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Charlie Gard (16) Future implications arising from case

999 replies

Puzzledandpissedoff · 24/07/2017 19:43

If anyone wants to post, perhaps we could consider what implications today's case might have for others in future ... ?

OP posts:
Sostenueto · 25/07/2017 11:41

I actually can't put what I think about that Jane.

NatashaGurdin · 25/07/2017 11:43

I just saw the American man whose son was given the medication because he has a similar but not the same condition and apparently shows some improvements on the news.

He really annoyed me when he said something like GOSH should be aware of all these new treatments. Seriously? Does he really think that GOSH is ignorant of the work done in the US and Italy etc? It seems to be a very small pool of experts so presumably they either know each other personally or know of each other?

This was after he had effusively praised the doctor to the high heavens. Hmm

Sostenueto · 25/07/2017 11:49

Again I can't put what I want to say. Have the parents any idea what they are doing to GOSH and the NHS? I understand why they would like to take Charlie home to die, but they know he cannot be moved because he is do I'll. What is the point if all this?

Sostenueto · 25/07/2017 11:50

Why are they still fighting?

oakleaffy · 25/07/2017 11:51

Psychic mediums..now that really is scraping the barrel.
Giving readings while her own children cry in the background? ugh.
Seems every self serving whacko has come out of the woodwork over the Gard case.

muckypup73 · 25/07/2017 11:51

Wow the Daily Fail!!!

An American professor was criticised by Great Ormond Street last night for giving Charlie Gard's family false hope.

Michio Hirano said his experimental drugs had a chance of helping the sick child and he offered to treat him in the US.

But lawyers for Great Ormond Street said they were concerned to learn the doctor had a financial interest in some of the drugs he proposed to use. The children's hospital said it was disappointed he had been so optimistic when he had not examined Charlie himself, or read his latest medical records or seen his brain scans.

The court case over Charlie's treatment was reopened after Dr Hirano and six other experts said they had new evidence that could affect the judge's earlier decision that the boy would not benefit from further treatment and should be allowed to die.

But Great Ormond Street's lawyer, Katie Gollop QC, said there were no grounds for such optimism and she questioned why Charlie's parents were led to believe Dr Hirano's nucleoside bypass therapy could help.

n a statement to the High Court, she said: 'When the hospital was informed that the professor had new laboratory findings causing him to believe NBT would be more beneficial to Charlie than he had previously opined, GOSH's hope for Charlie and his parents was that that optimism would be confirmed.

It was, therefore, with increasing surprise and disappointment that the hospital listened to the professor's fresh evidence to the court.

'On 13 July he stated that not only had he not visited the hospital to examine Charlie but in addition, he had not read Charlie's contemporaneous medical records or viewed Charlie's brain imaging or read all of the second opinions about Charlie's condition – obtained from experts all of whom had taken the opportunity to examine him and consider his records – or even read the judge's decision made on April 11.

'Further, GOSH was concerned to hear the professor state, for the first time, while in the witness box, that he retains a financial interest in some of the NBT compounds he proposed prescribing for Charlie. Devastatingly, the information obtained since 13 July gives no cause for optimism.

Dr Hirano, a Harvard-educated neuroscientist, told the High Court along with Charlie's parents Connie Yates (left) and Chris Gard (right, holding his son) that new drugs had a 'small but significant' chance of helping Charlie's rare condition and it was 'worth trying'

'Rather, it confirms that while NBT may well assist others in the future, it cannot and could not have assisted Charlie.'

Dr Hirano, a Harvard-educated neuroscientist, told the High Court that new drugs had a 'small but significant' chance of helping Charlie's rare condition and it was 'worth trying'.

Great Ormond Street has been praised by judges for its care of Charlie, but has faced condemnation by some pro-life campaigners.

It has emerged that hospital staff have received death threats and abuse and that police were called after 'unacceptable behaviour' was recorded in the hospital.

Great Ormond Street has been praised by judges for its care of Charlie (pictured), but has faced condemnation by some pro-life campaigners. Hospital staff have received death threats and abuse and police were called after 'unacceptable behaviour' was recorded in the hospital

The case took on the air of a circus when Donald Trump and Pope Francis made high-profile interventions at the start of July. They were swiftly followed by a radical American pastor loudly calling on God to change the judge's mind. The pastor – Patrick Mahoney – arrived on July 9 bringing his 'power of prayer'. He has been arrested – and jailed – in the US for repeated direct action against judges and medics he perceives as being pro-abortion.

Next up was American attorney Catherine Glenn Foster, part of Rev Mahoney's pro-life lobby. She planted a tender kiss on Charlie's head and then tweeted it to her followers and made it her Facebook profile photo.

She has apparently been offering legal tips to the family. Alasdair Seton-Marsden, a UKIP candidate in the general election, was also involved in the case.

He initially made statesman-like pronouncements on behalf of the family outside court. But then he started appearing on American television accusing the NHS of holding Charlie 'as a captive'. He then fell out with Charlie's parents over the media strategy.

