Hi Everyone,
My Daughter Kiara has a rare and incurable brain condition that gives her too much fluid on her brain.
A Girl that we know who has Kiara'a Illness was selected to try some new medication that was found to be working after a Study in Greece.
She was doing amazingly on it and was around 80% better, but now the PCT has refused to continue paying as it's very expensive (£55 a day!).
In the few days that she hasn't been taking them she has gone dramatically downhill. IIH UK can't afford to pay for it, but do any of you know anyone that may be able to help?
Thank you so much xxx