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Higher education

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Daughter with OCD and request for accommodations refused by uni - what now?

116 replies

vivariumvivariumsvivaria · 24/07/2021 17:40

DD1 going off to do zoology at uni in September, she'll be about 5 hours away from home.

She has been unwell with generalised anxiety disorder, related to OCD, related to (probable) autism. She refused an autism assessment as she felt that would pathologise her passion for her subject, but her psychiatrist and psychologist both think that the root of her anxiety is neurodiversity.

She took a year out after school in order to get well and work and has done really well, the suicidal ideation seems to be under control and she has really worked hard at getting well and uses exercise and her experiments at home to manage her symptoms. She is ready to go back to learning and looking forward to her course - I'm sure that the course and the uni are right for her. I'm hopeful that being amongst people who "get" her niche interests will be really helpful for her to find her place in the world.

She is moving into halls and wants to take a small vivarium with an small species of lizard. The animals act like a touchstone for her mood - they aren't pets, she is meticulous in studying and recording their their behaviour and their environment. The tank is a little planted eco system, the whole thing is her version of mindfulness. The tank is 45cmx45cmx45cm and does not need a heat pad or electrical equipment. She has several large tanks at home, this small species were chosen 2 years ago specifically because they don't need much space and would be suitable for taking with her to halls.

Uni refused her permission to have the tank two weeks ago. This has set off her anxiety, she's back self harming and is saying that she'll go and study anyway but I can see her spiralling again - and the idea of her struggling with the sort of intrusive thoughts she had previously when so far away from home, well, I'd fret that she's not safe, she really was very poorly.

I think she needs to write back to the university and properly explain that this is not a self indulgence but an accommodation for her mental health condition - albeit a strange one. I don't think she adequately explained the reasons behind her request. She doesn't want to make a fuss. I don't think she will cope as well at uni without having one of her animal projects with her - it is both part of her condition and part of her solution.

I want to speak to the uni and advocate for her, but I know I can't interfere with a young adult's problem - I don't want to be That Parent! I'm worried that she's not going to be able to articulate the importance of this tank because she's a little embarrassed that it is so significant to her, she isn't really able to explain to a NT person WHY this project is so important to her, it just is.

I am sure that if she could take the tank she would manage the inevitable anxiety that her first year at uni will bring.

I'm worried that if the refusal has made her so stressed then perhaps she is not actually fit for going to study? Her psychiatrist is happy with her progress and only has a phone review planned in a fortnight before discharging her. IT's only been a fortnight though, so it might be that she can manage the spiral - but, she uses her animals to do that and so the thought of not having them available is heightening her anxiety. Catch 22.

She has to arrange an appointment with the DSA assessor at uni - is anyone able to advise whether it is even worth pursuing the request, whether the DSA is the best avenue to try and whether there has ever been flexibility granted for having an animal (no fur, no mess, no smell, no escaping, no electrical equipment, no noise, you can't even see them because they hide all the time and are very dull if you ask me) in halls?

She's a born scientist. She's exactly the sort of student that tutors want to have on a course - she's bright and motivated and keen. She's also going to permanently have to work to manage her intrusive thoughts, anxiety and sense of being a square peg in a round world - obviously I think that a tank of lizards is a good solution!

OP posts:
Faircastle · 24/07/2021 18:07

The purpose of DSA is to fund equipment and assistive software (and sometimes specialist learning mentoring) to enable the student to access the course. The needs assessor provides a report with recommendations which is then approved by the student finance company.

The university will have its own rules for its accommodation (e.g. no pets). There is precedent for dispensation in certain circumstances. For example, they might have a rule of no mini fridges, but a student with Type 1 diabetes would be allowed a mini fridge. Or they might have a rule of no furniture brought in, but a student with a disability where they require a specialist chair would be allowed one.

The university (or whoever owns the accommodation) might also require medical evidence e.g. letter from consultant stating the student's disability and why they need that adjustment or equipment.

I think you are wise to be concerned about her resilience, especially with the course being so far from home. Starting university and moving away from home is a big transition. There will be hiccups and unexpected things happening and things not going as she had planned, so she needs to think about how she will cope with that.

NewIdeasToday · 24/07/2021 18:14

Is she ready for all the stress of starting a new course in a new environment?