Last Saturday, hospital chief Mary MacLeod called in police and issued a statement revealing 'a shocking and disgraceful tide of hostility and disturbance'. In response, Miss Yates and Mr Gard said they were 'extremely upset by the backlash we have received after Great Ormond Street Hospital put out their statement'. They added: 'We too have suffered from the most hurtful comments from the public and GOSH is aware of this.'

Dr Hirano, of Columbia University Medical Centre in New York, specialises in mitochondrial depletion syndrome. He did not respond to a request for comment.

www.dailymail.co.uk/news/article-4726448/Hospital-slams-Charlie-s-doctor-giving-false-hope.html

Sostenueto · 25/07/2017 11:54

Unbelievable! Now back in court this afternoon about presumably where Charlie can die! Words fail me. Angry

Lucysky2017 · 25/07/2017 11:54

24 July GOSH press release here www.gosh.nhs.uk/news/press-releases is a good summary.
Not sure why lawyers would be due back at court today but may just be tidying up issues, who pays costs and that kind of thing.

Sostenueto · 25/07/2017 11:57

OK obviously gosh can't let him be moved because he is terminal and may expire on journey, and if they did, they would be accused of lying about Charlie not being able to be moved so he could have gone to America.

Doubledottvremote · 25/07/2017 11:57

There was a photo album on one of the 3 baby boys groups with angel card readings. The comment was very pissed off that no one had paid much attention to the angel card readings she'd offered to raise awareness for the baby and so she wouldn't be doing it again in that group. And a nice passive aggressive thank you to those who bothered to join in for him.

The taking advantage of vulnerable people and their families by advertising their psychic business etc really sits wrong with me.

Sostenueto · 25/07/2017 11:58

Scrub my last two posts please.

Allington · 25/07/2017 11:58

Well, at the moment CY/CG are protected by sympathy (quite understandably and rightly). As time goes on that sympathy will ebb and more and more people will be willing to challenge them. And I suspect that is what they will need to hear eventually if they are to move on.

Whether they are capable of hearing it once they have had time to grieve is the question, but if they don't they are going to damage themselves more than GOSH in the end. I doubt even the loudest shouters would turn down a referral to GOSH if their child was seriously ill and GOSH one of the (worldwide) centres of excellence and advanced treatment.

IdentifiesAsYoda · 25/07/2017 11:58

Sostenueto

There's lots I'd like to say about the parents too.

In their anguish, though, they are unassailable

Doubledottvremote · 25/07/2017 11:59

I think if it was about where he should die then the family would have been issuing statements on that.

TheWeeWitch · 25/07/2017 11:59

Thanks for posting that Mucky. V interesting that the Fail are taking a strong position in that direction.

oakleaffy · 25/07/2017 11:59

Sostenueto Please tell us you are kidding about 'back in Court yet again? [Shock]

Sostenueto · 25/07/2017 12:01

Sorry for last couple of posts but this now beyond reasoning to me.

Writerwannabe83 · 25/07/2017 12:01

muckypup - I'm also very pleasantly surprised by that article!!

TheWeeWitch · 25/07/2017 12:02

Concerning that CY is engaging with a medium on FB.

Tangent: My ex MIL spent £40,000 of her divorce settlement on psychic readings over the phone - now, hearing that people are involved with such always causes me no end of alarm!!

LapinR0se · 25/07/2017 12:03

I know it has always been the parents' and CA's narrative that there was no brain damage. The posting of those MRI scan's and the erroneous interpretation of them is what got me interested in this case in the first place.

However now that Connie has been allowed to take the stand and assert this information, unchallenged at the very end of the court case, and Chris stood outside the Courts and said exactly the same thing, it has been given credence.

GOSH has stated in their position statement that there was damage but in my opinion not clearly enough and also it is not getting an appropriate platform for the public. Instead the media are by and large going with the parents' narrative.

All the general public will remember is that GOSH blocked a child from getting treatment in America, and so he died.

DorotheaBeale · 25/07/2017 12:03

If in January Gosh thought and evidenced that Charlie was brain damaged why did the judge give them a month to raise the money?

Stella, he didn't. The judge made a point of saying that the case was never about money. If GOSH had thought the treatment was suitable for Charlie, they would have given it.

I don't know where the idea that the judge gave them time to raise money comes from, but it is not what happened.

Ellie56 · 25/07/2017 12:05

oakleaffy
This was posted further up the thread.
twitter.com/WoodwardRJ/status/889799762890948608

oakleaffy · 25/07/2017 12:05

The WeeWitch...Oh my goodness. Derren Brown has done some good work exposing these fraudsters who say they can ''give messages from loved ones'' or who can read the future.
It is so wrong, as those who contact such people are desperate and vulnerable.
Load of old cobblers.

oakleaffy · 25/07/2017 12:06

Thanks Ellie