Thank you for your kind offer, Leonie.
I have just had an appointment with a charity that are going to allocate me a support worker, who is going to help me reapply for DLA, ESA and Direct Payments.
These payments will help me cover the additional costs that I incur through my disability.
Right now, I can't cover any of the costs that my Care Needs Assessment from Adult Social Care says I need, and that I had until two years ago with the financial help from these benefits.
I need DLA and ESA to enable me to pay my subscription charges for my Medicaid bracelet, I have been unable to renew mine with up to date information for two years now, and my treatment has changed considerably in that time, and I am on additional medication that isn't on my old one either.
I need DLA and ESA to pay for new anti-suffocation pillows, that haven't been replaced for two years, when they are meant to be replaced every 6 months.
I need DLA and ESA to pay for a new kettle tipper, as mine has broken.
I need DLA and ESA to cover the increased transport costs I face as I am unable legally to hold a driving license. As I no longer get DLA, a 'key' benefit that enables access to other things that a person with disability needs, which means that I now cannot get my free bus pass from the council, so have to pay ALL my transport costs, reaching £230 a month now.
I need DLA and ESA to cover the costs of getting a passport to use as I.D, as I am unable legally to even hold a provisional driving license due to my disability.
I need Direct Payments from Social Services to cover the cost of hiring a gardener to cut my lawn, so that I am not in breach of tenancy for having a messy garden.
I need Direct Payments from Social Services to pay for someone to do my ironing, as I have injured myself by burning myself while having a seizure, so it is unsafe for me to do.
As I no longer get DLA, a 'key' benefit to access other services, I was taken off the (very long) waiting list with OT to get a wet room fitted. As I could drown in a bath if I have a seizure in there, it is unsafe for me to use the bath. This means that though I was next on the list to get a wet room fitted 2 years ago, after waiting 4 YEARS to reach the top of the list, I was taken off the list. For the last 8 years, I have had no choice but to only wash myself by having strip washes standing by the sink. Even if my DLA is reinstated, it will take ANOTHER 4 years for me to reach the top of the list again. By which point, no doubt, I will have been reassessed again, and if I lose my DLA again then, I will once again be taken off the waiting list.
So far I have spent EIGHT YEARS being unable to have a proper wash.
It is very demeaning to even be unable to properly WASH oneself, especially as it is down to the removal of a benefit that I relied on.
So when you say that reassessments don't hurt genuinely disabled people, think again.