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Disability benefits should be cut

327 replies

benandoli · 06/10/2010 08:45

OK so if a family has a child with a disability which results in that family having extra costs then they should have disability benefit and use the money to cover those costs. I am sure that many families in this situation should receive more. However, can someone please explain to me why a family who have a child with a disability, adhd or autism for example , where extra costs do not result , where the earning potential of the family has not changed as a result or indeed where the family never worked anyway should receive extra funds courtesy of the tax payer. Also why should parents in this situation receive a carers allowance and then work less hours as a result of the allowance rather than as a result of the caring that needs to be done? Many families are well deserving I know and they should probably get more, but many are working the system and getting their kids over diagnosed.

OP posts:
MaMoTTaT · 06/10/2010 11:12
fanjoforthemammaries7850 · 06/10/2010 11:12

scary stuff isn't it!

MaMoTTaT · 06/10/2010 11:13

haha and you know what when I read your post just now I didn't "see" the OP before your second paragraph - I intitally thought you were talking about me Grin

was thinking - blimey I know we disagreed on another thread but that's a bit harsh.

ShirleyKnot · 06/10/2010 11:14

"I am ann inclusion manager in a primary school (SENCo)."

I honestly despair. (And I do not have children with SN)

merrymouse · 06/10/2010 11:17

So there is an alternative universe (with access to mumsnet) where a family can diagnose ADHD and get DLA?

Curiouser and Curiouser.

fanjoforthemammaries7850 · 06/10/2010 11:17

sounds like an exclusion manager to me.

chocoholic · 06/10/2010 11:18
Shock If you really are a SENCo OP, you have a lot to learn. I suggest you start by reading these comments here. If you want to learn more about the lives of these children and families you are meant to support then do please go on the SN board and find out the facts before writing dreadful posts like this one.
asdx2 · 06/10/2010 11:22

It's scary to think people such as OP have the responsibility of our children's education in their hands SadThank god she's not my kids' SENCO I have enough battles to fight without fighting the SENCO as well.

thedollshouse · 06/10/2010 11:23

Oh jeez. I can't believe that someone is suggesting that families have their disability benefits cut. HmmAs if life with a child with additional needs isn't hard enough.

I would say that there are perhaps adults who are receiving disability benefit (I know of a fair few with bad backs) that perhaps shouldn't but this is being tightened up anyway.

CardyMow · 06/10/2010 11:24

Yes I did see the link...thank you, but the level of LHA is actually the same amount as my rent, but we get a reduced rate because of DP working.

And Grin about thinking I was talking to you! No, just the OP here speaks just like the awful SenCo at my ds's primary...

BalloonSlayer · 06/10/2010 11:49

jeez, hope she doesn't work at my kids school . . . Sad

TottWriter · 06/10/2010 11:49

I have epilepsy, and I get DLA. I have two young children, who are probably the onlyy reason I get DLA, depsite the fact that my epilepsy means I will probably never drive or work full time again.

The reason for this is that I have to be supervised around them, in case I have a fit (they currently come a few times a month). If I am alone with them when I have a fit, they could seriously hurt themselves, so my DP has to stay at home with me as my carer. So my disability means that neither of us can work, despite the fact that 95% of the time I am fine. The trouble lies in the fact that I do not know when the fits will occur. I might have one today, I might not. But if I did, and my children were hurt because DP was working, it would be my fault.

DP will shortly be applying for Carer's allowance (only permitted because I get the 'medium' care component), which is taxable and deductedfrom other benefits. We won't be any better off doing this, but heck, at least it's something in his name, an income of his own as everything else comes to me. If it seems an injustice to you as 'neither of us work', try seeing it as a wage rather than a benefit. Because it is. He has to be with me all day every day, and will until our DC are old enough to look after themselves when I have a fit (at which point I will probably lose the DLA despite my epilepsy being of a type that will remain wit me for life).

And as a wage, Carer's Allowance is pretty shitty. £50ish a week to work every day, 24/7? The government is saving a mint, because without DP I would be in sheltered accomodation our our DC would be in care.

My brother has a working diagnosis of ADHD and communication issues. My mum HE'd him because of a lack of support at school, in the process giving up her job as an LSA. She recieved nothing for her pains, dothing for him, despite the fact that the absence of any help for him in school meant that she had to stay at home with him all day every day. He is 18 now, and still dependant on her, though he is now at college. He'll still be relying on her to provide him with money, manage it for him, and help him interpret other people's emotions for years to come. I half expect to have to take over looking after him when my mum dies, because his numeracy alone would be a major barrier to living independantly.

What cost do you put on that, OP? Yes, my brother doesn't need someone to wipe his backside (anymore) or tie his shoelaces (again, that came in the last few years), help him up and down the stairs or get him washedand dressed. Yes, he looks like anyone else and can now (finally) hold a conversation with other people without us having to "translate" what he says into what he means, or excuse his lack of understanding. But this has taken years of dedication, and he still can't function as well as other people. And he has mild issues. In the 1990/early 2000s before he was removed from school, he had a level 3 statement, so a few hours of help a week.

