TAMOXIFEN -the third thread ***

[MaryAnnSingleton]

here we are- will put a link on the old thread.

Elibean, thank you so much for your suggestion. I think I've got some voltarol kicking around so I'll try that too if it's still in date!

I've tried Difflam and they've given me some new fangled stuff that is comprised of two vials that I have to mix together before i gargle. I'm a but but i'll do it anyway.

I'm not sure why the injection isn't working. The injection isn't giving me these symptoms, it's just the chemo ravaging me after having destroyed all my defenses. They've said that this time I'll get daily jabs for 7 days afterwards (as opposed to just the one, 36 hours after chemo) and then we'll see what happens. I'm hoping that once I've finished the AC part of my chemo that we can dispense with all this and the Taxol will have less of an effect like this on me. God know what else it will present me with tho.

Oh I see. I had the GCSF daily for 7 days on each cycle, and it did seem to support my system fairly well. Hope it works for you. One day at a time...

sandripples oops! I'm sure your wig is just gorgeous!

I have actually considered a trip into Flares for a brightly coloured afro! If I was still a party animal, I think it would most definitely be an option. Unfortunately, my alcohol tolerance seems to have sunk to an all time low. DH and I shared a single becks over lunch and I turned bright red, glow in the dark stylee.

Hi all - I hope the gargle they've given you helps Pennies, -I suspect anyone who says ulcers 'aren't too bad' hasn't had any!!!

The daily GCSF should give your system more support,I got it daily, then every other day after I was neutropenic I think it will help get you a bit more stabilized. Good luck, hope you're feeling a bit better soon.

Nice to see you Wubbly, I hope you find a wig you like, some of my friends had NHS ones and they looked pretty good.

For all the bra ladies - I found it useful to get one of those bra-extender things like this especially soon after surgery, makes it a bit more comfortable.

Hope the shingles are a bit better RWU.

Pennies, do make sure you don't overlap Nurofen and Voltarol though, won't you? Much the same stuff, but much stronger!

Difflam did nothing for me, but it does kill bacteria so can't hurt. FWIW, a nurse told me throat pain is one of the worst kinds, because of all the nerve endings there...so don't let anyone tell you a throat ulcer doesn't entitle you to sob/yell/eat icecream!

just rushing by to say hello - lovely to see you Wubbly and hi Elibean - hope everyone wh is having a rotten time has a better week and lots of luck for those having treatment this week (sorry to do an all encompassing message,only I hate to forget anyone !)

Hey,How are you all...I am 11 days in and very confused with it all,any help or advice or just a friendly wave/hug would be much appreciated xx

Hello Ebbie,

You are still very much in the early days, which in some way are truly the worst. So much uncertainty and fear. We've all been through it and we can help you in anyway that you need. If you feel up to it tell us what you have been told so far. It looks like you posted late at night - I hope you didn't have a horrible, worrying night. Things are so much worse when everyone else is asleep, aren't they. We're here for you.

I seem to remember you from way back - I think we have similarly aged children (DD born Dec 05 - I used to lurk, and I think I even occasionally posted on the Antenatal threads and I remember you from them).

Hope you're all OK. RWU how is / are the shingles? (What's the correct grammar there?)

Throat pain mildly better today - I have been eying up the fairy cake birds nest cakes that the children made yesterday and wondering if it is OK to have them for my breakfast!

Last night I dreamt that I was having great difficulty buying a hairdryer. Seeing as I now have less hair than my dad then I think my brain was playing tricks with me. If tonight I don't dream that George Clooney tells me I look stunning with wispy strands of hair and asking me to marry him then I'll be writing to Management.

Hi Ebbie

How are you doing? I'm a newbie to all of this myself, only found my lump in Feb and had mastectomy 2 weeks ago. I'm still finding it hard to get my head around it all. Are you just 11 days into your diagnosis?

Hi all

Hope RWU is doing OK, and gald pennies' throat feels a bit less ouchy. Sore throats are the pits.

Hi Ebbie, we are really here for you - it is all very confusing at first, let us know specifically how we can help and we will see what experiences we can dredge up for you. Or just offer a virtual hand, which is often useful. You aren't alone on here.

waving comfortingly to ebbie

'ello
I'm being held hostage in isolation in hospital. Not happy, hate this place. Took a nosedive over the weekend and had difficulty breathing, dh called unit and they had me brought in, everyone looked a bit and decided to put me on the palliative care ward ! thankfully a nice young doctor with a few brain cells came to see me and decreed that I was not dying, but that I need rest and isolation. They are concerned about the cough that I still have in conjunction with the lack of any form if immune system- lots of tests been done, more to come but could be pnumonia.
So I'm bored, but tired so I'm going to have a Kip and then catch up with the world later, I have been playing doodle jump all morning

Oh RWU I'm sorry to hear this. It must be so very hard for you all, what a tough time your family is having right now. I hope they get you better soon.

