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Higher education

Talk to other parents whose children are preparing for university on our Higher Education forum.

Daughter with OCD and request for accommodations refused by uni - what now?

116 replies

vivariumvivariumsvivaria · 24/07/2021 17:40

DD1 going off to do zoology at uni in September, she'll be about 5 hours away from home.

She has been unwell with generalised anxiety disorder, related to OCD, related to (probable) autism. She refused an autism assessment as she felt that would pathologise her passion for her subject, but her psychiatrist and psychologist both think that the root of her anxiety is neurodiversity.

She took a year out after school in order to get well and work and has done really well, the suicidal ideation seems to be under control and she has really worked hard at getting well and uses exercise and her experiments at home to manage her symptoms. She is ready to go back to learning and looking forward to her course - I'm sure that the course and the uni are right for her. I'm hopeful that being amongst people who "get" her niche interests will be really helpful for her to find her place in the world.

She is moving into halls and wants to take a small vivarium with an small species of lizard. The animals act like a touchstone for her mood - they aren't pets, she is meticulous in studying and recording their their behaviour and their environment. The tank is a little planted eco system, the whole thing is her version of mindfulness. The tank is 45cmx45cmx45cm and does not need a heat pad or electrical equipment. She has several large tanks at home, this small species were chosen 2 years ago specifically because they don't need much space and would be suitable for taking with her to halls.

Uni refused her permission to have the tank two weeks ago. This has set off her anxiety, she's back self harming and is saying that she'll go and study anyway but I can see her spiralling again - and the idea of her struggling with the sort of intrusive thoughts she had previously when so far away from home, well, I'd fret that she's not safe, she really was very poorly.

I think she needs to write back to the university and properly explain that this is not a self indulgence but an accommodation for her mental health condition - albeit a strange one. I don't think she adequately explained the reasons behind her request. She doesn't want to make a fuss. I don't think she will cope as well at uni without having one of her animal projects with her - it is both part of her condition and part of her solution.

I want to speak to the uni and advocate for her, but I know I can't interfere with a young adult's problem - I don't want to be That Parent! I'm worried that she's not going to be able to articulate the importance of this tank because she's a little embarrassed that it is so significant to her, she isn't really able to explain to a NT person WHY this project is so important to her, it just is.

I am sure that if she could take the tank she would manage the inevitable anxiety that her first year at uni will bring.

I'm worried that if the refusal has made her so stressed then perhaps she is not actually fit for going to study? Her psychiatrist is happy with her progress and only has a phone review planned in a fortnight before discharging her. IT's only been a fortnight though, so it might be that she can manage the spiral - but, she uses her animals to do that and so the thought of not having them available is heightening her anxiety. Catch 22.

She has to arrange an appointment with the DSA assessor at uni - is anyone able to advise whether it is even worth pursuing the request, whether the DSA is the best avenue to try and whether there has ever been flexibility granted for having an animal (no fur, no mess, no smell, no escaping, no electrical equipment, no noise, you can't even see them because they hide all the time and are very dull if you ask me) in halls?

She's a born scientist. She's exactly the sort of student that tutors want to have on a course - she's bright and motivated and keen. She's also going to permanently have to work to manage her intrusive thoughts, anxiety and sense of being a square peg in a round world - obviously I think that a tank of lizards is a good solution!

OP posts:
GCAcademic · 24/07/2021 19:46

That's a great idea about approaching the department.

GCAcademic · 24/07/2021 19:47

@ChicChaos

As a previous poster suggested, trying to find a private rental that would take the tank would be best. I would not recommend any kind of animal to kept in halls. Halls are not peaceful places!
Gosh, yes. I'd pity any animal that ended up living in student halls! I'd imagine a poor assistance dog would be terrified, however well trained.
Lovemusic33 · 24/07/2021 19:50

A lot of students do sneak pets into uni accommodation especially reptile and rodents.

I understand why your upset OP, my dd will be starting uni next year and has autism and anxiety, she would love to be able to take one of her snakes with her and often mentions it. I am worried sick that my dd won’t cope at uni (she will be fine with the structured stuff but not the looking after herself bit ).

I hope your dd manages to work something out with uni so she can take her pet with her but I have heard that people do sneak them in and hide them if there’s an inspection (usually in someone else’s room).

Seesawmummadaw · 24/07/2021 19:57

Does she have to live in halls?

Dotoallasyouwouldbedoneby · 24/07/2021 20:01

@TheYearOfSmallThings

Is she ready for all the stress of starting a new course in a new environment?

I am also wondering this.

I think she would be better off living at home and commuting in to study. Is that out of the question for her subject?
Dotoallasyouwouldbedoneby · 24/07/2021 20:05

Sorry already answered by OP.

