Dear mums net
I would be so grateful if you could help with the challenge we are running on social media to raise awareness and funds for gene therapy trials into the condition that my daughter Sohana suffers from. Its really easy - all you need is a tongue! but Damian and Benedict have used the wrong wimp code on their boards so please do visit our website www.sohanaresearchfund.org or check out the Facebook page for details www.facebook.com/SohanaResearchFund
Channel five ran a news piece youtu.be/45jXP5GSgw4
and the various videos
sohana's
damians video
Benedict and sienna
I would be so grateful if you could join in with your families on Facebook/other and spread the word!
Very best wishes
Sharmila