Charlie Gard (16) Future implications arising from case

[Puzzledandpissedoff]

If anyone wants to post, perhaps we could consider what implications today's case might have for others in future ... ?

Just sickening.

writerwannabe - absolutely not, once the media and CA get hold of the details, it has the potential to be a total circus. There are places within the hospital that it can be undertaken with peace, dignity and compassion.

I just wish that the media and CA would let this family have some peace and privacy.

Just announced on BBC news they want to take Charlie home to die that's why they are in court.

The Yates-Gard family seem unusually impervious to facts.

They literally seem unable to take in anything other than that which they want to hear.

Chris Gard's latest statement is still attempting to push his 'parental rights' in providing palliative care of his choosing. But this court case has been all about the rights of the child - how can you be subject to this same line for the past six months and still be oblivious to what it means?

And that's just one example.

this is why im annoyd gosh werent allow to defend themselves in court against connies accusations

its lik u can say whatever u want even if its a lie with no comeback

Afaik yolo, you're right

and matthew wright just likd my tweet thanking him for saying the press were on sided in thir reporting and not enough praise for gosh

So yet more delay organising suitable transport. b it he cannot be moved, really sick now. No excuse for this.

So are they requesting and GOSH will say no....and then what happens? Do things get delayed more?

Probably lead to another load of appeals.

Probably Miranda, I'm sorry, this is so out of control and being played for all its worth.

I guess they don't want him to die at GOSH. In a way I can understand that. I had to register my twins birth at the same Registry Office I'd been to register my mums death a couple of weeks earlier. It wasn't the pleasant experience I had registering ds1 birth. I know this doesn't compare to the Gards situation.
I wonder if he could be moved to a hospice to die rather than to his home.

@GrumbleBumble

This makes a lot of sense to me. Also, it can't help that he's their first child so they are unlikely to have any basis for comparison. Whereas if they'd already experienced all the stuff that the average eleven month old can do (babbling, crawling, pulling up and maybe trying to walk, communicating through gestures), I think maybe it might have been easier for them to see how very ill their poor little boy is.

PS Another mum of a late baby here - I was so glad to avoid the wobbly neck phase.

This is getting ridiculous. Go and be with your boy

Agree completely Jane, they need to be careful that the poor childs needs aren't being relegated to the parents wants yet again.

Lynnnm63 transfer to a hospice for withdrawal of ventilation is a possibility, but Children's Hospice places are difficult to come by and most don't offer ventilation - it would again need a transport team to become involved and withdraw from their ventilator (see my previous long post on P15 for the logistics involved) They would need to involve the hospice team asap and make plans. There would need to be guarantees that CA etc won't pitch up there etc.

I suspect that this is an option which has been explored, but they are wanting to take him home, and in their mind, that is the only option.

This could delay yet again while evidence is gathered and presented. Would JF be able to rule today on this?

this may sound very blunt, so forgive me: am I right in thniking that the minute ventilation is withdrawn he will die?

This was my understanding. However, he may have some mild respiratory effort himself and if that is the case it may be that he can survive a short while without the ventilator. I can only speculate though, I would assume it's a discussion that doctors will have had with his parents.

Is there going to come a time when the 'but they're grieving parents' free pass stops, MNHQ, and we can actually start voicing opinions about their behaviour just as we would anyone else who has so relentlessly put themselves into the public eye?

The parents wants. The parents wants.

I can't even begin to imagine what is going to happen if a post mortem is a legal requirement...............

I've been following these threads, but not posted before.

This latest court visit seems to be all about the parents. How can moving him home be in Charlie's best interests. The parents need to remember that they are the grown-ups here and act accordingly. I get that they probably don't want Charlie to die at Gosh, considering how they feel that they have been completely let down by the hospital, but surely they can see how traumatic a move would be. They need to be brave for him.

Unless I'm wrong and the move would be easy & straightforward.

I can't even begin to imagine what is going to happen if a post mortem is a legal requirement...............

I doubt very much he will have one unless the parents request it.

They want to BATH him and put him in his own bed.

FFS. I don't care about spirit of MN, this is 100% totally and utterly about them and not Charlie. At all. Anyone who thinks so is as deluded as they are. If you think they are deluded

Why yesterday did they say they were going to spend as much time as possible with him and today they're in court again :(

And what if Charlie does go home to die? The media & CA groupies hanging about outside waiting for the poor little thing to stop breathing?

I'm not even sure that he'd survive travelling the relatively short distance to home at this late stage.

Considering GOSH is a leading hospital for very sick children, I'm sure they have much experience at handling end of life care for little ones (as devastatingly sad as that is). At this point I can only imagine that being allowed to pass peacefully where he is carries much more dignity than the alternative.

Above all, please don't let this be the start of a whole new appeal chain. If it is, there is every chance that Charlie will pass away mid-fight - and possibly not in his parents arms at all, which would be extremely sad for everyone concerned.