TAMOXIFEN -the third thread ***

[MaryAnnSingleton]

here we are- will put a link on the old thread.

take care RWU x

Take care RWU, sounds stressful. Hope you are rested, mothered up to the gills, and feeling better!

have always fancied Marwell - is it good?

Marwell is jolly good -have taken ds twice as it isn't far from us...not been for a few years so RWU will know what's what- there were kookaburras flying around and perching on fences and you could walk among them,and cute red pandas up in trees,oh and tapirs -so sweet ! And desert cats with huge paws

I'm sold already!

Lovely to hear from you RWU, hope you are feeling very rested. I went on a school trip to Marwell as a child (we got into trouble because we let the school down by sneaking off to buy chips!) but it was lovely.
I love kookaburras - my name is from a book I had as a child KurriKurri the Kookaburra

Hope everyone is fine, are you on chemo today Pennies, or are they giving you a break? best wishes if you are.

Hope you will be home very soon SR, and the drain is soon gone (much more comfortable when that's out).

I was thinking of you Haggisdoodle yesterday with the news about the volcanic ash - I hope you weren't affected by it falling down.

I couldn't find our thread at first today - I overlooked it about three times (dozy) - had a moment of panic.

Hi! WEll the sun's out, the magnolia's out, the drain's out, the constipation has ended and I'm out back at home.....nice feeling

I hope you are feeling better RWU after what sounds like a difficult time.

Love to all - hope you are enjoying this beautiful day.

Great you are home SR - you can get a proper rest now! The weather is beautiful here too. I've been pottering in the garden, tidying out my heap of old pots

hooray that you're home and de-drained SR

Welcome home SR!

has anyone evert got a kookaburra to make a noise back to them? I have seen a few recently (Birdland and the Cotswold Wildlife park) and, spurred on by memories of Tingha and Tucker (if you are under 40 - don't ask, it's just an ancient kids programme) I have tried to get them to make a noise. Nothing. Zilch.

Auntie Jean, Cakes !! was Tingha and Tucker sort of religious ?

Hi. I've never got a sound back from them, but we went to Oz two years ago and I was very thrilled when a kookaburra sat on the fence outside our flat for ages. We wtached it from the balcony then I went downstais and got really close to it. Would send photo if I was clever enough!

Love the story of your site name KK! I am sticking to site names as I'll never learn the real ones BTW.

An Oz friend gave my DS a picture and story book we all liked - about Oz birds but it was about Ozzie magpies.

I feel good apart from being zonked, even after a sleep on sofa. My arm is remarkably pain free - so far! Either it will develop those jangly pains or I've got no nerves left under arm! If this lack of pain is normal, it makes me realise how much it went wrong last time!!

I keep looking round for drain to ensure I don't tug it, forgetting its gone

Glad you are home SR and hopefully you will be too RWU.
No volcanic ash falling from the sky here - much to DS's disgust.
Had hospital today - now on Tamoxifen and start rads on Monday. Don't like the sound of some of the Tamoxifen side effects but benefits must surely outweigh the disdvantages??

no ash here either.
Haggis - don't worry too much about the tamoxifen - you needn't neccessarily get SEs - I know I was really anxious about it before (hence the birth of this very thread back in June I think !) but I have had almost nothing untoward happening - a few hot bits but really nothing awful and my periods are very irregular/if at all - so maybe,with luck you might be someone who doesn't get any. People tend to talk about getting horrid side effects but if it's all ok they keep quiet.
If it's any help - I always make sure the pharmacist gives me the Wockhardt brand.

Hello - chemo day today. They reduced my dose by 20% because of me not coping well. I got my mum to come too to see how it's not so scary, to get some information leaflets and to have a counselling session with the Macmillan counsellor. I'm hoping this will help her to be a bit less in denial about it so she can start living with this rather than being too terrified about it even think about it. I then too her for afternoon tea at the Langham Hotel. Not sure a full on cream tea with scones etc was what my post chemo stomach was after and I feel bleugh now!

Half way through now...