TheYearOfSmallThings · 24/07/2021 18:16

Is she ready for all the stress of starting a new course in a new environment?

I am also wondering this.

AnyOldLion · 24/07/2021 18:20

It sounds like she needs some continued targeted therapy for her OCD and anxiety.

Veterinari · 24/07/2021 18:25

Not the info that you were looking for but all reptiles require a heat source and UV light provision. Even temperate species

If you aren't providing this you won't be meeting their welfare needs and they won't thrive longterm

Howcanthisbe123 · 24/07/2021 18:31

No pets is no pets. What if someone else’s touchstone/study/way of being calm is a large breed dog? What then?

You can’t have one rule for one but not another, no matter the circumstances.

Shimy · 24/07/2021 18:37

I understand why she needs this tank as an exception for her MH but I can also see it as setting a possible ‘precedent’ from the university’s point of view and why that would worry them. Horses and dogs are also known to be therapeutic for people with ASD/OCD. I can see someone rocking up expecting stables to be provided or allowances for a dog etc and the university might be very nervous about that.

In any case, the vivarium is very important for your DD so is it possible for her to attend a more local university so she can go from home? If she must go to the uni 5hrs away, what about a private rental? You’d both be able to negotiate much better with a private landlord who might not really be bothered by the tank at all, rather than university accomodation that has to weight up the risks to all students.

olympicsrock · 24/07/2021 18:41

This reminds me of a friends daughter also very bright neuro diversity under a psychiatrist. She went to one university and stayed in halls but struggled as mostly overseas students who didn’t share her interests. She left abs started again at a different university with string pastoral care but it has been a disaster with covid. Students mostly in their own rooms studying on line. Unfortunately she couldn’t cope and tried to take her own life several times. Her parents like you hope for the beat for their very bright daughter.

I really do think that being a fresher at university during covid times is just one step too far for a young adult with additional needs. Please think again.

bathorshower · 24/07/2021 18:50

With dogs, if a student needed an assistance dog, they'd absolutely have to accommodate it - we had a blind student on my course, though he didn't have a dog. So it might be worth asking again.

Veterinari · 24/07/2021 18:57

@bathorshower

With dogs, if a student needed an assistance dog, they'd absolutely have to accommodate it - we had a blind student on my course, though he didn't have a dog. So it might be worth asking again.
Properly trained and registered assistance dogs are exempt. Unfortunately pet lizards are not legally comparable
PragmaticWench · 24/07/2021 18:59

Could you persuade your DD to go through with an autism assessment in order to make it easier for the University to agree to her request? It might give the University the reason they need to make an allowance in this instance, along with supporting letters from her psychiatrist and psychologist.

gogohm · 24/07/2021 19:02

No pets is no pets - exceptions made for certified assistance dogs. She could rent privately though, dd is (very similar but with autism diagnosis) and we have found a bed sit is better as no need to share facilities

bathorshower · 24/07/2021 19:02

Properly trained and registered assistance dogs are exempt. Unfortunately pet lizards are not legally comparable

Indeed they aren't, but that's why I suggested it might be worth asking again - I would have thought that lizards would be less likely to actually cause an issue; even the best trained guide dog has to poo somewhere...

CutePanda · 24/07/2021 19:12

@NewIdeasToday

Is she ready for all the stress of starting a new course in a new environment?
I thought this. If her mental health is this severe then she needs to stay home and commute to a university that’s closer to home.
SureBorisKnowsWhatHesDoingNOT · 24/07/2021 19:15

@olympicsrock not an especially helpful post for a concerned parent. -Amazingly not all people with additional needs react in th same way to things. . Implying that the OP's dd could end up attempting suicide before she's even tried one day is a bit much. Are students with additional needs (my dd included) not allowed to go to university? What should they do instead? Because if they aren't allowed to try things they won't know what they can or can't manage.

OP if you drop the disability services dept an email they will most likely be able to send you a 'right to share' form or something along those lines which your dd can sign which allows you to contact the University on your child's behalf and visa versa. It's an extra layer of protection for vulnerable students. You aren't being 'that' parent if your child has additional needs. You are being supporitive and advocating for your child while they aren't able to (where a NT child might be able to). I've found the department at my ds's potential new university very helpful and understanding.

