The Incredible, Edible, Shiney Cult....om nom nom

[bellavita]

That's it really, we are all incredible in our own way and all good enough to eat.... I have met some of the Shiney girls and they are truly delicous! Lots of cock and cake chat

I am Bella, just trying to maintain my weight now.

bella, did I miss you reaching your goal? Yay for being in maintenence!

DEM, yay for DS's glasses being found and car being fixed!

Fluff (or should I call you mad-cat-lady?), what an odd thing for your mum to say.

Norma, good luck with those appointments, glad you got the referrals.

Crispy, at your meetup with Fanny

Portia, there is no possible way you have 4 stone to lose. I am gullible sometimes, but that one I can't believe.

And Vinny, your arse is not fat. If your arse is fat and BOF needs to lose 4 stone, I will eat an entire cake made of cheese by myself (no wait, I could probably do that, given enough crackers).

hells, I missed it, what happened to your DS? We've got Holland and Barrett around, I think that's it for health food shops, so will look at some B6 and maybe more vitamin C as SAF suggested.

JuJusDad hellllloooooooo

Shiney, you are inextricably linked with mushrooms in my mind now. Just thought you should know.

Total don't know if you're a hugger, but I'm giving you one anyway because I'm useless with words.

Mouseface, glad you've got a builder-free three days!

If we're going to discuss bowel movements and such, can someone please tell me why it feels like I've had bumsex when DH assures me we haven't?

good news, XH out of hospital today, but they've made a formal complaint about his treatment (as they should, was appalling, link to his site on FB if anyone interested).

No, I'm not OK now, but will bounce back shortly, I always do. got a glass of cider in front of me, which should help.

Mousey - feel like a bit of a fraud complaining about DS and SN but here goes......DS is probably undiagnosed at the high end of the autistic spectrum (semantic pragmatic disorder)- has had shedloads of language problems, very late talker, and still not 100% there yet, but discharged from speech therapy/paed etc. He's doing OK at reading and numbers, and behaves well at school so is slipping through the net - but although he can speak in sentences etc fine well, he doesn't always completely understand what he is saying - and comes over as a lot younger than his age - as all the conversations you have with a typical 3/4 year old are only happening now that he's 6. I know in the scheme of things it's so trivial compared with what so many people deal with, but it's so hard being neither fish nor foul - that's he's more vulnerable than a typical 6 year old, but then he's not got a clear diagnosis of anything (one time I tried to go to local ASD support group they were a bit funny with me as they thought he seemed so mild iyswim). Day to day being around normal 6 year olds - I torture myself with the comparisons, and the worry about his social glitches, but I just have to sit bak and let him learn.

I know it all sounds so utterly trivial - but I am constantly despairing about his future - whether he will be able to manage independently, with work/relationships/living etc. How much growing up/maturity will help. Who knows?

Mouse - its a pain in the arse isn't if? If you just knew they were always going to be horrible i think it would be easier. maybe.

yay for ds being asleep, boo for the sick

Bitter - I am the Queen of crap watching on this thread i'll have you know, stop trying to nick my title with your peter andre crap

DF - I assure you it's a one off.

I'll settle for just being the Queen of crap or summat.

Good evening ladies.

Total - that sounds really hard and I feel for you.

I am popping on quickly in between shed loads of bloody work (it is good fun but my goodness there's a lot of it at the moment!).

I really hope your all doing well. My period is due soon so I am a flabby bloated beast of a woman (forgot to take the evening primrose oil) so haven't weighed myself for fear of breaking the scales and then bursting into tears!

Am sorry you are feeling down TC

Yank, when I got on the scales last Saturday, I had lost a little more weight, tbh I think I am going to have to be happy at what I am at now as it is a huge struggle to try and keep losing more, so if I can maintain, then that will have to do.

So good to see you!!!

Total, that sounds crap, it does. You need some help, what do the school say about him? I was amazed that three of DS's mates from preschool and now school have now got statements, they just seem like little boys, but the school pushed and wanted to get help for them. This is a school that is supposedly crap with any type of SN.
Push push and push for any sort of help you can get.
I expect you already have, I just wanted you to know that I sort of understand and empathise.
DEM said pretty much the same about her DS as well...

Total - I can completely understand where you are coming from. It is torture. It's torture not 'knowing' if there is actualy an 'offical' diagnosis for your child. Do you feel a tad cheated? Like a loss? I did with DS. I went through a kind of grieving process as we ad no idea before he was born he'd have additional requirements. It's bloody hard so give yourself a break. Don't feel bad for wanting a 'normal' day!

