Charlie Gard (16) Future implications arising from case

[Puzzledandpissedoff]

If anyone wants to post, perhaps we could consider what implications today's case might have for others in future ... ?

Connie and Chris need saving from themselves, where the feck are their parents, their siblings, people who love them and can tell them enough fighting, just be with your baby, say goodbye and we'll look after you at this awful time? They must have someone in their lives who has enough sense and loves them enough to do that?

Hearing just resumed

selfish, selfish, selfish

Ah. The parents? I cannot believe someone has the audacity to write such a thing - and I say that as someone who contributed a bit to the early threads. Then I could see the ghastliness of the so-called Charlie's Army and I said as much. Now, I see that they are not the only ones to have made this young child's situation a mission.

FFS. Like the judge says, please think of what's best for Charlie. I know they are in tremendous distress, but they're just not thinking clearly.

No mention of whether staff would be willing to carry out care and the necessary procedures in the family home. I doubt they would, they can't be forced to, and somebody needs to tell the parents why. Apart from the practicalities. Actions have consequences.

Why is this aspect not mentioned in court I wonder?

nina people have been very measured on most of the threads but this is getting beyond ridiculous now and I have much sympathy for the parents.

People have been quite leery of gathering/protesting near the hospital since the statement from GOSH bust open the dam of a considerable public backlash against CA types, haven't they ?

I suppose one downside (or, upside, depending on personal perspective) of a hospice, or private home, is that gathering crowds would once more be on the table.

They aren't just asking for Charlie to go home to die. They are asking for his ICU care to be transferred to his home for an extended period prior to this which is a completely different thing entirely.

On Sky News, right now, the president of the children's hospital in Italy is speaking and has named the Italian Professor

MissHavishamsleftdaffodil correct, they are the only private ICU teams that I ever knew of and don't do anything other than retrieve and set up to move on.

That's correct MissHavisham - ongoing care would need to be provided by either NHS staff or via a private agency, complete with all of the equipment. The transport team would need to take their equipment with them when they leave. It may well be that a nurse stays with the family to support them, but this is an extra team member who may have come from the ICU or from the transport team.

Pemba I agree that actually the logistics may be what decides this in the end?

Isn't it that the ventilator needed for several days of at-home-care won't fit through the door.

@JoshuaRozenberg

Butler-Cole: full disclosure and communications must be ordered.

CNN has all already named Italian professor

I hope all hospices refuse to take him. His home is at
GOSH. He's spent longer there than he's ever spent at 'home'
Absoloutly wicked to subject a dying child to this type of treatment

Thank you Friendly

Goodness, this all seems a bit of foot-stamping played out in court, a one upmanship.

Just awful.

TheWeeWitch you aren't alone in your thoughts.

And Angel , cross post. Very helpful.

nina2b, it's probably best if you don't contribute then and report.

To be honest, the only time that the threads have dissented in the past has been when a select group of posters came on to police it.

MNHQ are probably watching closely and I am sure there are lots of people reporting comments on the thread as per the last one.

@JoshuaRozenberg

Armstrong tries to explain dispute that has been taking place over the past few minutes in private.

I do wonder if the parents have done any research at all on who would actually provide for what they want. Ie staff etc. As people have pointed out, a hospice would have to be found to take them and either GOSH staff or private staff found to care for Charlie if he were at the home of a family member. Whoever's doing the care would have to be prepared for the possibility of family refusing to allow it, mobs outside, police being called in etc.

I mean, say whatever else you want about the Dr Hirano situation, but the parents had at least found someone who was willing to treat him, and had an idea about what was to happen when he got there. There was a plan. Do they even have that now?

@JoshuaRozenberg

Judge: I direct that the GOSH palliative care consultant should speak now to the parents' care expert. I'm happy for the lawyers to listen.

Poor MNHQ! Hopefully most people will stick to the rules as for the other threads.