The impact has been incalculable, and yet my mum recieved nothing. No one even told her that he qualified for tax credits after 16 because he was then in full-time education (I had to point that out to her). If that level of detriment and cost doesn't warrant DLA, what do you think the people who do get it have to face? Don't you see how your words are at best, completely ignorant, and at worst, utterly heartless?

2shoes · 06/10/2010 11:50

bloody hell is the op for real

2shoes · 06/10/2010 11:51

benandoli Wed 06-Oct-10 09:07:48
oh dear i may get flamed now, just to make it clear that i work very hard for the families i work with often taking their side against non understanding teachers and other professionals. I do understand the battle. I am ann inclusion manager in a primary school (SENCo).

imo that is bollocks

MaMoTTaT · 06/10/2010 12:05

Loudlass ahh right - thought it was worth checking as I know some people stuck on the old HB system are getting less than if they were on the new system. And could have potentially helped you - was only a thought.

And yes - I really did miss the "OP" out when I read it and thought Confused differing opinions and all that but surely we've been amicable about it LOL

coppertop · 06/10/2010 12:25

LOL at the idea that it doesn't cost any extra for a child with ASD! If you really are a SENCO then for everyone's sake I suggest you give some serious thought to changing your job.

Have you really never had to provide anything extra in school for a child with ASD??? Do you think those needs miraculously vanish at 3pm when the school day ends??

Kaloki · 06/10/2010 14:02

What on earth is going on here at the moment?!

coolma · 06/10/2010 14:09

I have a child with a hearing disability - an ex 'friend' told me to 'work the system' and apply for some sort of dla for her, even though I really do not have any extra costs at all for her! The sad thing is, I quite possibly would have got some money - this is where it is wrong I guess.

Bramshott · 06/10/2010 14:10

Oh yes, because DLA is just so easy to get isn't it?! You tick a box and a big fat cheque appears on your doormat - no?! Hmm

Kaloki · 06/10/2010 14:13

coolma I've heard of blind people not qualifying for DLA. It's not easy to get at all.

pagwatch · 06/10/2010 14:14

Kaloki

I think it is a twat of the week competition or somesuch

coolma

have a look at the DLA form if you ever get the chance. It is not really possible to work the system. you have to detail very precisely, actually to how many minutes a day. EXACTLY what help the person needs and what that requires of you.
The need has to be significantly more than their peers
It is about 30 pages from memory. And you have to gets Doctors and health professionals to support your claim aboutthe help the child/person needs.

To 'work the system' would actually require out and out lying which is fraud.

This kind of misconception - that money is easily available if you just wing it, is part of the problem

DS2 is very very severely disabled and whilst he gets high rate for personal care , he doesn't for mobility. And we have had to complete the form four times in 7 years.
it is hard unless you are happy to just make stuff up and risk being caught

MaMoTTaT · 06/10/2010 14:27

pag - you are on a roll today Grin

Grin @ twat of the week competition

phlebas · 06/10/2010 14:35

please explain to me why a family who have a child with a disability, adhd or autism for example , where extra costs do not result , where the earning potential of the family has not changed

OP YOU ARE A FUCKING MORON.

ds gets HRC for autism, I get therefore get CA - my dh's income has fallen to less than 50% of what it was 2 years ago as a direct result of our child's disability. I can't work (believe me, I am very highly qualified), my son receives 40 minutes of SALT every 6 weeks - he has a SEVERE language delay on top of his autism - that's it, nothing else from the state at all. We personally fund an ABA programme (£20,000/year - I'm sure as an inclusion officer you know all about ABA costs Hmm ), appropriate speech therapy and OT ... that is just the beginning of the extra costs ...

As a result of our MASSIVE PERSONAL & FINANCIAL SACRIFICES our son now has a chance of leading an independent life ... he has still got a very long way to go - but we have already, by our MASSIVE PERSONAL & FINANCIAL SACRIFICES, saved this country more money than you are likely to pay in a lifetime of paying tax.

Really OP, go fuck yourself.

Just fuck right off.

And then fuck off again.

SanctiMoanyArse · 06/10/2010 14:55

Nope not getting teh no costs bit tbh

Two autisms here

have to be a sah carer, had to move house as ds1 destroyed a wall in the last rented place, destroys furniture weekly (carpet this week), has to use a laptop for school, has to have special diets, therapy, a car so I cn get to ds2's special needs unit many miles away

So very expensive

And what makes you think I never worked? Was a charity manager before the diagnoses, am a geaduate.

Don't assume, it's rude.And makes you look just a wee bit either dim or unaware.

BTW to bung in a random cost- ABA: £30k per annum.

Not a road we've done yet (we are in debt to a therapy provider though) but still.

Ronaldinhio · 06/10/2010 14:56

yeah who said it yesterday?

fuck off

then come back and fuck right off again

i feel a name change is in order op
or a career change
or both

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