Pennies - congrats on being half way through! Thank goodness they've reduced your dose as you were having such a very rough time. Good luck with the current lot.

Haggis - good luck with the Tamoxifen.
MAS - I didn't realise there were different brands!

Have been to an auction of promises at High School (well I went to the first third of it anyway) and got a week's accommodation in rather a swish house in Spain - shared the bidding with a friend so we made a joint winning bid! Hope to go some time early 2011 after treatment all over..

well done SR - nice break will be just the thing !
that's great that you are halfway through Pennies- and hope it all helped your mumThere are several different brands I think - Wockhardt seems to suit quite a few on the BCC forum..

Good morning. So far so good for my wound recovery. I actually cannot believe the difference between this time and last time, esp in pain levels. I haven't needed to take any painkillers since I left hsopital whereas last time I was on a heavy dose for weeks! If this continues it makes me realise how bad things were when i got the infection. OR the simple fact that last time was lumpectomy and node sample, whereas this was node clearance and using the same incision place, makes it so much easier.

Thank goodness. I hope I continue on this little track for the week so that I can face chemo on Friday.

Enjoy what looks like a nice day once the fog lifts. I'll prob spend quite a bit of it on the soafa again but at least I can watch a beautiful huge willow tree from there as it waves in the breeze. Might do some gentle pottering.

SR - so pleased your wound seems to be healing much better, that must be quite a relief after last time. Take it easy!

Hope everyone else is doing well, and chemo not quite so bad this time Pennies.

I've spent the day in the garden, its so lovely here.

Oh everyone seems in a happier place. I am so pleased.

Pennies - halfway already! bloody well done! Keep on going, you are so nealry there. Keep your teeth gritted and you'll be done before you know it!

SR - good on you and the would recovery. Hope it keeps going well!

MAS - n Tingha and Tucker was not religious, I don't think - it was ust on ITV - it was a kids programme about two koalas (Tingha and Tucker) and their friends - I think there was a kookaburra, and various other people, and a woman called Auntie Jean Morton. I was a member of the club, and had badges, and everythng!

for Cakes

Well it might have been for Cakes but I enjoyed that clip!! Actually I had a koala when I was little - still have it in fact - slightly moth-eaten. I was firmly told when I was in Oz that I must NOT call them bears. But I tend to forget.

Arm feeling OK though definitely has the rolled up newspaper syndrome today. I am doing the exercises as much as poss even though its rather tight. Read a whole lot on BCC about lymphodeama yesterday and scared myself! Have any of you who've had axillary clearance had it/got it?

Hello all, still limited to iPod posting ATM as I can't get to the puter! Am sitting in the garden on a sun lounger drinking posh coffee and just about to do some knitting lol! Back home for now, will explain in gory detail soon!!

Wow, thanks MAS. I enjoyed that, but looking at it now, hasn't kids TV come a long way ?

Hi SR - sorry about the newspaper, hope it's a little local rag and not the Sunday Times!

I have had axillary clearance and was also frightened witless by the threat of lymphodema, but a year on, I have not suffered yet. Actually my onc told me that they see it increasingly rarely these days, and that the BC nurses tend to overplay it a bit. Did you have the injection of blue dye thing? Don't ask me how, but apparently that is all about trying to avert the risk of lymphoedema, and since it was introduced they see it much more rarely. If you didn't have it (some don't, yet) don't worry I think it is still a smallish risk as regards the arm. I have a bit in my affected boob - as my onc helpfully pointed out, it should be smaller than the other one but is actually a bit bigger, owing to lymph build-up. But it is not looking set to explode, I think it is quite self-limiting

Cross posted with you RWU - welcome home and take it easy. Looking forward to sharing the gory detail when you feel up to it!

good for you doing the exercises SR - hope not too sore.
RWU- enjoy your posh coffee and knitting-nice to have you back
Cakes - I had the blue dye thing,so they only needed to check on the minimum of lymph nodes,thus making lymphoedema unlikely,though BCN pointed out the some people don't have many lymph glands ! I think there is oedema in my breast from rads..the hard bits.