I am hoping someone can help me with some information.
Background: My DSis has just undergone an emergency sphincterotomy, after years of problems diagnosed as IBS, the diagnosis now seems to be probable Crohns disease - she has to have more tests to confirm after she's recovered.
Obviously its very upsetting and a shock, she is very distressed mainly because she has been sent home from the hosp. having been told there is a very high chance she will be permanently faecally incontinent. She has been given no information or support about what this will actually mean in her life, how she will manage it etc.
Does anyone know of any helplines, information sources, or anything like that which would help us? She is very poorly at the moment, and I am desperate to be able to give her practical as well as emotional support. Any advice very gratefully received.
TIA.