Eleoura · 24/07/2021 20:09

I realise its likely the lizard that is the companion part of the vivarium that she needs, but would a terrarium be any good instead and leave the lizard at home?

ButterflyCat2028 · 24/07/2021 20:15

I doubt she'd do it given her ND and I totally sympathise... in all honestly I'd go ahead with them anyway. You get the heads up re room inspections anyway (legally they have to)... during that brief time she could cover the tank up or move it to wardrobe (they can't look inside).... my uni room used to be a small erm grow room ... from the last guy and that bloke and his flatmates were fine haha

Real actual solution. 1 bed flat any good nearby? I'm ND and struggled severely living with others at uni, massively homesick which I wasn't expecting. I had to take a year out due to it all. When i went back i got private student accomodation 2 bed flat- all secure+gated, luckily my flatnate literally never lived there! So i didn't even have to share with 1 other person. I could fully control my environment and none of the other flats bothered me either. That really helped me out.

Varies by uni but it doesn't seem to be a good start they are automatically refusing adjustments. Hopefully the actual uni won't and if she has any problems she has a personal tutor, maybe working on opening up to her personal tutor might help, role play some scenarios before she goes, type thing. Good luck!

olympicsrock · 24/07/2021 20:17

Of course I was not saying that students with neuro diversity should not be allowed to go to university but living away from home in halls of residence is a massive challenge and that the covid pandemic is making things a LOT harder. My friend went to huge lengths to make her daughter got as much support as possible in 2019/20 and 2020/21 but universities at the moment are prioritising covid safety above supporting individual students.

Viviennemary · 24/07/2021 20:18

She hasn't reslly been refused accommodation. The Uni won't let her take her lizard. Because of the no pet rules. I think they can't really start making exceptions. Good idea about asking if it can be kept somewhere in the department.

ButterflyCat2028 · 24/07/2021 20:20

Also, i think this sounds like a

She nedds to go or she'll never, type situation.

Maybe have a sit down and talk about the realities of, if you don't go, now what? Stuck at home spiralling worse?
You sound like a fantastic mum op! And obviously understandably worried, but if you both can sort this bump, i think it would be a fantastic experience- and she can always come home if it is too much, take a uni break or even pack it in and start over (mind you from what you've said it sounds like she will thrive course wise!)

spaceghetto · 24/07/2021 20:22

No advice, but you sound like a really caring and empathetic mum.

LooksGood · 24/07/2021 20:24

I don't know what universities if any you have in commuting distance, but I'd seriously consider commuting for her if that were possible. I am sometimes struck by how difficult it is for students with any tendencies to anxiety or depression to move into halls in their first year. They're already facing major changes by starting a degree course. There's support for students in halls but nothing that would compare with a supportive home environment and medical professionals she already knows. And halls can be dreadfully difficult places to get enough sleep and to get mental space away from any stresses of university life. Routines and motivation slip away easily in that environment.

The association between starting university and living in halls is a very British thing, and in my opinion mostly benefits building contractors and university budgets.

Sometimes there's no other option of course, and some halls are much better than others. If you need this adjustment from the university, you might be able to pay for a letter from your GP or a counsellor explaining the situation - if she explains more fully, the university may want that anyway. I think most would respond positively to a formal request like that.

I'd also consider whether it would do that much harm to advocate for her directly. The university should never share info with you without her permission, but with her permission, you could probably join a conversation about this or, later, about other support.

Hope you can find a good solution for her.

Quietcrown · 24/07/2021 20:34

I had to Google eurydactylodes, they are cute!

I really think it's worth pursuing an ASD diagnosis, my daughter is much younger but has recently been diagnosed and I am quite relieved now she is getting help.

Anyway, a bedsit or small shared flat might just suit her better? A private landlord might well make an exception for a small lizard. I remember my student halls being pretty awful - noisy, chaotic and messy. I was much happier flat sharing with a girl from my course the next year.

Bobbybobbins · 24/07/2021 20:35

OP you sound like you are doing the very best for your DD. I agree with you and PPs that if this setback has meant a decline in her mental health then she may not be ready for halls in particular and the challenges they will throw at her.
I found the first few weeks really hard when I went although I loved my classes and studying. It is a massive shock to the system to go from a set up at home to bring around relative strangers 24/7.

vivariumvivariumsvivaria · 24/07/2021 20:36

I'm so grateful for your thoughts, especially from those of you who are ND or have ND kids.

I want her to go and have someone make use of her brain. She is exactly the sort of person universities want and she's got such a unique way of linking ideas and unusual that I'm kind of excited to see what she comes up with.

