Just caught up - I can't believe how quickly these threads fill up.
I was talking to my friend about the CG case earlier as she's also a paediatric nurse and works in a Children's respite home so had vast experience in caring for children with complex and life limiting condition and she was telling me how the story about poor Charlie has really affected her and her colleagues. She said about 90% of the children they care for have a quality of life despite their condition in that in some way they are able to communicate, they have movements, they can display pleasure and they respond to interaction etc, but she said for the other 10% of their patients it can be heartbreaking caring for the child. She said that looking after a child with no quality of life is so saddening and makes her realise how cruel and unfair life can be. She said she completely understands why C&C are desperate to cling on to hope but that they also need to think about what kind of life they will be choosing for Charlie if the only possible outcome of this treatment is that he can come off the Vent and all his other problems remain.
And just to add in my experience of transporting ventilated children: On the ward I work on we do have to ventilate children should they deteriorate and then we contact the Transport Company who are specially trained to transport ventilated children to come and collect the child and take them to one of local ITU departments. They company is called the Retrieval Team and they are extremely Specialised, it can't just be 'normal' nurses who travel with sick and ventilated patients. When they arrive on our HDU department (where we have ventilated the child) it takes them on average about two hours just to transfer and stabilise the patient from our hospital bed/Cot and equipment on to their own transport trolley and monitoring equipments and pumps. Moving and transporting a sick and ventilated child is very, very risky, even when it's just an ambulance drive to another hospital I can't even imagine how incredibly dangerous it could potentially be to get Charlie to America. I can't even fathom how it could safely be done.
As I said, it would have to be a Specialised Team who accompanied him, it wouldn't just be the standard GOSH ITU nurses, and I can't even imagine anyone feeling comfortable doing such a transfer, I can't see how anyone would want to put a child at such risk or put themselves in a potential situation of Charlie arresting mid-flight and them being responsible for his medical needs.
I think I'd be saying that if the American Doctors want Charlie with them then they should be the ones to come and collect him.
I saw a recent photo earlier of Charlie wearing a football kit and he looked so, so unwell. I haven't seen the photo that has been referred to a few times in this thread (the one with his eyes open?) but it sounds from reading others comments that he looks very sick in that one too.
I hope there is closure soon and that Charlie is allowed a peaceful passing because I think that is what is going to be the outcome 
My thoughts still go out to C&C and I hope they have someone supporting them properly as opposed to the kind of 'support' the CA are giving