You know that something is not quite right, you know from very early on. Something just doesn't quite fit. A mother's instinct is second to none.

Have you tried to have a statement done for him? What support does school offer? SENCO sessions? Why has he been discharged from SALT? Is it worth trying to get him back in the system via your GP?

Sorry, so many questions. DS has gross motor skills developmental delay. He's about 6 months behind at present and non oral in terms of food/fluids as he has sensory feeding disorder too. His cleft means he has a SALT team already and a whole army of profs all waiting in the wings. His glue ear means hearing loss so will maybe need help with that too.

He'll always be behind. And, as he gets older, any SN/learning difficulties will become apparent and be dealt with.

I think you need support. You need someone to help you through this like a CCN? Or community paed. Can you get help?

Tell me to bugger orf if I've gotten this all wrong........

Oooh Lizzy, I don't think I've been snogged on the thread before. I've gone week at the knees

thanks ladies. Lizzy - it's nigh on impossible to get a statement in my city - think there is literally one child in Ds's school with a statement - also, when DS language wasn't as good 2 years ago, absolutely noone (incl. private speech therapist who has no vested interest) though he really needed one, so I didn't want to take DS to see private specialists just on the offchance one would support me iyswim, it didn't seem a good enough reason. I suppose I just feel like I have to wait for him to "fail". DS is very sunny, happy and (at school but not for me!) well behaved, so it's hard to get people to see him as particularly needy iyswim, as long has he's doing Ok with his school work.

Tis only fair, I think you are the only snog I've ever got off this thread.

Great to see you!!

DeFluffy - that's just the thing isn't it? The not knowing

Phew, who knew what I was missing!!!

Good lord they are coming thick and fast now.

I feel like my 14 yr old self now at the school disco (if only, I had no snogs at all when I was 14!)

Mousey - he was discharged from SALT as in their tests he was scoring within normal range for his age - difficulty is that SALT testing situation isn't really the safe as real life conversation! as school and SALT prior to discharge weren't concerned about ASD, I didn't want to push for paed review at this stage - problem is I feel I have to wait for DS to be obviously failing iyswim. Have never discussed things with SENCO - I don't think that school actually consider him to have SEN now he has been discharged from SALT. I have found his teacher this year capable but unapproachable - am hoping that come September I will have grown a pair and ask direct questions. In terms of school support - he had some small group work when he was young school has relatively small classes - I think about 20 pupils, with one TA, it's quite a nurturing environment in general, takes most of it's kids from a deprived area, so used to a low level of attainment on entry.

Well, now you do know

TC - then you need a community paed to help. They will look at the every day stuff and the not so every day....... like behaviour at home, with you, at school etc.

I feel like you are being let down here. Why should you wait to see what transpires when you know that DS needs support?

Tis shit.

Sorry TC, you are explaiining your concerns about DS and I'm pissing about.

Ignore me, I am a twat.

LOL MyCat, I may have told Lizzy that you are really rather lovely

TC, sounds very draining and upsetting day to day . My friend has finally just got a dx for ADHD at 6.5yrs. Before that the school were not interested - wanted a year to 'see' him in the school environment & make sure he wasn't a boisterous preschooler. She has now successfully got DLA, but he is not statemented. Not sure understand why but she did fight for the dx and the school are now being great. Good luck with your battle

Yank, so glad Ex is out. I hope he makes a full recovery now

Yank - sorry, forgot to say great news about ExH.

TC - sorry, ignore my snog fest, I don't mean to be flipant when you have such worries. I sadly have no advise but I'll listen and I'm sending hugs.

Oh, and MyCat, i can't make next Thurs as DH is away . Week after?

Mousey - I think next time I see GP re:constipation issue and Ds I will brooch general development issues then - depending on how things go and results of blood tests (DS being checked for thyroid and anaemia re:constipation) it's possible we might get a referral anyway iyswim. I know I sound ridiculously passive - but I feel the SALT discharge has tied my hands a bit iyswim, and school have done a lot with him over last 2 and a bit years....

Bitter/MyCat - please, no need to apologise - just because I feel the need to drone on doesn't mean I want to restrict anyone else snogging/talking about fellatio or poo!

I'm with Mouse, TC. You know your child and you know what he needs. Time to get assertive and get some answers, so awful that you have to fight based on where you live.