Shimy · 24/07/2021 19:21

I really do think that being a fresher at university during covid times is just one step too far for a young adult with additional needs. Please think again.

One step too far? I also have a dc with special needs. What do you expect them to do?

StarlingsDarlings · 24/07/2021 19:24

Are students with additional needs (my dd included) not allowed to go to university?

I don’t think that’s what is being said at all. PPs have rightfully mentioned that this may not be the best time, or that perhaps living at home while at uni would allow the OP’s DD to be supported.

I really can’t see the uni making an exception unfortunately. It sets a precedent and the reptile isn’t a registered support animal.

vivariumvivariumsvivaria · 24/07/2021 19:28

Gosh, thanks so much for your thoughts. Really helpful.

I do agree, I wonder whether she's been so much better not because she's actually better but because she was out of the (disastrous) school environment and really enjoying her job and able to focus on her home projects. This is only really a small blip and it has really thrown her. I'll email her (really excellent) psychiatrist and give her a heads up before the review with a view to discharge. My daughter masks really well and I am not sure how honest she has been laterally with her care team.

Agree, the uni are clear "no pets" and "have not yet allowed emotional support animals" and it could be a tricky precedent issue.

The lizards are honestly getting good care, but I do appreciate your concern, veterinari. They are Eurydactylodes and currently getting basking spots and uvb off the tanks they sit between. Seems there is debate about whether nocturnal lizards need UVB, but she currently gives it for enrichment and to create a temp drop. Ambient temperature in the halls is within their temp range (yes, she checked) and the first sign of any change in behaviour without the UVB and she'd see it from 2 years of records and would change her study lamp to a UVB bulb which would do the trick.

She can't go to another course, this is literally the only one with undergrad content in her hyper-focus. I'm glad it's only 5 hours away and not in the USA or somewhere!

Agree too, assistance dogs are not remotely comparable. She has worked out a system that is a bit peculiar but effective, but not supported in legislation. People could say they need an emotional support peacock or elephant, I guess.

Good idea about encouraging an autism assessment. I'd be interested to see how much impact it has on her, she is very good at masking (it wasn't until she was actively suicidal that I or school realised there was problem, it was all very frightening at the time because it seemed to come out of nowhere). She is resolute that two diagnoses are enough, but, given that she is going a long way from home then maybe more insight into the challenges she has been managing would be sensible.

My instinct is to encourage her to delay for a year. I am not sure whether that is because I am a neurotic mother, or a good mother. I had a real fright last year - I had no idea how unwell she was, I totally missed it, and it makes me nervous to think of her far away without someone quietly keeping an eye on her. Maybe it's possible to be a mother who is both neurotic and good?

OP posts:
Cattitudes · 24/07/2021 19:33

Could you approach the department to house it there somewhere during term time?

vivariumvivariumsvivaria · 24/07/2021 19:35

SureBoris that's really helpful, thanks - I hadn't heard of "right to share" That's ideal.

Yes, I don't want to tread on toes and interfere but I'm not convinced that she is self reliant enough yet - she's mature and capable and bright and lovely and certainly has a lot of academic potential - but all of that could be lost if she's not actually well enough to manage just yet. I don't want to hold her back but I suspect she's been so focused on getting to uni that she hasn't actually thought about it, if you see what I mean?

OP posts:
GalacticDragonfly · 24/07/2021 19:36

If the course is zoology, could you approach the department to see if the lizard could be accommodated in the department rather than her living accommodation? Not sure whether that would work but may be worth a try.

vivariumvivariumsvivaria · 24/07/2021 19:36

cattitudes that's a good idea. Thanks.

OP posts:
Christmasfairy2020 · 24/07/2021 19:44

What job is she hoping to go into with zoology ? Would she not prefer an apprentership

MeanMrMustardSeed · 24/07/2021 19:44

No idea about the content of your question, but you are an awesome mum. Hope it all works out for the best. Good luck to your DD.

ChicChaos · 24/07/2021 19:45

As a previous poster suggested, trying to find a private rental that would take the tank would be best. I would not recommend any kind of animal to kept in halls. Halls are not peaceful places!