Dearie Me RWU that all sounds a bit painful and stressful.

I hated isolation too.

Palliative care must have been a bit of a straightener as well

With any luck the rest will do you some good pretty quickly, as long as the boredom doesn't get you first . I think it's a good sign that you are well enough to be bored....

poor lamb RWU -hope you are up and about v soon- Doodle Jump is exhausting too !

Confess I don't know what Doodle Jump is but don't overdo it RWU! So sorry you're having a such a terribel time. Thank goodness that doctor explained you just needed rest etc! Sending hugs and all best wishes.

Ebbie - do tell us a bit more of your story so that we can support you. I joined this thread in December, shortly after dianosis and I've found it very helpdul and friendly. We do have a lot of experience of this awful cancer journey, so just say what point you're at and ask any questions you need to. Your mind is probably reeling round all sorts of scenarios at the moment. Try not to panic - you'll get through this and you'll learn to take one step at a time.

Pennies - glad you're improving. I have put on a big cotton scarf for the 1st time today. It looks nice but tends to slip upwards a little. I just have to anchor it down now and again. Havn't had any interesting dreams for ages though!!

I've been a bit nauseous for a few days and not up to much but bit perkier today. Freezer is making awful rattly noise so need to empty it and take contents to a neighbour while it defrosts completely. Have to stop typing as it makes me feel a bit yuk.
Hugs to everyone and enjoy the chocolate!

sandripples - i used to get a bit icky typing when i was on chemo as well. Take it steady. I bet the scarves look gorgeous. Wear them with attitude!

WOT is Doodle Jump??!?

Hello all, waves and hugs to Ebbie, so sorry you're in the position of having to join us, - but lovely to see you IYSWIM. Very early days for you, your head will still be in a swim trying to take it all in, - this is a lovely thread for advice and support - and people at all different stages of treatment to help you when you need it

RWU - what a pain to be in isolation, but hope you will soon be on the mend and back home, you've had such a difficult time recently, you must be worn out. Have a good rest - lots of love xx.

Glad you're feeling a little better today Pennies, and sorry to hear you're feeling yucky SR. I found Ginger, peppermint or lemon tea, helped a little with nausea. I've also tried those anti-sickness wrist bands, - but the jury's still out on them

Love to everyone else. I've had a great morning meeting up with a very dear friend. We've been friends for about 6/7 years, and by a ghastly coincidence were both DX with BC, within a couple of months of each other. So we held hands, as it were, through chemo etc. I haven't seen her for six months (we don't live very close) and she looks fab., and is doing really well.

Wow, I'm sure they pump anaesthetic gas into the air in here, I keep randomly dropping off mid sentence! MRI scan at 4, so I need to stay awake now. Just overheard the nurses talking about me, it would seem the message about me NOT being at deaths door hasn't got through, they were asking each other why I wasn't in the hospice unit. I'm a bit annoyed that they have read my notes and without even talking to me, have decided what's happening!

Cakes- tWas a shock to be taken to PC, but in all honesty at that precise moment in time both dh and I thought my number was up!

Oh RWU how scary

ref nurses. I bet in a day or so's time, when you are feeling better, they'll realise there's plenty of life left in you yet!

Virtual hand-hold for the MRI....

Good luck with the MRI RWU, thinking of you. at nurses scaring you.

lots of luck RWU and too about nurses
Doodle Jump is a very addictive game on RWU's iPod touch - it jangles my nerves anyway...

Ah. I don't play games like that (reactions way too slow, as is brain) - bet dd does though, must ask her!

Just wanted to drop in to say thanks again for all the tips on what to get my friend last week...I got her a pot of ready chopped fruit from M&S, a nice energy drink, some wipes for her hands and a couple of the pulse point essential oils - one to help sleep and one to promote a clear mind. She was so happy with everything I brought and I would never have thought of it all without your help. I found it quite tough seeing her in hospital - for the first time I got a bit tearful...I think seeing her in her jim-jams, in hospital, made it all real. Anyway, she's home now and recovering, so we will see what the next stage brings.

Sending best wishes to everyone.