had to got through, and I think it is in the public interest to understand exactly how far we have come as regards compassionate end of life care. I am full of respect for the NHS staff who have to navigate these issues on a daily basis.

Bumdishcloths · 25/07/2017 15:54

@mydogisthebest hit the nail on the head there. 'Spend some time with your child'

The constant running to the media/courts is unbearable.

Writerwannabe83 · 25/07/2017 15:55

What a mess.

When I heard the parents wanted him to be allowed to die at home I was in complete agreement that they should have their wish but that was when I thought he would be extubated shortly after arrival and be allowed to pass away, not that they wanted him at home, still ventilated, for days.

I don't agree with what they're doing but I feel very sad for them. They are obviously desperately clinging on to him, and I understand that, but it's all so very sad.

Quartz2208 · 25/07/2017 15:56

It's important because thisisgoingto havehuge legal and ethical ramifications (not just on this country the way the US has jumped on the socialised medicine bandwagon without understanding of the NHS are politico legal system and the case is frightening).

But at the heart of it are two people who are refusing to accept reality, who believe that things could be different and ultimately they are going o have to live with what they allowed to play out

oakleaffy · 25/07/2017 15:56

The Kid glove treatment of the parents must stop.
The judge, poor chap is in an unenviable position, but when peopleare being as...unyielding and stubborn as CY and CG someone needs to make them realize their little innocent child is the ONLY thing that matters.

Redglitter · 25/07/2017 15:57

I have huge sympathy for the parents but they don't come across as terribly likeable.

This is again turning into something all about them. The upheaval of moving Charlie not to mention how many staff would be taken away from looking after other children to facilitate this request which isn't going to benefit anyone. Yet they think this should all be done just because it's what they demand.

They've wasted hours today in court time which would be far better spent with their son.

They need to stop this circus go back to the hospital and quietly and privately say their goodbyes. I hope GOSH are sensible and give them a definitive timetable for their plans. Don't let this drag on any longer than it already has

catinb0ots · 25/07/2017 15:57

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Puzzledandpissedoff · 25/07/2017 15:58

Let's just assume for a moment that Charlie was somehow allowed home ... it didn't originally seem likely, but since nobody's prepared to say "no", I guess anything could happen now

In that scenario, medics would still need to attend to withdraw life support - but does anyone now believe the parents would allow them over the doorstep in order to do that?

I mean really?

OP posts:
Elendon · 25/07/2017 15:59

Who would want to be a judge in this case?

Impossible.

Maryz · 25/07/2017 15:59

This reply has been deleted

Message withdrawn at poster's request.

officeshoes · 25/07/2017 16:00

Could be Puzzled but realistically how long could they keep him living for like that with no external help?

oakleaffy · 25/07/2017 16:00

Writerwannabe, Like you, I assumed Charlie'going home' would be for a very short time..but niowit lookslike spinning out the poor lad til his Birthday...then what? Christmas?, New Year? Easter..his 2nd Birthday?

MrsSthe3rd · 25/07/2017 16:00

Is the hearing still going on? I can't find the people referenced on this thread.

I'm absolutely heartbroken for Charlie. Even for what his parents are facing. However, their behaviour and actions is what is unbearable.

He's comfortable, well as much as he can be, where he is. I understand they've got an axe to grind, but why can't they deal with that after Charlie's passed away. They're going to remember this and live with the guilt for years to come.

Saucery · 25/07/2017 16:01

With police having to stand there to monitor the situation and even having to step in to prevent NHS staff being attacked? Bloody ridiculous.

officeshoes · 25/07/2017 16:01

Interesting Maryz how would the other people in the hospice feel though? Could it possibly be kept confidential, I rather doubt it now

Elendon · 25/07/2017 16:01

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Tillymintsmama · 25/07/2017 16:02

I can't warn to the parents but I guess grief does strange things to people. I do also wonder what they are going to do with all that cash they have.

It's a complete media circus now. Sad.

JaneEyre70 · 25/07/2017 16:02

I don't think C & C have taken on board that it's going to be a horrific experience wherever it happens. Being in their own home isn't going to feel familiar even for them, let alone Charlie.

officeshoes · 25/07/2017 16:02

MrsS they have adjourned for a bit to discuss

Writerwannabe83 · 25/07/2017 16:02

From Vincent McAviney twitter feed, it looks as though GOSH have found a hospice

Well I hope they have and I hope C&C accept that the Hospice is the best they can hope for and agree to going.

Tillymintsmama · 25/07/2017 16:02

warm

officeshoes · 25/07/2017 16:02

Bath him in their own bath is just bonkers

angelnix · 25/07/2017 16:02

Hearing is currently adjourned MrsS

sodablackcurrant · 25/07/2017 16:03

Puzzled.

I was thinking the same thing all afternoon.

Get him home but refuse to allow the tube to be removed.

Can you imagine the dilemma of the carers in that scenario.

Seems they will do anything now to keep the child with them.