It's a good point about halls being noisy. I was never in halls but it seems to me to be a bit like school, if the people you land up next to are ok then you're ok and if you get stuck with the dickheads then you can have a miserable time. I hadn't thought about the disruption and noise - we've come up with some workable strategies for her OCD and shared bathrooms - but, yes, maybe there could be a third option. She's happy with noise and chaos if she can get away from it - so, that's a really valuable observation. And yes, tiny lizards won't like vibration of music or parties. Hmmm.

Butterfly that's where I'm at. I want to keep her with me, but she also needs to be chucked into the deep end and figure out how to make it all work. If she's here then I can hold her hand, but adulting is figuring your shit out by yourself. The worry is that if she becomes unwell then, well, I don't want to think about that other than if it doesn't work out she comes home and we work out a plan B.

I made life long friends at uni - I wasn't a great student but I had a brilliant time and it was a very happy time in my life. She has the potential to be an extraordinary student, and if she has people around her that "get" her it'll be amazing. If she goes and it's just another place she doesn't quite fit in, it'll be a problem.

I wish I could rewind the last decade and do it all again only better. It's so lovely to have people saying I sound like a good mum, but, I really fucked up. Totally missed her troubles, I had no idea at all, if I'd sussed she was ND she'd not have become so unwell with the anxiety and OCD. Still, she's much better and that's all that matters.

It's hard with young adults, they need to have freedom to mess up and all we can do is give them a soft place to land.

Maybe I should go and study zoology too. I've certainly learned a lot about anatomy and evolution and habitats over the last 18 years...

OP posts:
Michaelknightsleatherjacket · 24/07/2021 20:41

Does she have to live in halls?

lljkk · 24/07/2021 20:46

She's not showing much resilience from what OP describes.
I don't want to sound downer, but the fact she won't "make a fuss" suggests she won't advocate well for herself in any other way when she encounters any other problems.

I wouldn't want her going off by self with history of mental illness and such current reluctance to problem-solve & be assertive.

TokyoSushi · 24/07/2021 20:54

Oh goodness, this is a tricky one, and one of those threads where you really want it to work out! Could she live anywhere else? A flat for example to accommodate the reptiles? I know that she might not get the same social experience but her own quiet place might help...

I really hope that you can find a solution!

LooksGood · 24/07/2021 20:55

I agree with @lljkk - and apologies for missing your previous post, OP. I see a commute isn't possible.

I'd think seriously about advocating for her, with her permission and participation. I'd keep her away from halls if possible. OCD, an unsettled diagnosis, halls life and the idea that you can't advocate for her anymore seems like a recipe for a really difficult first year. Even if the vivarium can be sorted out, I think it would be best to plan for other crisis points.

Her mental health may mean she needs more support from you for a while - as long as she accepts that, since otherwise the university certainly won't deal with you. There's no shame in that. She could have a great experience with the right spaces to retreat to and with good support.

titchy · 24/07/2021 20:57

Honestly I'd be really really concerned about her - if she's regressed to the point of feeling suicidal because she can't take the lizards, and this is how shes responded at home in familiar surroundings with you and them close at hand, how do you think she'd cope if something minor throws her and neither you nor the lizards are available to help ground her? Ll is right - she can't advocate for herself, no one else is going to - so what is she going to do?

She doesn't need to learn 'adulting' right now with so little support in place.

The course maybe perfect. Except that doesnt really matter does it, cos that's not what's important.

0None0 · 24/07/2021 21:05

If she wants to watch her lizards why not set up a web cam for her, to watch them online while they stay at home.

No way could add k ok etching like that be accommodated in student halls. Out of the question

TAmumto3 · 24/07/2021 21:10

Dd has just completed her first year in halls. She has anxiety disorder, ASD and ADHD. Her pets at home really help her cope. I did not know this but a few weeks in she bought a hamster! The hall staff never found out - they clean their own rooms and when maintenance came the hamster was relocated to another room! He was popular with everyone on her corridor. Sadly, the hamster died during the Easter holidays. Next year she will be sharing a house with friends, she feels happy and confident…. Doesn’t need any pets.

I suppose I am saying where there’s a will, there’s a way…. And it may only be needed in the short term.

saraclara · 24/07/2021 21:14

The progress that she's made must be very fragile if this setback has her self-harming already. I definitely think you need to talk to her psychiatrist, so that she's aware.

Has she been away from home for any amount of time before? Does she make and keep friends easily? Five hours is a long way from home. I'd need a bit more assurance that she's going to cope, even if she could take her vivarium.

titchy · 24/07/2021 21:14

@0None0

If she wants to watch her lizards why not set up a web cam for her, to watch them online while they stay at home.

No way could add k ok etching like that be accommodated in student halls. Out of the question

Oh good outside the box thinking there!
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